Cure Childhood Cancer

CURE Blog


May 28th, 2009

New Childhood Cancer T-Shirts Now Available

There are now two more ways to show your support for childhood cancer research. We are pleased to share two new t-shirt designs, sales from these t-shirts will benefit CURE Childhood Cancer in their fight to find a cure for childhood cancer in our lifetime.

The first shirt reads: (front) Hope keeps us going.  (back) Research holds the promise to CURE childhood Cancer.

The second shirt reads (front) Celebrating Hope. Fighting for CURE.

To purchase either of these shirts, or to view more t-shirts supporting research for childhood cancer, click here.


Donate Today to CURE Childhood Cancer.


May 27th, 2009

CURE Childhood Cancer Event Photos Posted

Coming off two big annual events benefiting CURE Childhood Cancer, Care Affair and Lauren’s Run, we are excited to share that photos from both events have just been posted to our website.

Click here to view the 2009  Lauren’s Run photo gallery. You may also view these photos on Facebook. Stay tuned for an update on the success of Lauren’s Run.

Click here to view the 2009 Care Affair photo gallery. You may also view these photos on Facebook. Care Affair raised $67,500 for CURE at this year’s event. For the full recap, click here.


May 20th, 2009

The 26th Annual Care Affair raises $67,500 for CURE!

The Tri Delta Atlanta Alumnae Chapter was honored to present a check to CURE Childhood Cancer for $67,500.0o from their 26th annual Care Affair event held this past April.

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Tri Delta has been a long supporter of CURE and in 26 years has raised over $1.5 million dollars for CURE.  This year the event co-chairs were Laura Hamilton and Susan Miller.

“Supporting CURE Childhood Cancer has been a very special part of the Tri Delta Atlanta Alumnae Chapter tradition. Over the course of 26 years, our annual Care Affair has become a very meaningful event for us, and for some, a deeply personal crusade. It has been an honor to have served as co-chair this year. We look forward to continuing our effort to help CURE in their support of pediatric cancer research and critical family needs,” states Susan Miller, co-chair.

CURE Board of Directors Secretary, April Voris, is the current Tri Delta liaison to the board.  ”I am so proud of what we are able to commit to and accomplish year after year in fundraising efforts for CURE.  This year was no exception, in a very difficult fundraising year Tri Delta was still able to raise $67,500!  This is a tribute to the passion and dedication the entire chapter has for CURE Childhood Cancer.”

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The 27th Annual Care Affair will be held in April, 2010.  For the most current information and updates on the event, please visit the Care Affair website at www.careaffair.com.


May 19th, 2009

CURE Featured in The Non-Profit Times

CURE Childhood Cancer was featured in an article Social Butterflies Can Raise Money the April 2009 issue of  The Non-Profit Times.

The article highlights the use of online and social tools that non-profit organizations are using to increase their awareness, reach and ultimately their donations. For CURE, we are currently using such online tools as Twitter, a Blog, Facebook, FirstGiving.org, and our CURE online store (just to name a few) to raise money to fund childhood cancer research to find a cure for childhood cancer in our lifetime!

Click here to read the full article, and join us online (and offline!) to help spread the word about CURE.


May 14th, 2009

CURE Childhood Cancer Board of Directors Spotlight: Tammy Hunter

2617_8x10CURE Childhood Cancer is proud to introduce you to our newest addition to the CURE Board of Directors – Tammy Hunter. Tammy is a Partner at KPMG and we are grateful to have her on our team. Below Tammy shares a few insights into what led her become further involved with CURE Childhood Cancer.
“I never knew anyone that had a child with cancer.  I never knew how difficult the treatments were for pediatric cancer patients.  I never knew that there was a lack of funding for pediatric cancer research.  I never knew about CURE. At least I didn’t until April of 2008 when our daughter, Hayley, was diagnosed with Neuroblastoma.  As a parent you never can forget having to watch your daughter lose her hair, lose weight and suffer through chemotherapy, stem cell transplant, surgery and radiation.  Yet through it all, our daughter, like other pediatric cancer patients, persevered and showed us what true strength and determination is.    Towards the end of Hayley’s treatment, we established the Hayley Hunter Research Fund through CURE so that we can help raise money for research that is being conducted right here in Atlanta.  I am very excited to now be a part of the CURE Board so that I can make an even bigger impact as we seek to cure childhood cancer in our lifetime.”


May 11th, 2009

Jeff Foxworthy Supports CURE Childhood Cancer

Comedian and Georgia-native Jeff Foxworthy teamed up with CURE Childhood Cancer for a new Public Service Announcement (PSA) campaign to raise awareness for the non-profit organization which helps to fund research for childhood cancer.

We are pleased to share with you a sneak peek at the below video and two PSA campaign spots even before they air! The support from Jeff Foxworthy has been such an asset for CURE and we cannot thank him enough for his time & dedication to this project.

