Cure Childhood Cancer


October 8th, 2015

Flowery Branch Volleyball Team Goes GOLD for CURE


On September 1st, the Flowery Branch High School Volleyball Team kicked off National Childhood Cancer Awareness Month by hosting a special “Volley for a CURE” match. All proceeds from concession sales as well as T-shirt sales benefited CURE. The Falcons took advantage of their amazing student fan base and community to GO GOLD for childhood cancer research!

In addition to the T-shirt and concession donations, the team held a car wash and created a Gofundme page so supporters could give back in multiple ways. Altogether, they raised $3,011 for CURE Childhood Cancer! Also during Volley for CURE, the mother of CURE’s Kid Liam, Mrs. Howell, spoke to the crowd about pediatric cancer and her son’s recovery.

The FBHS volleyball team’s connection with CURE first began when a family member of a player was diagnosed with childhood cancer. Because CURE was a significant part of the recovery process, the Flowery Branch Volleyball Team decided to support CURE through fundraisers. One year after the first charity event for CURE, one of their own players, Kristen Wells, was diagnosed with Ewing Sarcoma. After almost a year of chemo, radiation, long hospitals stays and care, Kristin lost her battle with cancer. As unfortunate at this experience was, her battle with cancer has strengthened the bond between Flowery Branch High School and CURE. We are forever grateful for their ongoing support!


It’s amazing how far a simple idea can go when it’s for a great cause! Thanks to all the dedicated sports teams that went GOLD this September to fight for the futures of children with cancer.

October 7th, 2015

26th Annual CURE Golf Classic Surpasses Tournament Goal


The 26th Annual Golf Classic to benefit CURE Childhood Cancer has been put to bed for another year! Thanks to all of you, approximately $65,000 was raised for CURE Childhood Cancer! That’s an increase from last year because of YOUR commitment and support of CURE’s mission statement:

CURE Childhood Cancer is dedicated to conquering childhood cancer through funding targeted research and through support of patients and their families.

Friday, September 25, 2015 was wetter than we’d hoped but the rain didn’t keep anyone away and didn’t dampen our spirits! A little drizzle early, but that gave way to overcast and cool, perfect golfing weather! 162 golfers- Wow!

Big thanks to the volunteers who came out to serve. Jan and Roy Vreeland, Amelia Hart, Eva McClure, Kristi Massey, Fran Rosser, Lori Martin, Joe Reynolds, Devon Karnitz all assisted with check-in, raffle drawings, beverage cart and anywhere else they were needed. You folks made everything run smoothly- well done!

Ken Cole-Southern Tire Mart-picked up the Chick-Fil-A biscuits (donated by Tom Balsamides at the Scenic Hwy location) at 6 AM the morning of
the tournament. Quik Trip provided delicious pastries, snacks, water and sports drinks.


Big THANKS to those who came out on Thursday evening to help setup and stuff the goody bags (donated by ProCoaters) – Bruce Sweeney (Cintas- provided volunteer shirts and raffle items), Steve Upchurch and Devon Karnitz (CS Truck & Trailer), Joe Reynolds and Dick and Nancy Schulz.

The Oaks staff, golf pro Gary Miller, owners Dick and Nancy Schulz make it so easy to host the tournament at their club. Everything we need is provided with a smile.

Raffle and goody bag items donated by:
CS Truck & Trailer, BB&T Stephens, Coummunity & Southern Bank, Niko’s Wine Corner, Bridgestone, Cintas, CustomWerks, ProCoaters, Southern Tire Mart, Barron’s Fine Jewelry – Thanks for stepping up!

Mark your calendar for Friday, September 30, 2016th for the 27th Annual Golf Classic at the Oaks Course! 

Thank you 2015 Corporate Sponsors!

BB&T Stephens & Co. Insurance Services/OccuSure

CS Truck & Trailer

Brothers Renovation

Volume Transportation


MHC Kenworth Conyers

ACS of Georgia/PPG Industries

QuikTrip Corporation

TNT Parts Inc.

Richard Kerns Truck Parts

Georgia Motor Trucking Association


Merrill Lynch/Bank of America

ProCoaters Inc.

