Cure Childhood Cancer

CURE Blog


May 21st, 2013

Girl’s Night Out Raises $3500 for CURE!

photo copy

On Friday, May 17th hundreds of women (and even a few brave men!) came together for Girl’s Night Out. This annual event, hosted by the Atlanta Braves, selects a charitable benefactor each year. This year CURE Childhood Cancer was selected as the charity of choice and $5 of each ticket sold was donated to CURE. We are excited to announce that the contribution totaled $3500!

The event was a blast, featuring a two-hour party before the game. Women and girls of all ages participated in a photo booth, sampled delicious food and drink, did a little shopping, and enjoyed live music, all before attending a truly exciting Friday-night Braves game. CURE Board President April Voris was present at the event, speaking to the group of women about CURE.

165443_10101471980481385_338377703_n

We had a wonderful time and are thankful for the Atlanta Braves for including CURE at this exciting event.


May 16th, 2013

Girl Celebrates 14th Birthday and Asks for Support of CURE

Last weekend Cathleen Chance celebrated her 14th birthday with her family and friends. Her wish when she blew out her candles? For there to be a cure to childhood cancer. In fact, instead of birthday presents, Cathleen asked her friends and family to come to bring donations for CURE Childhood Cancer.

Tiki torches were burning and the music was loud, creating a party atmosphere that started as soon as you entered the backyard. Tables were laden with sugar in all forms, including homespun cotton candy. Guests were talking, hanging out on giant picnic blankets, and playing cornhole. Adults were smiling as they looked out over a yard full of laughing children and dancing teens. A great night to celebrate a terrific teen and her special cause.

CURE is so important to Cathleen because she was diagnosed with a germ cell tumor when she was only 10 years old.  Once she was done with treatment and ready to head back to a normal kid’s life, she received the scary news that a new cancer, undifferentiated sarcoma, had been found in her abdomen. Cathleen has bravely faced surgeries, chemotherapy, radiation, months out of school, multiple hospital stays, and losing friends made on treatment to this disease.

She’s known for her strong sense of style and wacky sense of humor.  She puts glitter and dazzle on anything that doesn’t move and adds sparkle to any room with her smile. Perhaps Cathleen’s greatest asset is her strong desire to make the way easier for others.

She, and her family, are determined to use their voices, resources,  and time to help CURE fulfill our mission.  Thanks to Cathleen’s unselfish act of directing all her gifts to us, as CURE was given a check for $785!

CURE

CURE

CURE


May 15th, 2013

Team Silas Day Raises Almost $1400 for CURE!

By now you may have heard of a little boy named Silas. Faced with a very tough road ahead of him, his joyous spirit and positive attitude has been an inspiration for many. On April 29th, Larry’s Giant Subs in Vidalia, GA hosted “Team Silas Day” in order to show their support of both Silas and finding a cure for pediatric cancer. For the entire day, 20% of sales were donated to CURE Childhood Cancer.

094

With sea turtles being Silas’s favorite animal, the restaurant provided “Team Silas” sea turtle coloring sheets for children as well as candy and prizes. Jeanette Wiggins of Larry’s Giant Subs says, “We are thrilled it was a success and feel so blessed being able to give to such a good cause.”

From this event, Larry’s Giant Subs raised $1,393.23! Thank you to the staff of Larry’s Giant Subs as well as the Vidalia community for honoring Silas and supporting CURE’s efforts to end this disease once and for all.

092

099


May 13th, 2013

Youth Council Donates iPads to Child Life Program at The Childrens Hospital

CURE Childhood Cancer knows that socially engaged young people can effect positive change. They are resourceful and know how to access and navigate their ways through different settings to find and create opportunities to be engaged in purposeful collective action that can lead to positive social change. Through our Youth Council, CURE is committed to engaging youth as individuals with talents, opinions and a desire to make a difference.

Kelly Cowan Recently, our Youth Council broke down into groups of three to complete a project that would be helpful to the children in the hospital. Through their diligence and dedication, one of the groups, comprised of Jack Gearon, Markell Adams, Paige Caffrey and Trisha Malloy, came up with enough money to buy 3 iPads!

These iPads were donated to the Child Life Program at The Children’s Hospital at Memorial University Medical Center.

Kelley Cowan (featured in picture) is the child life therapist who made CURE aware of the need for the iPads in the outpatient clinic at The Children’s Hospital.  She let CURE know that they allow the kiddos to use iPads for expected things like fun apps and face time with friends and family who can’t be at their appointments. They have also found the front cameras extremely useful because the therapist can use a special handle on the iPad, then hold it in such a way that the child can see the procedure being performed on them by watching the screen.

We would like to thank Elle Rivers who donated the very durable covers and handles needed for all three iPads! Also, congratulations to the Youth Council on their dedication to helping our patients and families. Because of their effort to get 3 into the hospitals, one of our Board Members is now donating another 5 iPads. If not for them, none of this would have happened!


May 12th, 2013

Remembering Our Children this Mother’s Day

This Mother’s Day, please enjoy the words below from Annamarie Robb, mother of Sam Robb.

