Cure Childhood Cancer

CURE Blog


February 11th, 2016

Parenting Through Illness

20057-868On October 17, 2015 CURE Childhood Cancer hosted a workshop for parents of children with cancer entitled “Parenting Through Illness.” Workshops like the one recently offered are extensions of CURE’s Partners in Caring program, which aims to address the psychosocial needs of families navigating the world of childhood cancer. This particular workshop focused on approaches to parenting a child with cancer during cancer treatment.

Led by Dr. Tiffany McNary of Georgia State University and Ginny Thompson from the Aflac Cancer and Blood Disorders Center at Children’s Healthcare of Atlanta, parents learned the TEEL Method of interacting with their children. Using the TEEL Method technique Dr. McNary and Ginny coached parents to Track, Empathize, Encourage, and Limit-Set with their child. “The workshop provided skill sets to help with the day to day challenges that are associated with parenting a child with cancer,” said one parent. “I am so grateful to be a part of the class.”

Along with learning practical tools for parenting through illness, parents also had the opportunity to connect with other parents of children with cancer.  Through shared experiences and shared feelings, parents found a community of support. “It was a blessing to be able to share with other parents going through the same journey,” shared one mom. Another found comfort in “just being around other parents going through the same struggle.”

To close the workshop, parents were asked to write themselves an encouraging note on a postcard which will be mailed at a later date. Parents wrote words of encouragement to keep going, encouragement of a job well done, encouragement to see themselves and their efforts as enough.

For information about future workshops or about CURE’s Partners in Caring counseling program, please contact Karen McCarthy at karen@curechildhoodcancer.org.


February 11th, 2016

CURE Madness – Join the Tournament, Join the Fight!

cure_madness_3Like watching basketball?  Like supporting kids with cancer? Like winning things? CURE Madness is the place for you this March Madness season!

About CURE Madness:

CURE Madness is your way to give back to CURE Childhood Cancer while having fun competing in our March Madness bracket competition! Each participant will have the chance to win a $100 VISA gift card chosen randomly between all participants. AND the winner of the overall tournament will win a $500 VISA gift card!

Create a friendly competition amongst your friends, family and co-workers by inviting them to participate in the bracket. You can play with confidence knowing you are supporting kids with cancer AND having fun!

Do you have what it takes to win it all? Enter to play now!

How it Works:            

  • Make a minimum donation of $25 to CURE Childhood Cancer to gain access to the online bracket system. You will receive a link to the bracket in the confirmation email. CLICK HERE to make your donation.
  • Sign up for the CURE Madness bracket from the link provided via email.
  • Select your bracket picks between March 13th at 6:00 pm EST and March 17th at 12:15 pm EST (please note, brackets cannot be created until March 13th)

Grand Prize:

The winner of the overall pool will win $500. All participants have a chance to win a $100 VISA gift card no matter the points standing.

Prizes awarded April 8th 2016.

Official Rules:

Only one entry per person.

This is a friendly competition aimed to raise donations and awareness for CURE Childhood Cancer.

CURE Childhood Cancer has no affiliation with the NCAA.

Scoring Rules:

Round Game Dates Points
First Four March 15 & 16 Play in games are not included or scored
Second Round March 17 & 18 1 point
Third Round March 19 & 20 2 points
Sweet 16 March 24 & 25 4 points
Elite 8 March 26 & 27 8 points
Final Four April 2 16 points
Championship April 4 32 points
Seed Point Bonus No Seed Point Bonus

Need more information?

Contact Kate Myers at kate@curechildhoodcancer.org

About CURE

Founded in 1975, Atlanta, GA-based CURE Childhood Cancer is a national non-profit dedicated to conquering childhood cancer through funding targeted research and through supporting patients and their families. With cancer as the second leading cause of death in children and incidence rates rising, CURE has become a leader in advancing research to improve outcomes for affected children, investing at least $2.5 million annually in promising studies. Through innovative programs, CURE provides crisis oriented support to affected families, addressing their critical and urgent needs. For more information visit www.curechildhoodcancer.org and Twitter @curechildcancer.


