Cure Childhood Cancer

CURE Blog


February 14th, 2013

CURE Provides Comfort Kits

comfort kitA few months ago, Lisa Branch, CURE Childhood Cancer’s Director of Patient & Family Services, received a call from a hospital social worker asking if CURE would consider taking on a new project.  She explained that when a child has transitioned to hospice care while in the hospital, families tend to sit vigil at the child’s bedside, unwilling or unable to leave the room. She asked if we could consider putting together baskets with “comfort items” that could be delivered to each family in this circumstance.

“Of course we wanted to help fulfill this need,” says Lisa. ”My heart broke listening to the social worker explain the situation. Providing ‘Comfort Kits’ is really the least we can do for these families.”

CURE Comfort Kits are baskets filled with items such as snacks, gum, peppermints, coffee, tea, hot chocolate, a coffee mug, chapstick, lotions, soft Kleenex, and other items we hope will offer a small amount of comfort to the families. When the Comfort Kits are delivered to the room, the social workers also place a small cd player and instant hot water dispenser in the room for families to use, both donated by CURE.

If you would like to help with Comfort Kits by donating large baskets or items to fill the baskets, please contact Lisa Branch at lisa@curechildhoodcancer.org or 770-986-0035 ext. 22.


January 8th, 2013

Gratitude, Gratitude, Gratitude! Nothing But Gratitude!

We never cease to be completely amazed and humbled by the response of the CURE community to the needs of the children and families we serve. In December, you showed us your determination to support our families, to ensure children with cancer and their brothers and sisters did not miss out on special experiences because of a cruel disease and to make sure gifts were under the tree on Christmas morning or plentiful during Hanukkah celebrations. You provided holiday gifts for a record number of families this year – 46 in all!  You provided gifts to families throughout the state – 15 in Savannah and south Georgia, 8 in the Augusta area and 23 in the metro Atlanta area. We wish you had been able to share in the tears of gratitude, the humility of parents who just could not have managed the holidays on their own this year…the families were truly overwhelmed by your generosity and love. On behalf of each of these precious families, we thank you.

The Tylka family, generous supporters of CURE, provided an extra special day for some CURE families by inviting them to the St. Regis Atlanta for a day of ice skating, s’mores, hot chocolate and more! The ice rink was full of laughing children and parents alike as the Tylka’s children and grandchildren stood ready to help with any need, ensuring everyone had a fantastic time. The families were surprised by a very special visit from Santa Claus and Mrs. Claus who took pictures with the children and cheered them on as they skated.

Holiday parties were held in both Atlanta and Savannah thanks to the Opera Event Center and the Andaz Hotel.  Literally hundreds of volunteers devoted countless hours to planning and putting on grand holiday celebrations and creating a wonderful memorable experience for more than 100 families.

Also in December, nearly 250 brave runners took to the road wearing festive speedos in the Atlanta Santa Speedo Run. They raised more than $85,000 for CURE! Wow! Stone Mountain donated tickets for a number of families to enjoy Snow Mountain. Generosity abounds!

In addition, you supported our work with your donations at record levels. Giving to CURE has increased from this time last year. Your generous giving is what enables us to serve families all year long. Your giving is what fuels the research our Scientific Advisory Council has identified as some of the most promising and important work being done.

Each of us at CURE is filled with gratitude for each of you. We are so thankful you choose to walk with us and fight for children with cancer. Happy New Year!


November 13th, 2012

CURE Grows Patient and Family Services in Savannah and South Georgia

In an effort to enhance our services to patients and families in South Georgia, CURE is thrilled to announce the addition of Kim Osborne to our staff.  Kim will act as CURE’s Patient and Family Services Manager in Savannah, focusing efforts on extending CURE’s services to childhood cancer patients who are treated at Children’s Memorial Hospital in Savannah, which services 24 counties in south Georgia.

“CURE has always offered services to these children and families,” explains Lisa Branch, Director of Patient and Family Services. “However, the addition of Kim to our staff allows us to literally put CURE on the ground in south Georgia. We know this will enable to us provide much better, much deeper support and assistance to these families dealing with childhood cancer.”

“Kim is the perfect person to serve in this role,” adds Executive Director Kristin Connor.  “She has experienced the devastation of childhood cancer first hand, and she has since dedicated her life to supporting children and adults affected by cancer.  This is a natural fit.”

Indeed, Kim’s world was forever changed in 2005 when her son, John Michael, was diagnosed with Acute myeloid leukemia (AML).  His care was so consuming that Kim left her job and graduate school.  The ensuing months were filled with inpatient chemotherapy in Savannah and a bone marrow transplant in Atlanta followed by months of recovery and trips between the two medical facilities.

