Cure Childhood Cancer

CURE Blog


July 22nd, 2016

The Difference You Made: CURE’s Fiscal Year Comes to an End

With the close of CURE Childhood Cancer’s fiscal year on June 30, 2016, we are eager to share with you the incredible difference you made over the past 12 months for children with cancer and their families. With your help, we raised more than $5.2 million to advance our mission!

Screen Shot 2016-07-22 at 10.04.32 AMThis year, CURE awarded nearly $2.7 million in grants to support research initiatives all with the goal of improving survival for those battling childhood cancer. We are focused on moving the needle ever closer to a cure for all children with cancer and advancing immunotherapies and other treatments which are safer and less toxic for children. Our grants funded 20 pediatric cancer research labs at top institutions around the country.

Supporting patients and their families is paramount to us, and you enabled us to do this well.

In total, our busy patient and family services team – with the help of dedicated volunteers – served dinner to 2720 and lunch to more than 6000 hospitalized patients, parents, siblings, nurses and survivors. They delivered 638 brown bag lunches to parents of hospitalized children in Atlanta and Savannah, more than 1060 snack bags to patients and families in Atlanta, Savannah, Augusta and Macon and 342 toiletry bags. More than 300 families received CURE totes at diagnosis full of practical items and tips from other families who have walked the childhood cancer journey. We assisted 229 families with emergency financial assistance grants totaling $114,747, and provided $20,000 in transportation assistance to 44 families. We distributed an additional $14,395 in gas, grocery and pharmacy cards.

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CURE recognizes the incredible psychological and emotional hardships of childhood cancer and offers families the opportunity to receive professional counseling. In the last year, we provided 56 counseling sessions. We also hosted more than 100 parents at bereavement weekends.

Screen Shot 2016-07-22 at 10.13.36 AMFamilies let us know the difference this support made to them. One mother wrote, “Thank you for all you have done during this difficult time in our lives. Without your help, many donations, meals, gas cards, Publix grocery cards and financial support when we had no money… we would have never made it this far. We are utterly indebted to your organization and plan to pay it forward as you have graciously shown us how to.”

We also hosted fantastic holiday parties in both Atlanta and Savannah and provided holiday assistance to 76 families, ensuring their holidays were special. And so much more – all because of you!

We could not do what we do without the help of each and every one of you. YOU are CURE and we are so grateful.


July 19th, 2016

“Parenting through Illness” Workshop held July 23rd

In response to the overwhelming need for patient families to have additional support and resources during their child’s treatment CURE Childhood Cancer offers counseling which allows patient families access to professional services at a discounted rate through CURE’s network of therapists.  An extension of the counseling program will include workshops focused on topics relevant to patient families.

On Saturday, July 23rd CURE will host a “Parenting through Illness” workshop.

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Aflac Cancer Center and Georgia State University psychologists and therapists will lead the group in discussions related to parenting strategies, creating healthy boundaries for your child during treatment, issues related to siblings, and self-care strategies.

We want you to know you are not alone on this journey and we invite you to join us for this free workshop for CURE parents.  Space is limited.  If you are interested in attending this free workshop please RSVP to Karen McCarthy at karen@curechildhoodcancer.org or 770-986-0035 x 26 by Wednesday, July 20th.

Children’s Healthcare of Atlanta – Scottish Rite
Cafeteria Conference Room
1001 Johnson Ferry Road NE
Atlanta, GA 30342

Saturday, July 23rd
Workshop begins at 9:00 am
Concludes at 12:00 pm
*Childcare will be provided

*If you are interested in dropping your child(ren) off at childcare please RSVP with the name and age of each child.

 


July 8th, 2016

Legacy Days: Remembering Sam Robb

When a child is diagnosed with cancer, some families make the commitment to continue the fight for life. For these special families, CURE offers the ability to create a Named Fund or Believe Fund in honor or memory of their child. As a part of this decision, these families share their child’s story and make a commitment to raise money each year, which supports CURE Childhood Cancer’s mission 100%. These families are CURE’s rock stars; their hearts are huge and their drive to find a cure is even bigger. This July, CURE aims to honor these special children and families through a program we call “Legacy Days.” Today, we honor Sam Robb, whose family formed a CURE Named Fund called The Sam Robb Fund, in his memory.