February 10th, 2016

CURE Partner 11Alive Invites You to Join their Insight Panel

11AliveLogo06As a CURE supporter and partner, 11Alive invites you to join its exclusive, online Customer Insight Panel – a group of viewers selected to participate in brief, confidential online surveys (on average one or two per month).

What’s in it for you?
This is a great opportunity to become a member of an exclusive group of viewers that will learn more about what 11Alive is doing to enhance its newscasts and engagement with viewers to bring you better news.

What will you have to do?
​Each month 11Alive will email you one or two surveys that take only 5-15 minutes to complete. All they ask is that you respond as promptly and honestly as possible.

Click here to start the first survey


February 10th, 2016

CURE Welcomes Dr. Douglas Graham as the new Director of the Aflac Cancer and Blood Disorders Center at Children’s Healthcare of Atlanta

We are very excited to welcome Dr. Douglas Graham to the Aflac Cancer and Blood Disorders Center of Children’s Healthcare of Atlanta, and introduce him to the CURE community. We enjoy a strong partnership with the Aflac Cancer Center, providing funding for promising research conducted by its researchers, annual funding of two fellows (soon to be three!), and serving patients and families – often within its four walls – cared for its the skilled doctors and nurses. We are proud of and grateful for this partnership. In the letter below, Dr. Graham shares insight and his vision for the Aflac Cancer Center. We look forward to continue to work in partnership for the good of childhood cancer patients and their families and all who care for them.

Screen Shot 2016-02-10 at 11.34.31 AMAs the recently appointed Director of the Aflac Cancer and Blood Disorders Center at Children’s Healthcare of Atlanta, it is a privilege to become a part of the CURE Childhood Cancer family. Thank you for your remarkable support which has enabled the Aflac Cancer Center to become one of the premier centers in the country for children to receive every level of cancer care.  Your financial support has been critical to our research to develop better cancer treatments, our fellowship program to train the next generation of pediatric cancer doctors and for our clinical care, which includes family emergency funds.

Kristin Connor, CURE’s Executive Director, graciously provided me with this opportunity to give you a little more insight into care and research offered by the Aflac Cancer Center, and a few exciting programs that lie ahead.

The Aflac Cancer Center has made enormous strides with support such as CURE’s, and our advances have been recognized nationally. Last year we were ranked by US News and World Report as the number one program in the state of Georgia to treat pediatric cancer patients and the number nine program in the entire country!  We now have 80 pediatric specialists who are hematology/oncology/BMT faculty, and we are one of the five largest pediatric oncology programs in the nation. This is significant because we encounter every type of childhood cancer, and we are able to provide the most sophisticated care for the sickest of children with cancer, while simultaneously being a top-rated research center.  We are a major referral center for the country, having cared for children from 43 states.

We participate nationally in the Children’s Oncology Group (COG), which is a collaborative group of cancer doctors across the country who take care of more than 90% of all children with cancer in the US. Within COG, we have been selected as one of only 21 sites (out of 223 COG member institutions) to be given access to the newest of cancer drugs in early phase clinical trials through the COG Phase I Consortium. Our goal is to continue to offer new therapies through COG as well as to move new treatment ideas into the clinic developed by our cancer physicians and researchers.  Some new research discoveries both in gene therapy and in new cancer drug development made by our faculty are the basis for new clinical trials which are planned to be launched in the coming year in brain tumors and in leukemia.

Two examples of innovative therapies we have initiated at the Aflac Cancer Center are our MIBG program for neuroblastoma and our CAR-T immunotherapy program for relapsed childhood leukemia. We are one of the few places in the country to offer MIBG therapy, and the COG is including the Aflac Cancer Center as one of the treatment sites for an upcoming MIBG clinical trial.  A new MIBG treatment room is being planned to accommodate this anticipated increase in patient referrals.