Southeast Trailer Mart

Community & Southern Bank


Pilot Flying J

October 5th, 2015

NARI Atlanta Chapter Hosts Its 6th Annual Tour of Remodeled Homes to Benefit CURE

NARI 2015 Danneman Design II smaller

On Saturday, October 24, 2015 from 10 am- 4 pm, the Atlanta Chapter of the National Association of Remodeling Industry will host its 6th Annual Atlanta Tour of Remodeled Homes. We are proud to announce that once again, CURE Childhood Cancer will be the benefiting charity of this fabulous home tour!

This is the perfect event for anyone interested in touring various renovation projects throughout Atlanta’s northern suburbs while supporting childhood cancer research. Attendees will get the chance to see eight renovation products completed around the Highway 400 corridor by some of Atlanta’s top remodeling companies. Contractors and NARI Members will be at the homes during the tour to answer questions about the wonderful redesigns.

Tickets to the self-guided tour are $20, and a portion of ticket proceeds will benefit CURE. Guests may visit the homes in any order by following this map, also located on the home tour website. The self-guided tour will be held rain or shine. Preview previous homes that have been beautifully transformed by NARI members here

NARI 2015 Harbour Towne Porch

October 2nd, 2015

BREAKING NEWS! CURE Childhood Cancer Named to Daily Parent’s List of Top 5 Pediatric Cancer Charities that Deserve Donations



CURE Childhood Cancer ranked on the prestigious list of the top 5 pediatric cancer charities that deserve donations by Daily Parent, a publication of Fexy Media, which has over 10 million monthly unique visitors across their brand portfolio.

Applauded for lean operations and a focus on mission-related spending, Daily Parent notes the leadership of CURE Executive Director Kristin Connor “who is committed to running the organization in the most responsible way possible to have the greatest impact possible.” Approximately 87% of CURE’s funding goes directly to research, fellowship programs and patient and family support programs aimed at solving critical and urgent needs of childhood cancer patients and families. For the 2015-2016 fiscal year, CURE has awarded $2.5 million to 19 specific pediatric cancer research projects at six major cancer institutions.

Supported by committed corporations, local businesses, caring individuals, groups, schools and a volunteer workforce of more than 500, CURE Childhood Cancer is a mission-driven organization, and donors can be confident that their money is being put towards finding new treatments and cures for pediatric cancer, as well as the many programs which support patients and their families as they struggle through this healthcare crisis.

CURE is proud to be named to the prestigious Daily Parent “5 Pediatric Cancer Charities that Deserve Your Money Now” list. This accolade affirms CURE’s top rating by Charity Navigator, America’s largest independent charity evaluator, which has consecutively honored CURE as a 4-star charity since 2007. Read the full Daily Parent list and article here:

September 30th, 2015

CURE Childhood Cancer Honors MJ

September is National Childhood Cancer Awareness Month. Join us today as CURE Childhood Cancer honors MJ. Join our fight as CURE’s Kids Conquer Cancer One Day at a Time! Donate to MJ’s fundraising page.


Our son, MJ is an intelligent, funny, and warm hearted 6 year old. He absolutely loves sports, mainly football and baseball, wrestling and above all he loves school. As a kindergartner, he was awarded for being the top reader in his class, reading at a 2nd grade level. He loved playing baseball (although I, as his mom, was very scared of him getting hurt).

In March 2015, after one of his baseball games, he started complaining that his wrists were hurting. We gave him pain medication and he fell fast asleep. We sent him to school the following day but the pain was still there. We decided to take him to the ER and many tests and bloodwork were done. We followed up with his pediatrician the day after and he was admitted to the hospital for further testing. He was given heavy pain and anti-inflammatory medication and was released with no answers.

Unfortunately, the pain came back stronger and within the time span of a month, this pain traveled to his ankles, elbows and fingers. The pain and swelling was so bad, it left him unable to walk or even move. Finally, we got an answer to this horrific pain. He was diagnosed with Juvenile Rheumatoid Arthritis and we were sent to the Children’s hospital in Dallas, TX.

We arrived to Dallas on April 10, 2015, and after more testing there, we were advised that what was thought to be Arthritis was actually Leukemia. Our world and his childhood were turned upside down. We came back to our hometown on April 13, 2015, and he was immediately admitted and started treatment.

As of now, MJ is currently in remission but is still undergoing aggressive chemo treatments, lumbar punctures and bone marrows. His strength and spirit is out of this world amazing! He is back in school and is praying for the day he can go back to playing sports again. He is truly our CHAMP!!!