Screen Shot 2016-07-08 at 3.26.26 PMSam’s Story:
Like many boys, Sam loved playing sports – primarily basketball and football. At 6’5″ and 230 lbs. in the 10th grade, Sam was already a college prospect. But in the fall of 2002, X-rays of a nagging stress fracture in Sam’s left knee revealed the unthinkable… the diagnosis of bone cancer (osteosarcoma).

After an exhausting three months of chemotherapy, surgery to save his knee, and then more chemotherapy to eradicate the cancer, the news was bleak. Only 50% of the tumor had been killed, putting him into a high-risk group. His odds for survival dropped from the 75% to considerably less.

Even after hearing the news that his football career was over, he didn’t give up. He decided to play baseball. Although it did’t come easy, particularly with a prosthetic knee, he managed to pitch for a highly competitive East Cobb team, winning the final game of a world series in Tampa. Although he never would achieve elite athletic status, he fought to realize his dream of being part of a winning team.

Four and half years later, Sam and his family thought he had beaten his cancer demons. And then, more bad news. In the spring of 2007, Sam began to experience fatigue and discomfort in his lungs. The lung scan revealed that a grapefruit sized mass had taken over his lungs and chest cavity.

While many doctors felt the surgery to remove the tumor was life-threatening, one brave surgeon agreed with Sam to go for the “long ball” and remove the tumor…and a lung. Sam never made it off the operating table. The tumor was too difficult to extricate. But in many ways, the outcome was blessed. Sam never wanted sympathy, nor did he ever act like a sick person. He was good at everything except one thing – being sick.

Sam may be gone, but he will never be forgotten. The Sam Robb Fund will ensure that his spirit and determination to live life, no matter what the cards may hold, will live on to benefit others. So, too, will his mantra continue to inspired children facing childhood cancer:  “Fightin Till the Last Breath.”

Sam1About The Sam Robb Fund:
The Sam Robb Fund is a CURE Named Fund of CURE Childhood Cancer and was created in memory of Sam. The goal of the Sam Robb Fund is two-fold, helping to train young pediatric oncologist as well as supporting families in the thick of the battle with childhood cancer. Each year The Sam Robb Fund offers funding to a fellowship doctor.

100% of the money raised by The Sam Robb Fund is donated to CURE Childhood Cancer. To learn more about The Sam Robb Fund and learn how you may support the Robb family’s mission, click here.


July 8th, 2016

Legacy Days: Remembering Alexa

When a child is diagnosed with cancer, some families make the commitment to continue the fight for life. For these special families, CURE offers the ability to create a Named Fund or Believe Fund in honor or memory of their child. As a part of this decision, these families share their child’s story and make a commitment to raise money each year, which supports CURE Childhood Cancer’s mission 100%. These families are CURE’s rock stars; their hearts are huge and their drive to find a cure is even bigger. This July, CURE aims to honor these special children and families through a program we call “Legacy Days.” Today, we honor Alexa Lee Hartenstein, who inspired the formation of a Believe Fund called Team Alexa Fighting Back.

Screen Shot 2016-07-08 at 3.09.21 PMAlexa’s Story:
If ever there was an angel on Earth, you’d find her to be sweet Alexa Lee Hartenstein. She came into the world on March 16, 2009, with the most calm and peaceful personality, which grew with her into childhood. She always had a smile on her face, and she was so full of laughter and joy that it was contagious! Life with Alexa was as normal as life could be until the day her parents heard the words that no one ever dreams they will hear: “Your child has cancer.”

