Cure Childhood Cancer

CURE Blog


April 17th, 2014

Thank You 2014 Lauren’s Run Sponsors

It is important to CURE, and the many families and volunteers who support us, that this year’s Lauren’s Run be bigger and better than before. However without our 2014 Lauren’s Run sponsors, we would have trouble making this goal a reality. From food and prize donations to publicity and volunteer support, our sponsors have put CURE first in the midst of their crazy schedules to help us continue living out our overall mission: to find a cure for childhood cancers in our lifetime. As our sponsors continue to help CURE, we ask that you also support these important businesses in your everyday lives!

Register for the 20th Annual Lauren’s Run or join a fundraising team here: http://bit.ly/20thLaurensRun

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April 15th, 2014

Vote for CURE and We Could Win $10,000!

534c373cb5a9b-EntryHeaderAs a special way to give back to Atlanta’s top 11 charitable organizations, 11Alive and Chicken of the Sea have teamed up for the 11Alive Celebrate Kindness Contest, which awards $20,000 to non-profits that are making a difference in the community. We’re very honored that CURE has made this year’s list—However, the amount each charity will win is entirely up to YOU!

Starting Tuesday, April 15th until Wednesday, April 23rd, vote for CURE once per day. The Grand Prize Winner with the most votes will win $10,000! The remaining 10 charities will each receive $1,000 for being entered into the contest. All votes will need to be in by 4:59 EST on Wednesday, April 23rd.

The good thing is, this act of kindness requires no money at all! It’s simple—take just one second out of the next nine days to vote for CURE!

Set a reminder to vote during your morning routine, vote before your workday commutes, or even after your evening stroll—whichever way is most convenient for you. You can help spread the word by sharing the contest link (http://woobox.com/5mnsho) on your Facebook page or by email to your family, friends and coworkers. It may seem like just one click of the mouse, but in the grand scheme of things you are helping us save thousands of lives! Click here to cast your vote for CURE.


April 14th, 2014

The Inaugural Sam Robb Brewfest Was a Success!

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The Sam Robb Fund held its first brewfest at SweetWater Brewing Company on March 29th to help fund training for young pediatric oncologists at the Emory University School of Medicine and support families through CURE’s Open Arms program. We have great news—although no surprise to us because of our amazing support system—the inaugural Sam Robb Brewfest was a great success! Approximately 350 people attended this sold out event, and over $10,000 was raised in support of our Pediatric Research Fellow and Open Arms program!

The night was filled with music, food, drinks, an auction, and wonderful conversation.

A special thanks to our individual sponsors Pete & Melanie Delin, The Wilkie Family, The Rutledge Family, Lou Brown Jewell and the Ascari Family.

And last but certainly not least, thank you to our many corporate sponsors:

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We cannot wait for the next brewfest! The 2014 Sam Robb Brewfest was surely a night of great food, good music and even better company.

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Screen Shot 2014-04-14 at 4.15.04 PM Make sure to save the dates for these upcoming Sam Robb Fund events:

Sam Robb Memorial Golf Tournament
Legacy on Lanier Golf
Sunday, October 12, 2014

Cabernet for CURE
The Sam Robb Fund Wine Tasting
Saturday, November 8, 2014

Sam Robb Memorial Holiday Classic
December 27-28-29, 2014
For additional information about these events, please visit www.samrobb.com.

 


April 9th, 2014

2014 Lauren’s Run Diamond Sponsor Promotes Local and Global Change

food-security.jpg_1453745529We’re very happy to announce that DLA Piper LLP, one of the world’s biggest law firms, is a 2014 Lauren’s Run and CURE Annual Picnic Diamond Sponsor! Since opening its Atlanta office in 2006, DLA Piper’s legal team has grown to nearly 30 lawyers, positioning the company as the leading law firm in the Southeast.

Along with being a renowned global leader in its industry, DLA Piper has also helped make many positive changes in the Atlanta community and worldwide. Since 1988, much of DLA Piper’s philanthropy or pro bono legal work has been centered around a number of important worldly causes like world hunger, gender equality, human trafficking, juvenile justice, environmental sustainability, HIV/AIDS and many more.

In particular, DLA Piper has supported many food banks to fight hunger in 23 countries and span the creation of the Global FoodBanking Network (GFN). Each summer, the firm holds an annual food drive to support local food banks in Atlanta and other DLA locations. In 2012, all DLA Piper offices combined raised $130,000 and collected about 30,000 pounds of food!

CURE knows first hand how important it is to provide nourishment to families in need through our Open Arms program. Not to mention we’re advocate fighters for children’s rights and putting an end to devastating diseases! Now, CURE is joining forces with one of the best to beat childhood cancer in our lifetime. We feel more than honored to have DLA Piper as a part of our Lauren’s Run sponsorship team this year and are hopeful that childhood cancer will be voiced as a prominent global issue!