The CAR-T therapy for relapsed leukemia involves harnessing one’s own immune system to combat cancer.  In this type of therapy, immune cells (T cells) are taken from the leukemia patient and modified in cell culture to be able to seek out and kill leukemia cells. The Aflac Cancer Center is one of only a handful of centers in the country to be selected as a treatment site. This therapy is successful in offering hope to children with resistant leukemia who have no other treatment options resulting in cures not previously possible.

Thank you, again, for your remarkable support of cutting edge research to cure more kids, and for your dedication to provide family centered care for kids with cancer. I look forward to continuing our strong partnership so that we can provide the best care possible for children with cancer, both today and tomorrow.


February 9th, 2016

CURE Welcomes Newest Board Member, Janet Street

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Talent, dedication and a passion for serving others are just a few qualities of CURE Childhood Cancer Board Members. Their incredible leadership is unmatched and their unique perspectives and expertise are valuable in making key decisions that will not only benefit CURE as an organization, but impact the state of childhood cancer. We are blessed to have the Board as our backbone and our driving force in the battle against childhood cancer. Carrying on the tradition, CURE is thrilled to welcome its newest board member, Janet Street.

Janet knows firsthand the challenges pediatric cancer brings to families, parents and loved ones, having lost her son Cam to cancer in 2009. She has participated in CURE’s Annual Weekend of Hope and Healing by sharing her story to grieving families in need of comfort during the journey to healing. Also a 6th grade teacher at The Schenck School in Atlanta, GA, Janet regularly touches and improves the lives of so many others. Janet shares her personal experiences with CURE and why she has joined the fight for life-saving research below:

“Our family grew to love CURE when our son, Cam, went through his treatments for Ewing’s Sarcoma. Of course, we loved all the meals and other acts of kindness, but CURE really got our attention after Cam became gravely ill after experiencing a recurrence. He was given a trial drug which had been funded by CURE, and overnight, after one infusion and without a single side effect, Cam was back to doing cannonballs in the pool. Every tumor in his lungs was eradicated, and he began to live again. We were told from the start that this drug was in early-stage development, and the benefits would last only three months. We couldn’t help contemplating what might have been if this trial drug had been available to him sooner. It made us aware of the importance of cutting-edge research and gave us hope that other families might not have to endure the horrific pain of losing of a child. We will always be grateful to CURE for all they continue to do to help so many children win this war.”

Please join us in welcoming Janet to the CURE family!


February 8th, 2016

“Kicking Childhood Cancer” & Will to Win Present the 5th Annual Will to Win 5K/1K

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We are pleased to announce that “Kicking Childhood Cancer” has partnered with Will to Win to present the 5th Annual “Will to Win 5K/1K” at Fowler Park on March 19, 2016! The course at Fowler Park is a Certified Peachtree Road Race Qualifier. The 5K race will begin at 8:30 am with the 1K to follow at 9:30 am. Proceeds from the race will benefit the Will Abernathy Memorial Believe Fund of CURE Childhood Cancer, which provides emergency family grants as well as further research to eliminate childhood cancer.

Pre-registration pricing is $25 for adults and $15 for children ages 10 and under. Early registration, through March 18th, will also include a cotton race T-Shirt. T-Shirts are available on a first come first serve basis after March 18th. Should you chose to register the day of the race, registration will begin at 7:30am. The race day registration fee for the 5K is $30 and $15 for the 1K.

Everyone who participates is a true champion! There will be awards given for Overalls, Master, ages 10 and under, 11-14, 15-19, 20-29, 30-39, 40-49, 50-59 and 60+ year old participants. All 1K finishers will receive a medal. Bring your “will to win” and get ready to race for a cause on March 19th. We’ll see you there! CLICK HERE to learn more or to register online.

 

 

 

 

 

 

 


February 5th, 2016

#iHeartCURE Our Hearts Beat for Children With Cancer

 

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We all have heard of or participated in the Ice Bucket Challenge, bringing awareness to Lou Gehrig’s Disease, or ALS, to millions around the world. As we begin February- the season of love – we ask that you join CURE in showing the world why our hearts beat GOLD!