In September 2011, after a month of unexplained vomiting, falling down with every few steps, and many other symptoms, Alexa was diagnosed with a brain tumor – an sPNET, and it was extremely aggressive. It was a parent’s worst nightmare, but somehow Alexa managed to keep a smile through it all! From needle pokes to MRIs, chemo treatments to stem cell transplant, brain surgeries to radiation, Alexa endured more in three and a half years than many of us will face in a lifetime. In December 2015, after learning of her fourth relapse which had taken over her brain and spine, Alexa was moved to hospice care. Even then, her laughter and positive attitude never faded, and she continued to entertain her family and friends with her jokes and endless giggles. Alexa Lee was a fighter, and she showed what fierce determination looked like, right up until the very end. On February 26, 2015, her journey with cancer came to an end, and she earned the most beautiful set of angel wings.

Although Alexa’s life was cut short by cancer, she taught everyone who knew her just what it meant to live. To laugh amidst the worst of storms, and to enjoy every moment, good or bad. To be kind and show compassion to each person you meet, no matter the circumstances. To never give up the fight, even when things get hard. To find joy in every day and give back to those who needed it most.

Screen Shot 2016-07-08 at 3.15.14 PMAbout Team Alexa Fighting Back:
Team Alexa Fighting Back is a Believe Fund of CURE Childhood Cancer and was created in memory of sweet Alexa. Alexa’s family hopes to keep her legacy alive by helping other families who are battling childhood cancer. Team Alexa Fighting Back supports CURE’s ongoing patient and family support programs, such as the Open Arms meal program and Family Emergency Fund.

100% of the money raised by Team Alexa Fighting Back is donated to CURE Childhood Cancer. To learn more about Team Alexa Fighting Back and learn how you may support the Fund’s mission, click here.


July 8th, 2016

Legacy Days: Remembering Creed Campbell

When a child is diagnosed with cancer, some families make the commitment to continue the fight for life. For these special families, CURE offers the ability to create a Named Fund or Believe Fund in honor or memory of their child. As a part of this decision, these families share their child’s story and make a commitment to raise money each year, which supports CURE Childhood Cancer’s mission 100%. These families are CURE’s rock stars; their hearts are huge and their drive to find a cure is even bigger. This July, CURE aims to honor these special children and families through a program we call “Legacy Days.” Today, we honor Creed Campbell, who inspired the formation of a Believe Fund called the Creedlove Fund, to honor his memory.

Screen Shot 2016-07-08 at 2.43.40 PMCreed’s Story:
Creed’s story really started before he was born. He came into this world 11 weeks early weighing just 2lbs. He spent his first 91 days in the hospital, with lots of challenges to overcome. While there, he was diagnosed with an adrenal insufficiency, the first of many illnesses to come. At 6 months he began his ongoing journey at Scottish Rite when admitted for adnoviral pneumonia. At age 3 he began monthly IVIG treatments. This was basically giving him an immune system to hopefully stop him from getting sick.

The next five years of his life he battled more serious bacterial infections puzzling the doctors as to how and why he continued to catch these illnesses. It just didn’t make sense. His family learned very quickly just how unique Creed was. On his fifth birthday he became sick again. One of the many doctors requested a bone marrow biopsy; he felt like something had to be going on there because nothing else was adding up. A week later the results we in. Yep, there it was. Creed had Myelodysplasia/ Monosomy 7.

IMG_1766This is a disease that attacks the reproduction of bone marrow and was the reason for the chronic illnesses so far. Myelodysplasia left untreated will develop into AML (acute myeloid leukemia). Not wanting this to happen, we moved quickly with the treatment process, which was a bone marrow transplant. There were many test along the way. The first being, locating a donor. Because his dad nor I were a match, we had to look further. Within a few months we had located a perfect match!

August of 2010, Creed was hospitalized to begin chemotherapy and total body irradiation. This was a 10 day regimen to prepare his body for the transplant. He spent the next month in the hospital watching his counts rise and fall. But that wasn’t his biggest challenge. Creed developed another issue while his body began accepting and reproducing new healthy cells. This issue was called Hemolytic Anemia. This caused his body to destroy his own platelets, causing his lungs to hemorrhage and landed him in the PICU. There he spent the next 3 months, overcoming this illness, fighting for his life all the while causing lots of questions and confusion for the doctors. After another three months in the hospital, relearning how to walk, eat etc., it was time to go home.

