Cure Childhood Cancer

CURE Blog


February 26th, 2013

Volunteer Stephanie Mitra Provides Support for Nurses

Screen Shot 2013-02-26 at 12.04.20 PMVolunteers are the heart and soul of CURE Childhood Cancer; their dedication to our work and our children is simply inspiring. This month we would like to share with you the volunteerism of Stephanie Mitra.

I began volunteering at CURE several years ago after getting to know the staff through my association with the Country Club of the South Charity Guild. At CURE, I’ve done office work, I’ve helped prepare for the Quiet Heroes Luncheon, and I’ve helped at the CURE Annual Picnic. I’ve enjoyed all of those events, but none of those things truly became an extension of me like my contributions to CURE’s Good Grief Luncheons.

When a child is lost to cancer, it’s understandably devastating to the family and friends of the child. Beyond the family, in the shadows, stand the nurses who fought beside that child.  There are times that the nurses barely have time to grieve one child before they lose another, and another. I cannot imagine a more emotionally grueling job. Good Grief is my opportunity to show those nurses how heroic I think they are for what they do every day.

When the hospital suffers a cluster of cancer deaths, the chaplain assigned to the hospital designates a day for spiritual healing and renewal. She provides the words and I provide the food. I approach the meals from the perspective of wanting the nurses to taste that they are appreciated in every bite that goes into their mouths. It should be comforting. It should be fresh. It should be delicious!

I do this because I love good food and I’m in awe of people who have chosen to do a job that I feel inadequate to do. It is a constant source of joy to recognize and celebrate the hard work of these nurses. At the end of these meals, I always find that I’m a little bit confused when I’m thanked so profusely. I have the easy work. Thank the nurses.


January 12th, 2012

Help Needed – Open Arms Lunch

For those spending days, weeks or months in the hospital with a sick child, simply staying nourished can be a challenge. Often already overwhelmed with mounting out of pocket expenses, cafeteria and take out dining for days on end is just not possible for some caregivers. Skipping meals sometimes is the only option.

Even where economic hardship is not an issue, a break from hospital cafeteria food is always appreciated. Knowing that caregivers not only need nourishment but sometimes also fellowship, more than 20 years ago, CURE Childhood Cancer volunteers began a program called “Open Arms.” Each Thursday evening for decades, volunteers have served meals at both Scottish Rite and Egleston campuses of Children’s Healthcare of Atlanta to patients and their families on the inpatient cancer units, bringing a sense of home to the hospital. In order to meet the growing needs of families, two years ago, we expanded our Open Arms outreach to patients and families by adding a monthly lunch at both hospitals.

We are in need of companies, groups or organizations to sponsor our Open Arms lunches at both the Scottish Rite and Egleston campuses of the Aflac Cancer Center atChildren’s Healthcare of Atlanta. The lunches occur on the second Tuesday of each month. The cost is $400.00, which will feed about 50 patients and their families at the two hospitals. Food is picked up and delivered to each hospital by a CURE employee who will assist the volunteers in setting up and serving the food. Up to 6 volunteers can participate from a company or group, with 2-3 volunteering at each hospital. Set up begins at 11:30 am and lunch lasts until 1:00 pm.

Sponsoring an Open Arms at Lunch is a great opportunity for a company, organization, club or small group of people. If you are interested in sponsoring a lunch or learning more about Open Arms at Lunch, please contact Lisa Branch at lisa@curechildhoodcancer.org or 770.986.0035 ext. 22.


June 4th, 2009

Dr. Ann Mertens, a CURE funded researcher at the Aflac Cancer Center, is named an Atlanta Health-Care Hero and Honored with a Revered Award

Each year, the Atlanta Business Chronicle formally recognizes exceptional accomplishments in health care with its annual Health-Care Heroes Awards. On May 8, 2009, Dr. Ann Mertens, Director of Clinical Research at the Aflac Cancer Center and Blood Disorders Service of Children’s Healthcare of Atlanta, was honored as a winner of the 2009 Health-Care Heroes Awards. CURE Childhood Cancer is exceptionally proud of Dr. Mertens and her commitment to support pediatric cancer survivors through the development of a Georgia-wide, population-based initiative that focuses on follow-up health care and cancer survivorship research.

“Through the generous support from CURE, we have been given a grant to enable us to identify all childhood cancer survivors in Georgia and give us a preliminary look at the level of follow-up health care they need and so deserve,” says Dr. Mertens. “Childhood cancer survivors are at an increased risk for a range of adverse long-term outcomes, due to cancer and its aggressive treatment in children, and we want each of them to have access to a post-therapy health plan that includes proper follow-up care as they transition to adults.”

Cited by the Atlanta Business Chronicle as a doctor who shows exemplary performance in her field, Dr. Mertens has studied the late-term effects of childhood cancer for decades and is working to educate the health-care community on cancer survivorship. CURE has awarded Dr. Mertens a grant which will enable her to recruit a Masters level Epidemiologist who will be charged with obtaining all of the data necessary to identify childhood cancer survivors statewide, the first step in establishing this pediatric cancer survivor initiative.