Kim quickly came to know CURE and was so grateful for the support she received.  As John Michael recovered, Kim began volunteering for CURE in Savannah, specifically taking CURE’s Early Outreach program to patients at Children’s Memorial Hospital. Since then, she has been singly focused on providing outreach to families facing a cancer diagnosis.

While Kim’s desire to serve families with children with cancer has always been strong, it was fueled by another harrowing diagnosis in her small family.  Just recently, Kim’s young niece was diagnosed with rhabdomyosarcoma and is currently undergoing treatment.

“I am honored to join the CURE team,” says Kim.  “I am honored to have the opportunity to work daily with the families I have grown to love.”


March 14th, 2012

Endocrine Problems After Childhood Cancer Treatment

Written by Brooke Cherven, RN, MPH, CPON and Lillian Meacham, MD

Survival rates for childhood cancer have grown greatly over the last few decades thanks to many advances in pediatric cancer treatment. Today the majority of children diagnosed with cancer will become long-term survivors. Survivors can be at risk for developing health problems after cancer treatment. these health problems are called late effects and can include endocrine problems.

What are Endocrine Problems?
An endocrinologist, or hormone doctor, treats diseases or health problems affected by hormones. Hormones are needed for normal growth, puberty, thyroid and adrenal gland function and to regulate glucose levels. Common hormone problems seen in childhood cancer survivors include: short stature, growth hormone deficiency, thyroid problems, problems with adrenal glands and early or late puberty. In a study of the Aflac Cancer Survivor Program the most common problems seen in survivors were endocrine. In this study almost 60% of survivors had a hormone related problem such as; poor growth, early or late puberty, low bone mineral density, thyroid problems or being over or underweight.

Who Needs to See an Endocrinologist?
Certain cancer treatments can put survivors at risk for developing endocrine problems. If your child is at risk for developing an endocrine problem because of their cancer treatment, they may see an endocrinologist during their survivor clinic visit. If your child begins to develop an endocrine problem your oncologist may send you to see an endocrinologist.

The most common treatment associated with endocrine problems is radiation to the head or brain. This can damage the pituitary gland, located in the middle of the brain. The pituitary gland regulates growth through the production of growth hormone. It also produces hormones which regulate the thyroid and adrenal gland and regulate puberty. Damage to the pituitary gland can then cause an imbalance of these hormones. Radiation of the thyroid gland or ovary or testes can also disturb hormone balance. Only a few chemotherapies alter hormone production by damaging the ovary or testes. Diabetes mellitus can occur in survivors especially those who are overweight or being treated with steroids like prednisone or decadron.

How Do I See an Endocrinologist?
There are pediatric endocrinologists in most major cities. In the Aflac Cancer Center there are 2 endocrinologists available to see hematology and oncology patients. Dr. Briana Patterson follows patients who are treated for brain tumors and Dr. Lillian Meacham sees patients in the Aflac Cancer Survivor Program and the Aflac Endocrine Clinic. Because it is likely a survivor will have an endocrine problem the survivor program has an endocrinologist available during survivor clinic. Any survivor who is at risk for developing an endocrine problem will be scheduled to see an endocrinologist during their survivor clinic visit. It is hoped that this will be more convenient for the family. Seeing the endocrinologist during survivor clinic will save an extra trip for the family and allow labs to be drawn at the same time. This also helps improve communication between the survivor and endocrine doctors and nurses.

What Will an Endocrinologist Do?
The endocrinologist will want to know about your child’s health history and will ask questions about your family history including any family members who have had endocrine problems. She will do a physical exam including height, weight and calculate your child’s Body mass index (BMI). This will determine if your child is of normal weight, underweight, overweight or obese. She will also want to know how your child is progressing through puberty and will conduct a breast exam or testicular exam. This will help identify any problems with puberty and development.

Usually the endocrinologist will order blood tests to check different hormone levels. She may also order a bone age which is an x-ray of the left hand and will show how your child’s bones are maturing.

How do you Treat Hormone Problems?
Most hormone problems can be treated by giving hormone therapy. Some therapies are pills, some are shots, some are patches and some are nasal sprays. If your child is placed on an endocrine treatment they will need regular follow up to monitor the dose of the hormone therapy. Most hormone treatments are long-term if not life-long.

To learn more about childhood cancer survivorship visit www.cancersurvivorlink.org or www.choa.org/cancersurvivorship.


January 26th, 2012

2012 Hope and Healing Weekend

This weekend, January 28-29,  CURE Childhood Cancer will hold our Annual Hope and Healing Weekend, formally “Bereavement Weekend,” at the Hilton Atlanta Northeast in Norcross, Georgia. Each year, CURE invites parents who have lost a child to cancer to attend this therapeutic event. We hope to provide the attendees with the opportunity to connect with other parents who have shared a similar journey, all-the-while remembering and celebrating the life of their children. In addition, we hope all of the guests find comfort and hope from speakers and counselors who have given their time to share this weekend with them.