The next 7 months were picture perfect. Something Creed wasn’t familiar with. He had never not been sick. We as a family were learning what that looked like. That winter the Hemolytic Anemia reared its nasty head again, this time attacking his red blood cells. Creed was admitted back into the hospital for treatment. This time the illness was extremely resistant to treatment and that caused a lot of problems for Creed. After three months of fighting, Creed earned his wings on April 15, 2012. Although Creed’s life as seem on paper looked grim and hard, through his eyes he saw none of that. His life was lived to the fullest and he loved big!! He never met a stranger and those who knew him loved him. He was a bright light in a big world and will never be forgotten.

About Creedlove Fund:
Creedlove Fund is a Believe Fund of CURE Childhood Cancer and was created in memory of sweet little Creed Campbell. The hope is to give back by helping other families who are walking through the difficult and painful journey of childhood cancer.  A cure would be wonderful, but until then, Creedlove Fund wants to help financially while families focus on what’s important: the kids. Therefore, all proceeds from Creedlove Fund will be used to provide support to patients undergoing treatment for childhood cancer, and their families.

100% of the money raised by Creedlove Fund is donated to CURE Childhood Cancer. To learn more about Creedlove Fund and learn how you may support the Fund’s mission, click here.


July 8th, 2016

Legacy Days: Honoring Trenton Kindred

When a child is diagnosed with cancer, some families make the commitment to continue the fight for life. For these special families, CURE offers the ability to create a Named Fund or Believe Fund in honor or memory of their child. As a part of this decision, these families share their child’s story and make a commitment to raise money each year, which supports CURE Childhood Cancer’s mission 100%. These families are CURE’s rock stars; their hearts are huge and their drive to find a cure is even bigger. This July, CURE aims to honor these special children and families through a program we call “Legacy Days.” Today, we honor Trenton Kindred, whose family started a CURE Named Fund called the Trenton W. Kindred Research Fund to honor his journey.

Screen Shot 2016-07-08 at 1.12.24 PMTrenton’s Story:
Trenton Kindred is no stranger to the hospital. After being diagnosed with Stage IV Neuroblastoma when he was only a year old, he began five rounds of chemotherapy, followed by stem cell harvesting and two tandem bone marrow transplants. Countless minor surgeries, infections, sedation, skin rashes, low blood counts and fatigue defined his life.  As a result, Trenton ended up living at the hospital for a total of eight months.

But he didn’t let that douse the fighter in him. Even when radiation started – and lasted for twenty-one consecutive days – he fought back. His final treatment came in the form of oral chemotherapy, twice a day for 6 months. His determination, fight and love of life helped him through treatments – to find himself free of cancer. And he has been since 2006.

His parents, Greg and Ginger, hope that Trenton will inspire other childhood cancer patients to live life to the fullest. In the meantime, they’ve taken on the role of raising money to help find a cure for childhood cancer through forming the Trenton W. Kindred research fund.

Screen Shot 2016-07-08 at 2.24.56 PMAbout the Trenton W. Kindred Research Fund:
The Trenton W. Kindred Research Fund is a CURE Named Fund of CURE Childhood Cancer and was created in honor of Trenton’s diagnosis and survivorship. Proceeds from the Trenton W. Kindred Research Fund will be used to support childhood cancer research – supporting the doctors and scientists of the Aflac Cancer Center and Blood Disorders Services of Children’s Healthcare of Atlanta and Emory University School of Medicine. The Kindreds and their supporters are committed to advancing better treatment for neuroblastoma, and to ultimately find a cure for this aggressive disease.

100% of the money raised by the Trenton W. Kindred Research Fund is donated to CURE Childhood Cancer. To learn more about the Trenton W. Kindred Research Fund, and learn how you may support the Kindred family’s mission, click here.


July 8th, 2016

Legacy Days: Remembering Catie Wilkins

When a child is diagnosed with cancer, some families make the commitment to continue the fight for life. For these special families, CURE offers the ability to create a Named Fund or Believe Fund in honor or memory of their child. As a part of this decision, these families share their child’s story and make a commitment to raise money each year, which supports CURE Childhood Cancer’s mission 100%. These families are CURE’s rock stars; their hearts are huge and their drive to find a cure is even bigger. This July, CURE aims to honor these special children and families through a program we call “Legacy Days.” Today, we honor Catie Wilkins, whose inspired the formation of a CURE Named Fund called Catie’s Fund to honor her memory.