Sam Robb Being a mother gives you an anchor in time. Children become our point of reference in time-before or after, when children were young or now grown. Sam is forever young in our memories. We see his friends moving into new thresholds of life–careers, relationships, engagements, marriage, and children.

While some may think my time as Sam’s Mom was limited, it’s unlimited. Each time I go to the hospital to serve dinner to families, I am Sam’s Mom. I am touched to have the smiling faces of nurses who still remember Sam from ten years ago. When we lose our children, we lose a part of ourselves. Comfort comes from friends and family who continue to remember.

Thank you for providing support for all our efforts in Sam’s memory.

Happy Mother’s Day!

- Annamarie


May 10th, 2013

CURE Honors Nurse Bethany from Children’s Healthcare of Atlanta

For many CURE Childhood Cancer families, nurses become family. While they care for sick children, they also seem to find a way to care for their entire families. Nurses know the power of a kind word, a caring touch, a sympathetic ear. They probe the depth of the human condition – the strength and suffering of the body, mind, heart, and spirit.

During this Nurses’ Week, CURE celebrates our nurses, each of whom truly embodies the spirit of giving and caring at its finest, and is highlighting some of those who are helping our families each and every day.

Meet, Bethany Smith, a nurse who treats our families at Scottish Rite. Her words will strike emotion deep within your heart.

“I have always wanted to be a nurse since I was a little girl.  While I was in my last year of nursing school I worked as an extern in labor and delivery.  Everyday that I went to the hospital I was a part of the best day of a family’s life.  I saw a miracle every time I went to work.  As exciting as my job was I felt that I could do more and be more to the families I work with. 

Bethany Smith PhotoOne of my favorite things about working with children is how resilient they are.  Unlike adults these kids can be battling cancer and still just want to be kids, unlike us adults (myself included), who just have a cold or the flu and think it is the end of the world! 

One day I had a patient who was in the very beginning of his treatment.  That morning I walked in his room to give him his morning medications and take his first set of vital signs for the day and he just said, “Can you tell me exactly what time you need me to be in my room today because I have lots of activities planned.”  I gave him his schedule for the day and he was off to the zone. 

Around 2 PM it was time for his scheduled Zofran and he had not come back to his room yet but I knew exactly where to find him.  I headed down to the zone, Zofran in hand, and found my little guy exactly where I thought he might be, on the putt putt course.  I told him I was going to give him his medicine and he promptly said, “Okay just be careful with my port, I don’t want to mess up my swing.” 

The struggle and reward of this job is you are, not only the patient’s nurse, but you also become their family.  You are there for the tears that are shed when the family hears the devastating word cancer and you are there for the tears of joy for the victories along the way.  We are the ones who have to poke them with needles but we are also the ones who do the “you took your medicine all by yourself dance” all around their room and make them laugh.  We are the ones who hold their puke bucket but we are also the ones who laugh with them during their 4AM vital signs when their dad is snoring soooo loud!  We are the ones who have to tell them they probably won’t be able to leave the hospital to go to that party because their counts are too low but we are also the ones who help them write the text message to that boy in their class they have a crush on.  We are the ones who administer their chemotherapy but we are also the ones who dig through every linen bag in the dirty utility room searching for their lost teddy bear.  We are their nurses, we are part of their families, we are their friends.”


May 9th, 2013

CURE Honors Nurse Meg from Children’s Healthcare of Atlanta

For many CURE Childhood Cancer families, nurses become family. While they care for sick children, they also seem to find a way to care for their entire families. Nurses know the power of a kind word, a caring touch, a sympathetic ear. They probe the depth of the human condition – the strength and suffering of the body, mind, heart, and spirit.

During this Nurses’ Week, CURE celebrates our nurses, each of whom truly embodies the spirit of giving and caring at its finest, and is highlighting some of those who are helping our families each and every day.

Meet, Meg Bendik, a nurse who treats our families at Scottish Rite.

“I became a nurse because I wanted to be able to spend quality time helping people, and I loved the holistic philosophy of nursing. I think there is something really special and inspiring about taking care of someone when they are at their worst.

Meg Benedict Photo I rowed in high school and college with Sam Robb‘s sister Liz; her and her family’s commitment to a cure was so inspiring, and I wanted to be a part of curing other kid’s disease. From a nursing perspective, I liked the complexity and acuity of the patient’s problems and how the oncology knowledge base is always changing; it lets my nerdy side shine. I love how forgiving kids are, and I love being able to act like a goofball at work!

The number one struggle I face is how much is out of our control. As hard as we may try, there are some times where it seems like a never-ending uphill battle to make patients comfortable. I wish I had an everlasting bag of medication and tricks in my pocket. Watching kids endure all the nasty side effects of toxic chemo and radiation wears on the soul. I have to constantly remember all the patients that are able to conquer cancer with our help and not focus on all of the discomforts of treatment and the sadness of relapses and death. A day at work sometimes feels like a war zone; being a soldier against cancer is emotionally, mentally, and physically draining, but the cute kid in the bed, blowing kisses at you despite spending the majority of her night puking is worth every second.