Last year we hosted 130 family members. Some attended for the first time and others were able to reconnect with friends they met at the event in years past.

At last year’s event, we were honored to have Paula Carter from Tulsa, Oklahoma, as our keynote speaker. Paula lost her son Scott to cancer in 1993. Since then, Paula went on to become one of the founders of The Scott Carter Foundation, which raises money for cancer research in Oklahoma. Additionally, members of Mourning Dove Ministries and North Georgia Family Counseling Center worked with parents in small group sessions. Sunday morning, Susan Hovis shared her story of losing her daughter to childhood cancer and Ron Greer, a pastoral counselor at Peachtree Road United Methodist Church, spoke about grief and hope.

We hope this weekend’s event brings peace and comfort to all in attendance.

If you would like more information on CURE’s Bereavement Weekend, please contact Lisa Branch at lisa@curechildhoodcancer.org


January 12th, 2012

Help Needed – Open Arms Lunch

For those spending days, weeks or months in the hospital with a sick child, simply staying nourished can be a challenge. Often already overwhelmed with mounting out of pocket expenses, cafeteria and take out dining for days on end is just not possible for some caregivers. Skipping meals sometimes is the only option.

Even where economic hardship is not an issue, a break from hospital cafeteria food is always appreciated. Knowing that caregivers not only need nourishment but sometimes also fellowship, more than 20 years ago, CURE Childhood Cancer volunteers began a program called “Open Arms.” Each Thursday evening for decades, volunteers have served meals at both Scottish Rite and Egleston campuses of Children’s Healthcare of Atlanta to patients and their families on the inpatient cancer units, bringing a sense of home to the hospital. In order to meet the growing needs of families, two years ago, we expanded our Open Arms outreach to patients and families by adding a monthly lunch at both hospitals.

We are in need of companies, groups or organizations to sponsor our Open Arms lunches at both the Scottish Rite and Egleston campuses of the Aflac Cancer Center atChildren’s Healthcare of Atlanta. The lunches occur on the second Tuesday of each month. The cost is $400.00, which will feed about 50 patients and their families at the two hospitals. Food is picked up and delivered to each hospital by a CURE employee who will assist the volunteers in setting up and serving the food. Up to 6 volunteers can participate from a company or group, with 2-3 volunteering at each hospital. Set up begins at 11:30 am and lunch lasts until 1:00 pm.

Sponsoring an Open Arms at Lunch is a great opportunity for a company, organization, club or small group of people. If you are interested in sponsoring a lunch or learning more about Open Arms at Lunch, please contact Lisa Branch at lisa@curechildhoodcancer.org or 770.986.0035 ext. 22.


December 27th, 2011

CURE’s Holiday Luncheon

As part of CURE Childhood Cancer‘s Open Arms program, restaurants, families, and individuals donate meals to be served by CURE volunteers to children and their families who are in the hospital. These meals are something families look forward to throughout their weeks, or months, living in the hospital.

During the holidays most of us spend time with all of our families, sitting around the dinner table enjoying homecooked meals and treats. However, for the families of children battling cancer, their time is spent in the hospital. To ensure that these children, their families, and the hospital staff are not left out from the holiday traditions, Greg and Ginger Kindred – parents of one of CURE’s Kids, Trenton Kindred – organize and host a Holiday Feast at Children’s Healthcare of Atlanta.

This year marked the 5th Annual Christmas Eve Luncheon hosted by the Kindreds. The Kindreds began planning for the luncheon back in October, organizing 50+ cooks, 60+ filled stockings, 60+ pet pals, and gathering more than $3,000 in gift cards for the families. The Kindreds couldn’t do it all alone, with their family volunteering to serve the lunch on Christmas Eve and members of their community donating dishes of food. Ginger said she loves seeing all of her neighbors and friends show up at her doorstep Christmas Eve morning, still dressed in their robes and slippers, to drop off cooked turkeys, hams and casseroles.

This year’s luncheon was just as successful as ever! Greg filmed a few short videos from the celebration, which we are sharing with you below. We hope each of you had a wonderful holiday season with your friends and family.







December 19th, 2011

Primary Care Providers After Treatment

During cancer treatment families become used to seeing their oncologist for most of their healthcare needs. Usually the oncologist will send updates to their patients’ pediatrician or primary care provider (PCP) about their progress in treatment. After finishing treatment, however, it is important for families to reconnect with a PCP. Some families will see a pediatrician for primary care, others may see a family medicine doctor. It is important as you choose a PCP that you find someone you trust.