Screen Shot 2016-07-08 at 12.57.04 PMCatie’s Story:
On her first birthday, Catie Wilkins was diagnosed with medulloblastoma, an aggressive brain tumor. With no warning, Catie and her family were plunged into a world of non-stop doctors and surgeries and chemotherapy and medicines.

Catie’s parents, Tré and Jenny, helped her navigate through 12 surgeries, 4 different chemotherapy protocols and 6 weeks of radiation. But her tumor continued to grow, even through these harsh treatments. Catie fearlessly fought her battle with cancer, but the chemotherapy had compromised her immune system so severely that she succumbed to a common virus before she reached her 5th birthday.

While Catie battled cancer for most of her life, she managed to fit a whole lot of living and laughter into her all too short 4 years and 4 months. Catie was funny and tough, loving and mischievous. She was quick to tease her daddy and her laughter rang out when she got away with something. Her favorite place on earth was the beach where she loved to catch hermit crabs and play in the sand. She was an animal lover, with dogs and tree frogs topping her list of favorites.

It’s impossible to capture the essence of Catie in just a few words. She was, in some ways, just a normal kid. But she was an old soul with a wisdom beyond her years. Those who knew and loved Catie were forever changed by the enormity of her spirit and determination to live big in spite of what life threw at her.

Screen Shot 2016-07-08 at 1.00.50 PMAbout Catie’s Fund:
Catie’s Fund is a CURE Named Fund of CURE Childhood Cancer and was created to carry-on sweet Catie’s legacy. Many survivors of pediatric cancers live with lifelong side effects from the treatments they received to survive. The severity of late effects of treatment varies, but problems include (but are not limited to) decreased cognitive function, infertility, endocrine problems, growth abnormalities, hearing loss (moderate or severe), renal dysfunction, heart problems, and secondary malignancies. Simply surviving is not enough. More research is needed so that survivors of childhood cancers can not only live, but live well. Catie’s Fund was established to support these research efforts.

100% of the money raised by Catie’s Fund is donated to CURE Childhood Cancer. To learn more about Catie’s Fund, and learn how you may support the Fund’s mission, click here.


July 8th, 2016

Legacy Days: Remembering Will Abernathy

When a child is diagnosed with cancer, some families make the commitment to continue the fight for life. For these special families, CURE offers the ability to create a Named Fund or Believe Fund in honor or memory of their child. As a part of this decision, these families share their child’s story and make a commitment to raise money each year, which supports CURE Childhood Cancer’s mission 100%. These families are CURE’s rock stars; their hearts are huge and their drive to find a cure is even bigger. This July, CURE aims to honor these special children and families through a program we call “Legacy Days.” Today, we honor Will Abernathy, whose inspired the formation of a Believe Fund called the Will Abernathy Memorial Fund to honor his memory.

Screen Shot 2016-07-08 at 12.14.55 PMWill’s Story:
At 30 months old, Will Abernathy’s life was filled with so much joy: playing with his friends, swimming and jumping on his trampoline. He was happy being on-the-go and always had a great attitude and a winning smile that warmed any heart and brightened any day. Will was a healthy, happy little boy. That is, until Halloween of 2010, when his life changed forever. At 31 months old, Will was diagnosed with stage IV neuroblastoma. His entire family was in a state of shock and disbelief over his diagnosis, “How could this happen to our perfect little boy?”

Will’s journey began with six rounds of chemotherapy at Children’s Healthcare of Atlanta, plus a tumor resection on his left adrenal gland, a round of outpatient chemo, and numerous ER admissions for fever and blood and platelet transfusions. Will’s response to the first 6 standard rounds of chemo was not what the doctors were hoping for. His scan results showed only a partial response to the chemo with little change. This news was heartbreaking. Desperate to save their boy, Will’s family began a journey around the country to undergo alternative treatments.