In 2008, Dr. Mertens developed SurvivorLink, an electronic information network for Georgia to support pediatric cancer survivor care. SurvivorLink offers patients and their families access to information regarding health risks associated with the particular type of cancer they had and the treatment they received, and includes recommendations on care going forward. She is hopeful that a research component of SurvivorLink will produce population-based data, which will give researchers more insight into the health issues survivors face.

The Atlanta Business Chronicle “…searched for those health-care professionals who have gone above and beyond to help people,” and received nearly 100 nominations of the best and the brightest in Atlanta’s world-class health care community.

CURE Childhood Cancer warmly congratulates Dr. Ann Mertens for being named a 2009 Health-Care Hero.


May 6th, 2009

Nurses’ Notes: A Nurse Manager's Philosophy on Nursing

“Courtney, room 358 has called out for you,” the secretary advises. Although I know the call is coming, my heart catches in my throat. Slowly I make my way down the hall. I pause at the door knowing what I will see, but not knowing what to expect. It will indeed change my outlook on nursing forever.

Fresh out of nursing school, I came to the Aflac Cancer Center bright eyed and eager to learn. Although I question if this place will be right for me, and if nursing is the right profession at all, I feel confident that I will do well. After all, I feel like I have a good grasp on what nursing is all about. I have taken Pharmacology, Medical-Surgical, and similar courses. I have studied the theorists and philosophers from my field, and completed all my clinical rotations with ease. However, because the cancer unit is such a specialized field, I do feel a bit uneasy about the amount of information I will have to learn.

I quickly realize the amount of information that I must know is vastly overwhelming. I feel I will not be able to learn all this material over the course of my three month orientation. However, according to my preceptors, I adapt easily and have a good bedside manner. I am able to perform all tasks quickly and efficiently such as assessments, vital signs, interventions, and charting. I talk with the patients about their care, and I am kind, yet professional. I remember what I learned in nursing school, and do not want to develop the relationships further, for I might blur the boundary lines we must set in our profession. I work hard to complete all my tasks, trying not to leave anything for the oncoming nurse. To be a nurse means to address the patient’s healthcare needs. Some examples of these needs are giving the patient medications, assisting in activities of daily living, and completing dressing changes. I believe that being a nurse means that we are to assist patients to reach the highest level of wellness of which they are capable. This is what nursing is all about, right?

I slowly open the door, and see my sweet little Ali* lying in the bed. The room is dark, cold, and quiet, with the only sound being the IV fluids running through a pump. Sitting beside Ali is her father, Joe*, holding her hand and softly rubbing her arm. Memories of Ali quickly rush through my head. I remember the first time I saw her walking to the floor, the stubborn way she would not speak to me for the first week in the hospital, the way she rode her bicycle around the nurse’s station for exercise, how she loved to watch the movie Shrek, and how she loved to listen to music. She would make her dad and me sing “Somewhere Over The Rainbow” to her over and again. I remember all her completed art projects I have all over my refrigerator, how much she loves her daddy, her sweet laugh, and how much she would say “I love you”. I quietly sit on the other side of the bed and grab her other hand. She opens her eyes, and I smile. Her breathing is erratic and noisy as I say hello. She says hi and closes her eyes. Sitting with her, I realize that thirty minutes seems like an eternity. She opens her eyes again, and in her sweet voice asks her dad, “Who will take care of you daddy?” Her father softly replies, “You will baby, from heaven.” The four year old, content with that explanation, softly says “sing.”

It is at that moment that I have put it all together. My philosophy on nursing should not and could not just be to provide my patients with the highest level of wellness of which they are capable, but nursing is really so much more. Nursing is being able to put science and practice together with meeting a person’s personal needs. Nursing is not only about the science or completing activities and tasks, but it is about developing relationships with your patients in order to meet their needs. It is about listening and communicating with them on a level that makes a difference. It is being a teacher, an advocate, a confidant, and someone they completely trust. Nursing is about putting all the above together to guide your practice.

Ali’s father looks at me with his eyes filled with tears, and tries to sing. He opens his mouth, but no words will come out. I grab his hand and I begin to sing instead. A familiar tune fills the room. I know to this day that I made a difference in the life of this family. Joe has told me many times that out of all the nurses his daughter had, I demonstrated to him what nursing should truly look like. Do you think that Joe remembers the dressing change I completed every week, or the bed I changed daily, the Nasogastric tube I put down, or the chemotherapy I gave? Maybe, but what was most significant to him was that I knew him and Ali so well. Someone else may not have known at that most important moment, when there could be no words, what the real need had been. In the moment of her death, when he was unable, I softly began to sing “Somewhere Over The Rainbow.” To Joe, that made all the difference in the world.
*Names have been changed.


  •  

    Screen Shot 2013-05-06 at 4.25.29 PM

    Nacho Average Taco

    For May and June, order the CURE taco at Red Pepper Taqueria and $1 will be donated to CURE. The taco features chargrilled calamari, crispy eggplant, tomato, onion, sorrel, and ginger pico.


  • Screen Shot 2013-05-14 at 2.49.59 PM

    Home by Dark - Singer/Songwriter Show

    Saturday June 1st at 8PM at Chukkar Farm in Alpharetta, GA. A portion of the proceeds will benefit CURE. Bring your own chairs and picnic for this beautiful outdoor music event. Click here to learn more.