[youtube=http://www.youtube.com/watch?v=LT4BHBZkLeU]

[youtube=http://www.youtube.com/watch?v=bxaAeAAgfK8]

[youtube=http://www.youtube.com/watch?v=YBdq486PO5Q]


May 7th, 2009

CURE Welcomes Jann Jones, Development and Operations Assistant

Jann Jones joined CURE Childhood Cancer in April 2009 as Development and Operations Assistant.

Jann is a graduate of University of South Florida and has a B.A. in Psychology. Jann has years of experience in office and database management. She most recently worked in the development office of a private high school where she managed the donations database and served as the coordinator for the school’s annual auction.

Jann lives in Roswell with her husband, Russell, and their 4 sons.


May 6th, 2009

Nurses’ Notes: A Nurse Manager's Philosophy on Nursing

“Courtney, room 358 has called out for you,” the secretary advises. Although I know the call is coming, my heart catches in my throat. Slowly I make my way down the hall. I pause at the door knowing what I will see, but not knowing what to expect. It will indeed change my outlook on nursing forever.

Fresh out of nursing school, I came to the Aflac Cancer Center bright eyed and eager to learn. Although I question if this place will be right for me, and if nursing is the right profession at all, I feel confident that I will do well. After all, I feel like I have a good grasp on what nursing is all about. I have taken Pharmacology, Medical-Surgical, and similar courses. I have studied the theorists and philosophers from my field, and completed all my clinical rotations with ease. However, because the cancer unit is such a specialized field, I do feel a bit uneasy about the amount of information I will have to learn.

I quickly realize the amount of information that I must know is vastly overwhelming. I feel I will not be able to learn all this material over the course of my three month orientation. However, according to my preceptors, I adapt easily and have a good bedside manner. I am able to perform all tasks quickly and efficiently such as assessments, vital signs, interventions, and charting. I talk with the patients about their care, and I am kind, yet professional. I remember what I learned in nursing school, and do not want to develop the relationships further, for I might blur the boundary lines we must set in our profession. I work hard to complete all my tasks, trying not to leave anything for the oncoming nurse. To be a nurse means to address the patient’s healthcare needs. Some examples of these needs are giving the patient medications, assisting in activities of daily living, and completing dressing changes. I believe that being a nurse means that we are to assist patients to reach the highest level of wellness of which they are capable. This is what nursing is all about, right?

I slowly open the door, and see my sweet little Ali* lying in the bed. The room is dark, cold, and quiet, with the only sound being the IV fluids running through a pump. Sitting beside Ali is her father, Joe*, holding her hand and softly rubbing her arm. Memories of Ali quickly rush through my head. I remember the first time I saw her walking to the floor, the stubborn way she would not speak to me for the first week in the hospital, the way she rode her bicycle around the nurse’s station for exercise, how she loved to watch the movie Shrek, and how she loved to listen to music. She would make her dad and me sing “Somewhere Over The Rainbow” to her over and again. I remember all her completed art projects I have all over my refrigerator, how much she loves her daddy, her sweet laugh, and how much she would say “I love you”. I quietly sit on the other side of the bed and grab her other hand. She opens her eyes, and I smile. Her breathing is erratic and noisy as I say hello. She says hi and closes her eyes. Sitting with her, I realize that thirty minutes seems like an eternity. She opens her eyes again, and in her sweet voice asks her dad, “Who will take care of you daddy?” Her father softly replies, “You will baby, from heaven.” The four year old, content with that explanation, softly says “sing.”

It is at that moment that I have put it all together. My philosophy on nursing should not and could not just be to provide my patients with the highest level of wellness of which they are capable, but nursing is really so much more. Nursing is being able to put science and practice together with meeting a person’s personal needs. Nursing is not only about the science or completing activities and tasks, but it is about developing relationships with your patients in order to meet their needs. It is about listening and communicating with them on a level that makes a difference. It is being a teacher, an advocate, a confidant, and someone they completely trust. Nursing is about putting all the above together to guide your practice.

Ali’s father looks at me with his eyes filled with tears, and tries to sing. He opens his mouth, but no words will come out. I grab his hand and I begin to sing instead. A familiar tune fills the room. I know to this day that I made a difference in the life of this family. Joe has told me many times that out of all the nurses his daughter had, I demonstrated to him what nursing should truly look like. Do you think that Joe remembers the dressing change I completed every week, or the bed I changed daily, the Nasogastric tube I put down, or the chemotherapy I gave? Maybe, but what was most significant to him was that I knew him and Ali so well. Someone else may not have known at that most important moment, when there could be no words, what the real need had been. In the moment of her death, when he was unable, I softly began to sing “Somewhere Over The Rainbow.” To Joe, that made all the difference in the world.
*Names have been changed.


May 5th, 2009

The Perfect Mother's Day Gift: CURE Childhood Cancer Ribbon Earrings

Still looking for the perfect Mother’s Day gift? Consider giving a gift this year that gives back on so many levels, and one that Mom is sure to love.