Don’t forget to register for Lauren’s Run if you haven’t already. We’ll see you April 27th at Concourse Office Park!


April 8th, 2014

The Effects of a Child’s Cancer on the Parents’ Relationship

Mark R. Zuccolo, Ph.D., LMFT

Screen Shot 2014-04-08 at 2.37.29 PMWhen parents are involved in the care of a child with cancer, they experience both positive and negative changes in their relationships, communication, stress, and their roles.

Emotions such as anxiety, guilt, anger, and distress ebb and flow during the course of the child’s illness. These emotions are felt and expressed by all family members, often more overtly by mothers and children. The child’s cancer  affects the family’s need for care, self-esteem, social interaction, and functioning. Consequently, parents may find it necessary to change or modify their family roles to cope with the demands of their child’s illness.

There are variations in the impact of the child’s illness on fathers’ and mothers’ relationships. While some relationships are weakened by these extremely stressful circumstances, others are strengthened during the cancer experience.

According to an extensive 2010 integrative review of parents of children diagnosed with cancer by DaSilva, Jacob, and Nascimento, time since diagnosis appears to be an important factor in the couple’s relationship. Many of the changes occur shortly after diagnosis. However, when the child has been ill for 1 year many parents report fewer changes in their relationships. After 2 or 3 years, many couples report positive changes. After 4 years or more, most parents note little to no additional changes. In times of the child’s remission, family life is likely to return to normal, and couples note a sense of their strengthened relationship. If the child’s cancer relapses, however, the entire crisis process can be reestablished. Some couples report greater emotional closeness, while others realize that their adverse circumstances simply reveal the marriage’s strengths and weaknesses.

High stress factors can also produce negative changes in couples’ relationships. Some mothers may feel that, despite a strong relationship with their spouse, the adverse and stressful circumstances generated by the child’s illness are weakening the connection with their partner.  The parents’ intimate relationship and sexuality has been reported to worsen for almost half of the couples surveyed. Many couples invest, at least for a time, the majority of their physical and emotional energy in their child’s illness, often leaving little or no time and energy for intimacy and leisure activities.

Difficulties in communication appear frequently in parents of a child with cancer. Healthcare professionals may be able to identify parents at risk for developing conflicts, communication problems, and lack of alignment between parents that could interfere with providing optimal care for their child with cancer.  If these symptoms are observed, they should be addressed, preferably in counseling.

Each spouse deals with the child in his or her own way and may feel that they cannot meet the other parent’s needs. Some mothers expect fathers to help when they feel overwhelmed with caring for the sick child and managing the daily routine and often jobs, as well. Fathers, however, may feel especially burdened by their jobs and may want down time away from work. These conflicting needs must be reconciled through communication and negotiation between the spouses, as they are both equally valid and heartfelt.

Fathers may find it difficult to acknowledge their weaknesses and vulnerability in moments of grief and loss. They may choose to repress fear and inner conflict, perceiving that they are socially expected to show strength and courage. Accordingly, many fathers may not share their uncertainties and feelings of difficulties with their wives because they may be afraid of appearing weak, preferring to be seen as the rock the family rests on.

Mothers may find that during the illness, their role as wife may be totally replaced by the caregiver role. We may see the fathers, who were not formerly directly involved in household tasks, starting to assume these roles, even when they have a full-time job.  Generally speaking, in times of crisis, mothers focus on involvement in the child’s life, represented by being physically present, while fathers advocate for and support their children and their wife.

Both partners need to be comfortable and flexible in dealing with these role changes by emphasizing the importance of working together in a partnership, as a team, independently of how roles are shared.  It is important to be emotionally available for each other, whether separated or together. Bonds are strengthened when the couple is together, and they individually suffer in each other’s absence. Despite the inevitable tensions, couples can share strategies for handling situations as they emerge, and they mutually provide encouragement and support for each other.


April 7th, 2014

Raise Money for Lauren’s Run and You Could Win a Prize!

Screen Shot 2014-04-07 at 3.23.59 PMIt’s often said that those who give to others will be rewarded in return. That’s why CURE has decided to give back to those who have done their part to make the 2014 Lauren’s Run and CURE Annual Picnic a tremendous success! Over the years, Lauren’s Run has raised more than $3 million for childhood cancer research, and we know that this would not have been possible without the enormous amount of community and family support CURE receives—Simply, it’s the least we can do to show our gratitude.

We will be giving out a series of prizes to Lauren’s Run fundraisers up until Friday April 25th, two days before the race. We will also make sure to give these well-deserved winners a shout out on our Facebook page!

Raise $250

All participants who raise $250 or more will automatically be entered to win a special prize from CURE. Only 3 winners will be chosen out of this category! Drawings will take place on these days —Sunday April 13th and April 20th, as well as Friday April 25th.