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September 30th, 2015

CURE Childhood Cancer Honors Silas

September is National Childhood Cancer Awareness Month. Join us today as CURE Childhood Cancer honors Silas. Join our fight as CURE’s Kids Conquer Cancer One Day at a Time! Donate to Silas’s fundraising page.


Silas Nathanael Edenfield was born on June 4th 2008. He was our 4th son. He was a little ham and was always saying silly things and making people laugh. He had a contagious smile and big beautiful eyes. He loved his brothers and his momma and daddy, but most of all he loved Jesus.

At just 3 ½ years old his diagnosis was Stage IV Hepatoblastoma, liver cancer. Over the next 15 months he had half a dozen surgeries, two of them major. He had over 20 rounds of chemotherapy, blood tests too numerous to count, CT scans, x-rays, MRI’s, hospital stays, natural treatments, and yet, there was no cure. The beast shrugged off everything we threw at it. We prayed so hard, we prayed that the Lord would heal Silas in His way and in His time.

Silas was a brave boy. He was smart, smarter than most little boys his age. He was silly and sweet, he made people laugh, and everyone loved him. One day as I lay next to him on the bed he said to me, “Momma, tell everyone to paint their fingernails gold for all of the kids with childhood cancer.” I posted this on his facebook page and within a day hundreds of people were posting pictures of their gold fingernails.

I showed some to him and said, “Look what all of these people are doing for you!” He got upset and said, “No! Not for me! For the other children that have childhood cancer! I won’t have cancer soon.” He knew that soon, he would be in Heaven and would no longer be suffering from this terrible disease.

On May 25th 2013, just 10 days before his 5th birthday, Silas went home to Heaven. He is no longer suffering, no longer in pain. Yet I keep saying to myself, “He should be here.” When we should have been planning a birthday party, we were planning a funeral. He should be learning to read and ride a bicycle. He should be playing with his brothers and making everyone laugh, but he is not here.

There are answers out there. There is a reason kids get cancer, there are cures for all types of cancer. We need awareness, support, funding, and research to get to where we can find those answers and those cures, so that other children don’t have to leave us too soon.

We miss you Silas. 

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September 30th, 2015

CURE Childhood Cancer Honors Tanner

September is National Childhood Cancer Awareness Month. Join us today as CURE Childhood Cancer honors Tanner. Join our fight as CURE’s Kids Conquer Cancer One Day at a Time! Donate to Tanner’s fundraising page.


Tanner was diagnosed with Burkitt’s lymphoma when he was 7 years old!

He had just started second grade, and two weeks into the school year, he had to leave school and spend months in the hospital for chemo and radiation. The closest children’s hospital was almost 2 hours away, which meant being away from his brothers and sister and the rest of our family.

Tanner was cancer free after 8 months of treatment and is still cancer free 8 years later! Today Tanner is a healthy active 15 year old Sophomore in high school. 

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September 30th, 2015

CURE Childhood Cancer Honors Bowen

September is National Childhood Cancer Awareness Month. Join us today as CURE Childhood Cancer honors Bowen. Join our fight as CURE’s Kids Conquer Cancer One Day at a Time! Donate to Bowen’s fundraising page.


Bowen Alexander Story. Bo for short. On September 21, 2007, this incredible little boy burst onto the scene. Bo was presented a teddy bear by his Mepaw on the day he was born. The combined words he used stuck, and from then on, Bo was known as “BoBear.”

When Bo reached twenty-three months of age, he began his battle with Medulloblastoma, a highly malignant brain cancer. He developed posterior fossa syndrome that left him with the left side of his face paralyzed, his eyes crossed, and right side weakness of his body. Bo could not see far, so he focused on his favorite DVD case, “The Incredibles.” This helped his eyes repair themselves. It was during this time his father gave him his most fitting nickname: “Mr. Incredible.”

Bo would live up to this name and surpass it as he endured three major brain surgeries, three high-dose chemotherapy treatments, three stem-cell transplants and nine months of maintenance chemo. He did all of this as he dealt with posterior fossa syndrome and autism. During Bo’s two year cancer battle, Bo showed everyone strength and faith are some of the most basic of life’s wonders. Bo, with the strength and endurance he showed, became known for his motto, “Be strong! Be BO strong!”