Seeing kids finish treatment and getting to do normal kid stuff brings me so much joy. I love watching the transition from “sick, skinny, bald, and pale” to healthy and plump with a full head of hair. Getting to know the families and getting to play pranks and act like a kid myself makes my job fun. The little thank you’s, doodles, and notes from families may seem small, but they are my motivation to keep coming back.

It is my goal every day to make my patients and their parents smile at least once, no matter how bad the shift. I try to make the kids as comfortable as possible during their illness and to help give their families a little peace of mind as best I can.”


May 8th, 2013

CURE Honors Nurse Kaitlyn from Children’s Healthcare of Atlanta

For many CURE Childhood Cancer families, nurses become family. While they care for sick children, they also seem to find a way to care for their entire families. Nurses know the power of a kind word, a caring touch, a sympathetic ear. They probe the depth of the human condition – the strength and suffering of the body, mind, heart, and spirit.

During this Nurses’ Week, CURE celebrates our nurses, each of whom truly embodies the spirit of giving and caring at its finest, and is highlighting some of those who are helping our families each and every day.

Meet, Kaitlyn Haygood, a nurse who treats our families at Scottish Rite.

“The reason I became a nurse is the same reason I wanted to become a pediatric oncology nurse. I was affected by cancer at the young age of 11. My sister and best friend, Ashlee Shea Haygood, was diagnosed with a medulloblastoma in 2000 and started treatment at Egleston Children’s Hospital. She fought a long and hard fight for 18 months before losing her battle in May of 2002.

Kaitlyn Haygood The nursing staff at Egleston became our family. They provided incredible care to my sister and involved the whole family. They inspired me to pursue, not only nursing but, a career in pediatric oncology. It became my calling. 

After graduating, I was hired on at the Alfac unit at Scottish Rite as a pediatric oncology nurse! 

In my short time on Aflac, I have had the privilege to meet some amazing patients! One of my fondest memories is with a boy named JT who was diagnosed with Burkett’s Lymphoma. I was able to watch his journey from diagnosis to remission, and it was one of the sweetest and most rewarding experiences I’ve been a part of. He is one of the liveliest little men I know! Instead of waiting to lose his hair, he shaved it into a Mohawk and dyed it green. Most of all, he loved playing with motorcycles! So one day another nurse and I created an obstacle course around the unit for his motorized motorcycle. He spent all day racing his motorcycle around the unit! Best day ever! He is now in remission and all his scans are clear!

However, there are struggles that come with being a pediatric oncology nurse. What we do is difficult emotionally, mentally and spiritually. We care for children who have been diagnosed with a terminal illness and are being treated with chemo therapy/radiation, etc. that is so harsh on their bodies. We also get attached to so many of our patients that we go through all of their ups and downs with them. It’s not always easy. 

The rewards of our job are what makes all the struggles worth it. Our patients are incredible! Their resilience, joy, and overall outlook on life is astounding. They have impacted and changed my life forever. The greatest overall reward is watching a child win their battle with cancer and go into remission!”

Thank you, Kaitlyn, for all that you do for our children and families!


May 6th, 2013

CURE Honors Nurse Karen in South Georgia

For many CURE Childhood Cancer families, nurses become family. While they care for sick children, they also seem to find a way to care for their entire families. Nurses know the power of a kind word, a caring touch, a sympathetic ear. They probe the depth of the human condition – the strength and suffering of the body, mind, heart, and spirit.

During this Nurses’ Week, CURE celebrates our nurses, each of whom truly embodies the spirit of giving and caring at its finest, and is highlighting some of those who are helping our families each and every day.

Meet, Karen, a nurse who treats our families in South Georgia.

“I feel so honored to be spotlighted by CURE. Thank you for the opportunity to share my wonderful experiences with such special patients and families.

Nurse Appreciation WeekThe majority of my nursing career has been spent on the Hematology/Oncology/BMT unit at Nationwide Children’s Hospital in Columbus, Ohio. I worked there for 13 years as a senior staff/charge nurse. This is where I fell in love with such a very special patient population – children with cancer.

Children diagnosed with cancer and their families hold a special place in my heart. The long journey they go through with the fear and reality of diagnosis, the months or years of treatment, and the physical and emotional recovery is so inspiring. As a pediatric oncology nurse, I am so honored to be a part of that journey by helping educate and comfort the kids and their families in any way I can.

Over the years, I have had the privilege to witness how much strength and courage a child with cancer has. A great example of that strength is about a little 8 year old girl diagnosed with ALL who would occupy her time during her long hospital stays by making beautiful bracelets to raise money for other kids with cancer. Such an inspiration!” 

Thank you, Karen, for all that you do for our children and families!


  •  

    Screen Shot 2013-05-06 at 4.25.29 PM

    Nacho Average Taco

    For May and June, order the CURE taco at Red Pepper Taqueria and $1 will be donated to CURE. The taco features chargrilled calamari, crispy eggplant, tomato, onion, sorrel, and ginger pico.


  • Screen Shot 2013-05-14 at 2.49.59 PM

    Home by Dark - Singer/Songwriter Show

    Saturday June 1st at 8PM at Chukkar Farm in Alpharetta, GA. A portion of the proceeds will benefit CURE. Bring your own chairs and picnic for this beautiful outdoor music event. Click here to learn more.