Jewelry-designer Virginia Rice has created these delicately beautiful  14k gold fill earrings designed specifically for CURE in honor of the designers nephew, Brennan Simkins who is just starting his battle with AML.

To order, simply email Virginia Rice Designs at vricedesigns@yahoo.com – please specify “CURE Childhood Cancer Ribbon Earrings” in the subject line.

$45.00

To order these earrings please mail a check to:

virginia rice designs
5381 forest springs drive
atlanta, ga 30338
work-404-992-6488


May 5th, 2009

Pediatric Gene Study Brings Hope to Cancer Patients

The Director of the National Cancer Institute offered the challenge: develop a molecular classification system for tumors. Those who study childhood cancer prepared a proposal at once, since children are the perfect model for such work. That’s because it is usually just a single catastrophic genomic insult which leads to childhood cancer, while adult cases may be less straightforward, with factors such as smoking and other illnesses a part of the equation.

This timely response to the challenge was successful: close to $8 million has been awarded for five years of work on “Childhood Sarcomas” by collaborators at Childrens Hospital Los Angeles and USC, The University of British Columbia, Cal Tech, JPL, and the Children’s Oncology Group (COG).

Building on data now becoming available from the recent progress of the Human Genome Project, the study will perform micro-array gene expression analysis of every available sarcoma specimen from children treated by the Children’s Oncology Group over the next five years, expected to be about 500 a year. An already-completed smaller study of 45 patients at Childrens Hospital Los Angeles has shown that gene expression profiles can be used to diagnose and predict the class of children’s tumors. More significantly, this approach was also able to predict outcome with far greater precision than any other existing predictor.
How is micro-array analysis conducted? Don’t ask! Someone may try to explain to you that rows of complementary gene copies are arrayed in a microscopic pattern. Then real genes from tumor tissue — after labeling with a fluorescent dye — are fixed to the copies. The resulting pattern of “hits” registered on a gene chip is scanned by a computer that generates a gene expression profile of up to 60,000 human genes, all within minutes.

More important than how it is done is what it means for future cancer patients. The results at the completion of this landmark study could lead to a huge improvement in cancer care, for adults as well as children, including:

  • Precise categorization of the tumor, and a more relevant diagnosis
  • More accurate assignment of cases to high risk or low risk categories
  • Improved prediction of the possibility of relapse or non-responsiveness to chemotherapy, and therefore more targeted therapies
  • Improved predictability of outcome
  • Greater basic understanding of the basic biology of tumors through identification of abnormally expressed genes
  • New alternative therapies, based on specific gene target information, for new drug development

Pharmaceutical companies are already eager to develop products that target specific genes. “This is just the beginning of a new field of targeted therapy,” says Timothy Triche, MD, Pathologist In Chief at Childrens Hospital Los Angeles and Professor of Pathology and Pediatrics at the USC Keck School of Medicine.

Triche notes, “The microscope has been around for 300 years. The current way of diagnosing tumors and predicting their behavior is primitive by today’s standards. Tumors are generally placed into a group just because they look alike under a microscope. But green apples get mixed in with red apples, and so on.”

He says, “In the future, tumor categories will be based on microscopic diagnostic criteria, as well as gene expression and other molecular genetic criteria. We will correlate those observations with the results of gene expression profiles, and see what works. Ultimately, we will refine the criteria used with the microscope, as well. In addition, we’ll get an instant snapshot of every gene in that tumor’s genome and what it’s doing, and what turns it on or off. Based on their gene expression profiles, they will fall into precise categories, which we hope will identify the optimal therapy.”

By the end of the five-year project, every human gene will be in the array. “We now look at 13,000 genes at a time. We will soon be able to see 60,000 at a time. And there are only 100,000 at the most. So soon we will look at every gene,” Triche predicts.
This will have a profound effect on the whole field of cancer management. “All of us involved in the management of children with cancer, or anyone with cancer for that matter, hope this new approach will ultimately improve the outcome and minimize the consequences for patients,” says Triche. This new study promises to reveal the newest and best treatments for childhood cancer tumors in the near future.

Copyright, National Childhood Cancer Foundation.  Republished with permission from National Childhood Cancer Foundation. No further reproduction or redistribution is permitted without the expressed written consent of National Childhood Cancer Foundation.


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    Nacho Average Taco

    For May and June, order the CURE taco at Red Pepper Taqueria and $1 will be donated to CURE. The taco features chargrilled calamari, crispy eggplant, tomato, onion, sorrel, and ginger pico.


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    Home by Dark - Singer/Songwriter Show

    Saturday June 1st at 8PM at Chukkar Farm in Alpharetta, GA. A portion of the proceeds will benefit CURE. Bring your own chairs and picnic for this beautiful outdoor music event. Click here to learn more.