Why is having a PCP important?

A PCP will serve as your medical home, the head of your healthcare team. Seeing your PCP regularly will help him stay up to date about the needs of your child and be able to provide the best care possible. It is also important that your PCP has a complete list of any medical problems your child has or has had in the past. This will help him when coordinating your child’s healthcare needs.

Transitioning back to your PCP after cancer treatment

Many times transitioning care back to a PCP can be scary for families. After all, you’re used to calling your oncology team whenever your child has a problem. After treatment is finished many of your child’s health needs should be met by your PCP. Your oncologist will tell you when it’s time to transition back to your PCP for most of your child’s healthcare.

Communicating with your PCP: Cancer SurvivorLink can help!

After treatment you want to make sure your PCP is up to date on your child’s cancer history and any health problems that could develop after treatment (called late effects). When patients are two years off treatment they can be seen in the Aflac Cancer Survivor Clinic. During this visit survivors will receive a Survivor Healthcare Plan (SHP) which consists of three parts:

  • Treatment summary including information about cancer diagnosis and all cancer treatments.
  • Individualized risk profile for late effects of cancer treatment based on the cancer therapies received.
  • Individualized surveillance plan to screen for late effects.

Your PCP should have a copy of your child’s SHP as should any of the  other healthcare  providers you see, for example a cardiologist or orthopedist. You can electronically store your SHP in a protected website, Cancer SurvivorLink, created by doctors and researchers at Emory University and Children’s Healthcare of Atlanta. You can also store other important health documents, for example a letter from your oncologist or a report from cardiology. Using Cancer SurvivorLink, you can share a copy of your SHP and any other health documents you have stored with your PCP, and any other doctors your see. You can also use Cancer SurvivorLink to quickly pull up your stored health documents if needed in an emergency or when you see a new healthcare provider. If you haven’t been to a survivor clinic yet, you can use Cancer SurvivorLink to find a clinic in your area.

To learn more about childhood cancer survivorship visit www.cancersurvivorlink.org or www.choa.org/cancersurvivorship.


December 12th, 2011

CURE’s Annual Campaign

Children with cancer are racing against time. They need all of us.

Imagine this. Today a doctor stares you in the eye and tells you, “Your child has cancer.” The most terrifying race you can imagine – to save a child’s life – is upon you.

It’s an unfair race. A young, defenseless child up against an insidious, growing army of merciless cancer cells. Doctors, hospitals, and scientists constantly at the mercy of treatment and research breakthroughs, which are only made possible by the hard reality of financial funding.

CURE Childhood Cancer exists to give children better odds in their race against time. The children are betting that you’ll help. And now is the moment.

It’s your opportunity of a lifetime. Our Annual Campaign gives you the chance to be all the human being you can be. To genuinely make a difference in the ambushed lives of children affected by cancer.

Through your unrestricted gift to our Annual Campaign, you help us uphold our undying mission – discovering cures for childhood cancer through targeted research. And providing support so essential for devastated patients and their families.

Our goal is to raise $525,000 by June 30, 2012. You can pledge now and pay over time. All pledges should be paid by June 30, 2012. We accept pledges, cash, credit cards, checks, recurring gifts, and stock. Gifts of any amount matter!

A gift of $60 will feed 10 hospitalized children or give their caregivers a deserved dinner.

A gift of $500 will help one family with out-of-pocket medical costs – copays and prescriptions for their child with cancer.

A gift of $800 will send four families to CURE’s Bereavement Weekend, with professionals to help them in their journey with their loss.

A gift of $25,000 will fully fund one promising research project selected by our Scientific Advisory Council.

Whatever you give, CURE’s children and families thank you for believing with us. That we we will cure childhood cancer in our lifetime.


December 6th, 2011

Copeland’s Supports CURE

Copeland’s of Atlanta has generously partnered with CURE Childhood Cancer as an Open Arms Sponsor. Open Arms is a program that provides meals to hospitalized children with cancer and their families. Recently, Copeland’s brought a Thanksgiving meal to patients and families at Children’s Healthcare of Atlanta and NBC 11Alive was there to cover the story. Click below to watch the clip:

Thank you, Copeland’s, for your continued support!


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    Nacho Average Taco

    For May and June, order the CURE taco at Red Pepper Taqueria and $1 will be donated to CURE. The taco features chargrilled calamari, crispy eggplant, tomato, onion, sorrel, and ginger pico.


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    Home by Dark - Singer/Songwriter Show

    Saturday June 1st at 8PM at Chukkar Farm in Alpharetta, GA. A portion of the proceeds will benefit CURE. Bring your own chairs and picnic for this beautiful outdoor music event. Click here to learn more.