Will and his family arrived in Philadelphia to receive a 131I-MIBG therapy, at the time offered at only six hospitals in the nation. Seven weeks after Will’s treatment, his disease showed no change. Armed with a fighting spirit, he endured a second round of treatment. But his cancer remained. His family switched gears and Will began a clinical trial called Crizotinib. After 10 cycles of Crizotinib, and indicating stable disease and clear bone marrow, scans showed a new spot. How could this be? Will was taken off of the drug.

The family’s next stop was Michigan, where Will began a targeted study. After just 2 cycles, scans showed Will’s cancer had spread even more. He was immediately taken off the drug and enrolled in a new chemo treatment. Unfortunately, this treatment brought more side effects and Will developed an infection. His disease didn’t show a great enough response and he was removed from the study. Facing utter desperation, it was back to Philadelphia for a third MIBG therapy.

On April 23, 2013, Will was admitted to the hospital to undergo major dental work: 16 extractions and 4 crowns, a result of his cancer treatment. While in the hospital, Will’s blood work revealed devastating news: he had developed a secondary cancer, AML, from previous treatments. Five days later, Will came home for hospice care.

photo-copy-2Throughout the years of Will’s treatment, he faced daily challenges that no child should ever have to endure. And in the final months, extreme pain wished upon no living thing. Despite these challenges, Will showed amazing strength and maturity. He adapted to each new normal that came his way. At just five years old, Will’s suffering ended on July 16, 2013.

While Will was a very sick little boy, his family remembers him a different way. Gymnastics and Lil’ All Stars. Playing games on the iPad and dressing up as Buzz Lightyear and Darth Vader. Riding the John Deere tractor full-speed down the hill as his mom chased, trying to slow him down. His loyal companion, boxer Shelby, keeping a watchful eye on Will, somehow understanding his sickness and always tolerating his mischievous acts. His blonde curly locks, bright blue eyes, and affectionate, care-free personality. Will overcame every obstacle that stood in his way and faced every day with the hope and passion to live a happy life, just as we all should.

About the Will Abernathy Memorial Fund:
The Will Abernathy Memorial Fund is a Believe Fund of CURE Childhood Cancer and was created to carry-on Will’s legacy, by raising funding to support life-saving pediatric cancer research.

100% of the money raised by the Will Abernathy Memorial Fund is donated to CURE Childhood Cancer. To learn more about the Will Abernathy Memorial Fund, and learn how you may support the Fund’s mission, click here.


July 8th, 2016

Legacy Days: Remembering Mary Elizabeth Paris

When a child is diagnosed with cancer, some families make the commitment to continue the fight for life. For these special families, CURE offers the ability to create a Named Fund or Believe Fund in honor or memory of their child. As a part of this decision, these families share their child’s story and make a commitment to raise money each year, which supports CURE Childhood Cancer’s mission 100%. These families are CURE’s rock stars; their hearts are huge and their drive to find a cure is even bigger. This July, CURE aims to honor these special children and families through a program we call “Legacy Days.” Today, we honor Mary Elizabeth Paris, whose family formed a Named Fund called United for a CURE to honor her memory.

Screen Shot 2016-07-07 at 1.17.07 PMMary Elizabeth’s Story:

No one saw it coming. Mary Elizabeth was a vibrant, happy 11-year-old in the spring of 2014 when the headaches, tummy aches and bruising started. Spring Break vacation was cut short when Mary Elizabeth visibly just wasn’t herself.

She was soon diagnosed with AML – an aggressive leukemia requiring not just chemotherapy, but a bone marrow transplant. Despite Mary Elizabeth’s tortuous journey – including three bone marrow transplants from her brother, father and mother – Mary Elizabeth’s personality and love of life was simply infectious. Hundreds of thousands followed Mary Elizabeth’s fight, cheering her on and praying vigorously for her cure.

She suffered through chemo burns over 90% of her body. Cranial radiation, near paralysis, induced coma, three lung bleeds – and indescribable pain. Mary Elizabeth minimized the suffering, complaining only of missing her cats and her brother and sister, who held such a precious place in her heart. Her family and friends – and thousands of strangers – prayed for a miracle.