In August 15, 2011, a month shy of his fourth birthday, Bo received his well-earned angel wings. Bo’s cancer had spread to his liver. Bo took his last breath surrounded by those who loved him most. Bo taught many people that hope, faith, and love are essential during his battle against cancer. 

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September 30th, 2015

CURE Childhood Cancer Honors Caps for CURE

September is National Childhood Cancer Awareness Month. Join us today as CURE Childhood Cancer honors Caps for CURE. Join our fight as CURE’s Kids Conquer Cancer One Day at a Time! Donate to the Caps for CURE fundraising page.


2015 marks the 6th year that many schools in Henry County are participating in the Caps for CURE effort to raise much needed funding for childhood cancer research! Sarah Barr and her family got the idea to start this effort after a local school held a cap day to raise money for them while Sarah was on treatment in 2009. When schools host a Caps for CURE day, students can wear a cap to school if they bring a dollar for the cause.

With little childhood cancer funding from the government and large cancer organizations, the task of raising enough funds for research is a huge challenge. When schools choose to participate in this effort, they give their kids a chance to help other kids! Imagine how much can be raised in a day from just $1 per student! “Alone we can do so little; together we can do so much.” (Helen Keller) We are grateful to all participating schools for joining in the war against childhood cancer! 

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September 29th, 2015

CURE Childhood Cancer Honors Burke

September is National Childhood Cancer Awareness Month. Join us today as CURE Childhood Cancer honors Burke. Join our fight as CURE’s Kids Conquer Cancer One Day at a Time! Donate to Burke’s fundraising page.


On February 4, 2015, we received news from the results of an MRI that no parent should ever hear: “Burke has metastatic disease in multiple areas in his head, go to the ER now and an oncology doctor will be waiting on you.”

Later that day we discovered Burke had Neuroblastoma, a word we had never heard of until then. Now, we can tell you more about Neuroblastoma than you would ever want to know. Burke’s symptoms started in mid/late November, a few weeks after our third child was born. Daily fevers, night sweats, stiff neck at night, leg pain and swelling of the right eye lid. The first admission to the ER was early December. After three days inpatient with symptoms subsiding, he was released with “perio-orbital cellulitis.” Then not even a week later, symptoms started back again. This time, his left eye lid started to swell. On Christmas morning, we went back to the ER. After a week stay and a negative “flow test” for Leukemia, Burke was diagnosed with Systemic Juvenile Idiopathic Arthritis. Several weeks later, his right eye started to wander. After seeing and being referred to multiple eye doctors, we finally fell in to the right hands to see Dr. Phoebe Lenhart at Emory Eye Center who ordered the MRI.

Burke has gone through 5 rounds of various chemos, surgery in New York to remove the main tumor, two MIBG Therapies and multiple CTs, MRIs, MIBG scans, xrays, blood transfusions and pretty much weekly visits at the hospital. All of this and we are only a little past half way through the standard “protocol.”

Fifty percent of kids that have Neuroblastoma were misdiagnosed. Only 700 kids are diagnosed with NB in the US every year. Burke is 1 in 100,000. Only 4% of the funds from the National Cancer Institute go to pediatric cancer and almost nothing of that goes to research. This obviously needs to change, but in the meantime everyone can help by donating to non-profits like CURE that fund pediatric cancer research. There are both short term and long term side effects of the current treatment plans from the toxicity of the medicines. The current survival statistics are also unacceptable.

Life can change in an instant. Burke has been unbelievable throughout this entire process and continues to amaze us and every doctor. Going to the hospital for him is basically like going to school for most kids… he is used to it. He continues to fight this nasty disease and we plan to win. He has major scans upcoming in mid-October which will provide us direction on continuing with front line protocol or to have to take a turn down another path to try other treatments to get him to remission, then back to protocol. Burke is our hero, our champion and our little ninja… he will win the battle and the war, but he and other kids need help along the way to raise awareness and to fund research for childhood cancer. 

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    Tom Glavine, Hall of Fame Pitcher and member of the CURE Advisory Board, was interviewed by Health Talk’s Dr. Manny, regarding Childhood Cancer Awareness Month and CURE’s mission to find a cure for childhood cancer in our lifetime. Click here to watch the interview.

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    Your donation to CURE Childhood Cancer directly supports CURE’s $2.5 million commitment to research aimed at finding cures for the 20% of children who do not survive their battle with cancer. In addition, it supports CURE’s Patient & Family programs, meeting the critical and urgent needs of our families.