Raise Money One Week Before Lauren’s Run

It’s never too late to give! April 21st through April 25, the week leading up to Lauren’s Run, a prize will be rewarded EACH DAY to the person who raises the most money in each 24-hour period, according to their FirstGiving page.

Top Overall Fundraisers

Last, but certainly not least, prizes will be presented to the top three fundraisers overall at Lauren’s Run on April 27th!

Prizes will include Starbucks gift cards, upscale Atlanta restaurant gift cards from Ocean Prime, Buckhead Life and Fifth Group, Braves game tickets and many more. No large task is conquered alone, so encourage your friends, family and co-workers to join the cause and donate to your fundraising page! To register for Lauren’s Run and create your own fundraising page click here.


April 4th, 2014

Pay Tribute to Someone Special During Lauren’s Run

The 2014 Lauren’s Run and CURE Annual Picnic is about three weeks away! Each year, we look forward to honoring the many children who are still fighting cancer strong, the families who have offered their own children and others endless support, and also those whose memories will still live on. To register for Lauren’s Run on Sunday, April 27th please click here.

Lauren’s Run tribute signs are a special way to honor and remember someone whose life has been affected by cancer. Whether an immediate family member or child of a co-worker or friend, these signs are the perfect reminder of why CURE and Lauren’s Run participants are so committed to finding a cure for childhood cancer. Tribute signs will serve as decorative inspiration along the 2K course and are yours to keep after the event.

The cost of each sign is $25 and measure 18” X 24”. To order, visit www.curechildhoodcancer.org and click the “DONATE” button. In the comment section, please include that the $25 payment is for a tribute sign honoring or in memory of your loved one during Lauren’s Run. Once you’ve paid for the sign, email Karen@curechildhoodcancer.org  with the person’s name, a 4×6 or 8×10 photo and the endearing message you would like printed on the sign. Messages must be kept to 10 words or less.

*Photo files must be .jpg or .tif. Scanned 4×6 pictures must be 300 dpi. Scanned 8×10 pictures must be 200 dpi. 

The deadline for ordering tribute signs has been extended to Monday April 14th!

Please contact Karen at Karen@curechildhoodcancer.org or 770-986-0035 ex. 26 with questions.

Register for Lauren’s Run here.

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April 4th, 2014

CURE Welcomes New Board Members

Passion, talent and dedication is in abundant supply among CURE Childhood Cancer’s Board of Directors. “We are blessed to have the most incredible leadership,” says Kristin Connor, Executive Director.  Carrying on the tradition, CURE is thrilled to welcome four new board members: Rich Boustead, Lisa Heskett, Mike Phelps and Roger Weitkamp.

0039Rich Boustead, an executive in Global Business Services with Accenture, is no stranger to the world of childhood cancer.  His six year old son, Declan, was diagnosed with Leukemia in March 2012.  Within 72 hours of Declan’s diagnosis, Rich says his family was introduced to CURE by way of the Thursday evening Open Arms Dinner.  “Declan’s cancer journey has opened my eyes to the intensity of having a child battle cancer, the significance of CURE’s family and patient services, and the importance of conquering childhood cancer,” says Rich. “ I feel privileged to be a part of the CURE team and to help the special people who both deliver and receive CURE’s service.”

Mike Phelps is the Manager of Home South Communities, LLC, a residential construction company based in Gwinnett County.  Prior to his involvement with Home South, Mike was the President of Precision Design & Development and was a principal owner of Bowen Family Homes . Mike has volunteered for and served on the board of a number of charitable and civic organizations including the Georgia Department of Natural Resources, the Joint Development Authority (Newton, DeKalb and Gwinnett Counties), Greater Atlanta Christian School, the Gwinnett Hospital Foundation, the American Cancer Society and the Gwinnett Children’s Shelter.

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Roger Weitkamp is a lawyer with CryoLife, Inc. Roger was introduced to CURE when his friend’s son was diagnosed with neuroblastoma in 2001. Roger was impressed and moved as he learned about the tremendous support CURE was providing to families having to deal with fear, uncertainty, and grief inherent to a childhood cancer diagnosis. “I’ve continued to follow and be inspired by CURE over the years, and I wanted to play an active role in supporting the great work it does to realize its long-term mission of finding a cure for childhood cancer while delivering on its day-to-day commitment to provide crucial support to the children and their families who are fighting the disease right now,” explains Roger. “I am very honored to be part of CURE, and look forward to contributing to its continued success.”