Mary Elizabeth died on September 2, 2015. And while her life was cut short, she left us with the miracle of having created an astounding level of awareness about the reality of an awful disease – childhood cancer. And she left us a challenge: to end the disease that cuts short such valorous, promising lives as Mary Elizabeth’s.

Screen-Shot-2016-03-30-at-10.49.09-AMAbout United for a CURE:
United for a CURE is a Named Fund of CURE Childhood Cancer, founded in honor of three incredibly brave children: Mary Elizabeth, Melissa and Lake. Sharing the same diagnosis and treatment protocol, these three children bonded instantly in the hospital and brought together three families for a united circle of support. If determination and prayers were enough, these three precious children would still be with us today. But AML is a monster, and it took the lives of Mary Elizabeth, Melissa and Lake within months of one another in 2015. Despite the tragic loss, three times over, their stories inspired hundreds of thousands and forever ignited a fire within three families – three families United for a CURE.

100% of the money raised by United for a CURE is donated to CURE Childhood Cancer. To learn more about United for a CURE, and learn how you may support the Paris family’s mission, click here.


July 8th, 2016

Legacy Days: Remembering Lake Bozman

When a child is diagnosed with cancer, some families make the commitment to continue the fight for life. For these special families, CURE offers the ability to create a Named Fund or Believe Fund in honor or memory of their child. As a part of this decision, these families share their child’s story and make a commitment to raise money each year, which supports CURE Childhood Cancer’s mission 100%. These families are CURE’s rock stars; their hearts are huge and their drive to find a cure is even bigger. This July, CURE aims to honor these special children and families through a program we call “Legacy Days.” Today, we honor Lake Bozman, whose family formed a Named Fund called United for a CURE to honor his memory.

Screen Shot 2016-07-07 at 1.49.41 PMLake’s Story:
Lake was all boy; he was non-stop motion. A basketball, his closest companion. Lake had a way of lifting people’s spirits just by being there. So his diagnosis of AML hit Lake’s family like a meteor. But chemotherapy, remission and a new baby sister cured everything. For a while. However, the cancer returned with a vengeance and Lake needed a bone marrow transplant. But this was Lake! Give him the ball and he was back to his old self.

After the transplant, Lake was back in remission – back to being the rock star he was. But the cancer returned again. This time, with the heartbreaking news it was incurable.

Lake’s parents decided their son should live his remaining months to the fullest. School, sports and the beach. Lake left us in May of 2015. Fittingly, he left with the rock star image that remains with the lives he lifted.

Screen-Shot-2016-03-30-at-10.49.09-AMAbout United for a CURE:
United for a CURE is a Named Fund of CURE Childhood Cancer, founded in honor of three incredibly brave children: Mary Elizabeth, Melissa and Lake. Sharing the same diagnosis and treatment protocol, these three children bonded instantly in the hospital and brought together three families for a united circle of support. If determination and prayers were enough, these three precious children would still be with us today. But AML is a monster, and it took the lives of Mary Elizabeth, Melissa and Lake within months of one another in 2015. Despite the tragic loss, three times over, their stories inspired hundreds of thousands and forever ignited a fire within three families – three families United for a CURE.

100% of the money raised by United for a CURE is donated to CURE Childhood Cancer. To learn more about United for a CURE, and learn how you may support the Bozman family’s mission, click here.


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    SINGER-SONGWRITER CONCERT

    Attend the “Home by Dark” outdoor singer-songwriter concert on August 5th or August 6th, with proceeds benefiting CURE. The concert takes place at beautiful Chukkar Farms in Alpharetta, GA. This experience is not to be missed! Click here to learn more and purchase tickets.

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    GOLF CLASSIC FOR CURE

    Mark your calendars for the annual Golf Classic for CURE, held September 30, 2016 at the beautiful Oaks Course in Covington, GA. For more information about sponsorships or to register to play, contact Joe Coleman at joe.c@csrepair.com.