As you may know, GOLD is the color of childhood cancer awareness. By posting a GOLD heart on social media with the sentence “My heart beats for children with cancer. #‎iHeartCURE‬,” we express our love and support for the little warriors battling this disease and encourage others to join along in spreading the word- and love!

As you post your pictures, feel free to include the following instructions for those who may be new to our cause:

  1. Take a picture with a gold heart.
  2. Post on social media with “My heart beats for children with cancer. #iHeartCURE”

Be creative as you like with your GOLD hearts or use this cut-out to get started. bit.ly/1NOEinD

We can’t wait to see your creations!


January 29th, 2016

Congratulations to CURE Executive Director Kristin Connor!

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Join us in congratulating CURE Executive Director Kristin Connor, who was just named a 2016 Womenetics POW! Award recipient. Kristin has received this distinguished award for her dedication, leadership and professional achievements and is among the ranks of Georgia’s most influential women. Under Kristin’s passionate and purposeful leadership, our organization has grown immensely. We are so proud of her accomplishment. Click here to learn more about the Womenetics POW! Award and view the complete list of recipients. 


January 20th, 2016

Van Adams Jewelers of Snellville Donates 7K to Fight Childhood Cancer

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On December 3-5, 2015, Van Adams Jewelers, a well-established jewelry store in Snellville, GA, donated 5% of sales made during this time to CURE. The percentage night came at the perfect time as holiday shoppers purchased diamonds, treasured gifts and elegant watches for loved ones.

The mission of Van Adams Jewelers has always been a tradition of trust, high ethical standards, knowledge of jewelry products and services, fair pricing and value to its customers. We are so grateful that Van Adams has extended this hospitality and care to the CURE Childhood Cancer community. We are proud to announce that this first-time event raised $7,160 for childhood cancer research! 

For special highlights of the event, read this feature article published in the Gwinnett Daily Post. Make sure to visit our Calendar of Events throughout the year to stay up to date on next year’s event and other percentage nights you and your family can take part in to help our cause.


January 20th, 2016

Sam Robb Brewfest 2016

Pete and Melanie Delin have been active volunteers for CURE Childhood Cancer for more than seven years. Friend and neighbor, Debbie MacDonald, has also been involved through The Sam Robb Fund. The Delins and MacDonalds both have boys who played travel high school baseball with Sam prior to his diagnosis with cancer. Sam and all the children they met volunteering for CURE inspired them to want to do more. So the Delins and MacDonalds decided to launch a new event to benefit The Sam Robb Fund.

They wanted to do something different – and it seemed as though just about everything had been done – golf and tennis tournaments, dinners, dances, 5K and 10K runs, wine tastings, etc. They had an idea! A Brewfest! They got to work.

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After attending an event at SweetWater Brewery, the Delins approached Annamarie Robb, Sam’s mother, with their vision. They would hold a Brewfest at SweetWather Brewery to benefit the Sam Robb Fund. She loved the idea, and the rest is history!

The Sam Robb Brewfest sold out its first two years and has raised more than $34,000.  The third annual Sam Robb Brewfest is March 5th, from 7-10 pm, at SweetWater Brewery, and the Delins and MacDonalds hope to raise $25,000!

If you’d like to join us for a great time, featuring award winning SweetWater beer, wine, brewery tours, Jim n’ Nicks BBQ, silent auction, live music, and more, click here to purchase tickets. 

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    ANNUAL REPORT

    CURE’s latest annual report has arrived. Click here to read the full report of our year’s progress, including inspirational stories of some of the families CURE has supported.

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    SISTERS ON A JOURNEY

    Purchase a table now for the special Sisters on a Journey dinner, program and auction, benefiting Catie’s Fund of CURE Childhood Cancer. 2016 will host three dinners in Savannah (2/20), Effingham (3/19) and Statesboro (4/16). To purchase tickets, contact Mandy Garola at mandy@curechildhoodcancer.org.