Screen Shot 2014-04-03 at 4.58.58 PMLisa Heskett is a Partner with Price Waterhouse Coopers in the Assurance practice.  “So many of us are touched by cancer in our lives,” says Lisa. “ I have seen its devastating effects on the adults I’ve known who have been afflicted.  Some have survived only to then encounter other issues brought on by the treatments meant to cure the cancer.  The thought of children enduring those treatments and the long term effects on their bodies as well as those children who do not survive at all is what drove me to join the fight for a cure.”

Please join us in welcoming Rich, Roger, Mike and Lisa to the CURE family.


April 3rd, 2014

NCR’s Sprint for Cancer Joins Lauren’s Run!

1796906_729818850391563_1188588869_oThe 20th Annual Lauren’s Run and CURE Picnic is getting closer and closer! With that being said, we would like to take a moment to thank those who are dedicated to making this year’s event a success. In particular, we’d like to thank the 2014 Lauren’s Run Presenting Sponsor NCR.

By day, NCR is a global technology company that helps businesses make customer transactions easier and more enjoyable. But more importantly at its core, NCR is a longtime supporter of childhood cancer research! Like CURE, NCR hosts an annual 5K, 10K and Family Fun Walk/Run event for racers of all ages and abilities called Sprint for Cancer to benefit the Aflac Cancer and Blood Disorders Center at Children’s Healthcare of Atlanta.

Together, NCR has raised more than $1.2 million to help fund pediatric cancer research and aid families affected by childhood cancer. However this year, NCR has teamed up with CURE to host the 2014 Lauren’s Run and CURE Annual picnic. By combining our donations, runners and volunteer efforts for one important cause, this year’s contributions and community support are expected to quadruple!

We are more than grateful to fight this cause with Lauren’s Run Presenting Sponsor, NCR this year. Lauren’s Run is Sunday, April 27 at Concourse Park in Atlanta, GA; we hope to see you there for the biggest Lauren’s Run and CURE Annual Picnic to date! Register here: http://bit.ly/20thLaurensRun


April 1st, 2014

CURE Launches First “Believe Fund”: The Will Abernathy Memorial Fund

Screen Shot 2014-03-31 at 4.49.46 PMNamed funds aren’t new to CURE, but with the creation of the Will Abernathy Memorial Fund, CURE has made way for a new category of named funds called “Believe Funds.” With an annual total gift of $10,000, which can be comprised of multiple donations or proceeds from fundraising events, families can honor their children or someone touched by cancer by establishing a Believe Fund in their name. Believe Funds support CURE’s research initiatives or patient and family support programs.

Proceeds from the November 23, 2013 “Will to Win” 5K were used to establish the first Believe Fund in memory of little Will Abernathy, a precious five-year old who fought stage four neuroblastoma for three years. Will died in July 2013 after developing a secondary cancer as a result of his neuroblastoma treatments.

An adorable boy with blonde, curly locks and bright blue eyes, Will was diagnosed with neuroblastoma on Halloween 2010. While he became a very sick little boy, his family remembers him a different way. Gymnastics and Lil’ All Stars. Playing games on the iPad and dressing up as Buzz Lightyear and Darth Vader. Riding the John Deere tractor full-speed down the hill as his mom chased, trying to slow him down. His loyal companion, boxer Shelby, keeping a watchful eye on Will, somehow understanding his sickness and always tolerating his mischievous acts. “Will overcame every obstacle that stood in his way,” says Melody Abernathy, Will’s mom. “He faced every day with the hope and passion to live a happy life, just as we all should.”

The Will Abernathy Memorial Fund was established to support CURE’s critical research initiatives. For more information on the Will Abernathy Memorial Fund or CURE’s new Believe funds, visit www.curechildhoodcancer.org/named-funds or call Kristin Connor at 770-986-0035 ext. 24.

How to Donate to the Will Abernathy Memorial Fund

Click here to donate online and choose “Will Abernathy Memorial Fund” in the program section. Your gift will be directed accordingly.

Or checks can be made out to CURE Childhood Cancer, with “Will Abernathy Memorial Fund” written on the notes line. Mail checks to:  CURE Childhood Cancer, 1117 Perimeter Center West, Suite N-402, Atlanta, GA 30338

 


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    INAUGURAL BELIEVE BALL - SOLD OUT!

    On Saturday, May 3, 2014, at the St. Regis Atlanta, CURE will honor Tom Glavine, and his wife Chris, for their tireless dedication to CURE's mission as well as celebrate Tom's recent induction into the MLB Hall of Fame. Click here to learn more about the event and check back soon for a link to bid in a fabulous online auction.

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    LAUREN'S RUN & CURE PICNIC

    Register Now for the 20th Annual Lauren's Run 10K, 5K, 2K and Tot Trot on Sunday, April 27, 2014 at Concourse Office Park in Atlanta, GA. After the run, walk to the ultimate family-friendly CURE Picnic, a day including lunch, football with NFL players, inflatables, games, prizes, and more!