Cure Childhood Cancer

CURE Blog


September 28th, 2012

CURE Childhood Cancer Honors Abby Smith

September is National Childhood Cancer Awareness Month. Join us today, September 28, 2012 as CURE Childhood Cancer honors CURE Kid Abby Smith. Join our fight as CURE’s Kids Conquer Cancer One Day at a Time! Donate to Abby’s fund.

Abigail Grace Smith (aka Abby) battled cancer for more than two-thirds of her life.  In mid February 2006, Abby developed balance issues which did not allow her to walk without falling.  On March 3, 2006, Abby was diagnosed with a golf ball size medulloblastoma brain tumor at the age of 23 months old.  She had a successful total tumor resection on March 6, 2006.  Unfortunately, Abby developed posterior fossa syndrome within days after surgery which caused her to lose most of her gross and fine motor skill capability for a period of time.  Abby initially underwent 4 cycles of chemotherapy, 30 days of radiation and then 8 maintenance cycles of chemotherapy.  She completed her treatment in late May, 2007.  Abby began thriving and improving and was a picture of health.  After a routine follow-up head and spine MRI on September 28, 2007, Abby was diagnosed with drop metastases in her spine in multiple places.  She had exhibited no symptoms.  All of Abby’s MRI’s and spinal taps had been clear to date with no evidence of cancer since March 6, 2006. From October 2007-March 2008, Abby endured three cycles of high dose ICE chemotherapy and a cord blood and bone marrow stem cell transplant. Abby went on to receive 25 cranial/spinal proton beam radiation treatments during late May/June 2008.  She completed her relapse treatment on June 30, 2008. Only two small places remained on Abby’s spine which continued to improve or stay stable.

For eleven months, Abby was on a 14 day cycle drug maintenance therapy.  She continued to get stronger and thrive during this time.  On June 23, 2009, fifty one weeks post relapse treatment, Abby had a routine follow-up MRI.  Her scan revealed a grape size tumor in her brain and haziness in her spine.  Two inconclusive spinal taps raised further concern.  Again, Abby had exhibited no symptoms.  To battle this second relapse, Abby began a daily metronomic chemotherapy regimen administered at home on July 20, 2009 which continued through January 27, 2011.  Abby was hospitalized on January 28, 2011 due to extreme anemia and four unrelated infections which led to sepsis, a mild stroke, seizures, the beginning of multi organ failure and seven days in the PICU.   Abby miraculously recovered and went home on February 12th.  After overcoming this ordeal, we were very optimistic about her March 22ndMRI.  Devastatingly, her MRI showed multiple lesions in the brain and at least one new lesion in the spine with haziness.  As with all other relapses, Abby was completely asymptomatic.  There were very few treatment options available for this third relapse.  Furthermore, Abby’s body told us that she was finished fighting due to problems maintaining any significant platelet count.  She was only able to receive two single drug chemotherapy infusions.  Yet, during this time, Abby continued to live a very normal, healthy, happy life.  She was the flower girl in her dear babysitter’s wedding where she walked down the aisle ALL BY HERSELF on June 25, 2011.

Beginning on July 27, 2011, Abby started exhibiting symptoms that seemed more like a viral infection.  On August 5th, Abby

 

started having balance issues and lost her ability to walk independently.  After a spiked fever brought us to the ER, Abby had a CT scan on August 8th which revealed at least two large tumors that were near her brain stem.  We spent seven days at home before tumor related complications brought us back to the hospital where she ran into Jesus’ arms on August 17, 2011 at the age of seven years old.

Through her 65 ½ month journey, Abby’s determined and fighting spirit pushed her forward each day.  She was our miracle girl!!  Throughout her cancer diagnosis, Abby lived out the meaning of her middle name as she faced all of her hospitalizations, treatments and pricks and pokes with such grace that can only come from above.  She will be forever remembered by her big blue green eyes, her beautiful heartwarming smile which connected you to her immediately, her love of pink, and her fashionable display of many bracelets at all times.  Abby loved her family with the most sincere affection and was happiest when we were all with her.  Our Christian faith has been our stronghold throughout our journey with Abby and continues to be as we face life without her.

Abby, you will always be our hero and the sweetest girl that we ever knew!!

Thank you for helping CURE as they endeavor to fund research and treatment options for the countless children like Abby affected by this terrible disease!


September 28th, 2010

CURE Childhood Cancer Honors Abby Smith

September is National Childhood Cancer Awareness Month. Join us today, September 28, 2010 as CURE Childhood Cancer honors CURE Kid, Abby Smith. Join our fight as CURE’s Kids Conquer Cancer One Day at a Time! Donate to Abby’s Fund.

Abigail Grace Smith, “Abby”, has been battling cancer for more than two-thirds of her life.  In mid February of 2006, Abby developed balance issues which were preventing her from walking steadily.  On March 3rd, 2006, Abby was diagnosed with a golf ball size medulloblastoma brain tumor at the age of 23 months old.

Abby had a successful total tumor resection on March 6, 2006.  Unfortunately, Abby developed posterior fossa syndrome within days after surgery which caused her to lose most of her gross and fine motor skill capability for a period of time.  Abby initially underwent 4 cycles of chemotherapy, 30 days of radiation, and then 8 maintenance cycles of chemotherapy.  She completed her treatment in late May, 2007.  Abby began thriving and improving and was a picture of health.  After a routine, follow-up head and spine MRI on September 28th, 2007, Abby was diagnosed with drop metastases in her spine in multiple places.  She had exhibited no symptoms.  All of Abby’s MRI’s and spinal taps had been clear to date with no evidence of cancer since March 6th, 2006.

From October of 2007 until March of 2008, Abby endured 3 cycles of high-dose ICE chemotherapy and a cord blood and bone marrow stem cell transplant. Abby went on to receive 25 cranial/spinal proton beam radiation treatments during late May/June, 2008.  She completed her relapse treatment on June 30th, 2008. Only two small places remained on Abby’s spine and the two spots continued to improve or stay stable.  For eleven months, Abby was on a 14 day cycle drug maintenance therapy.  She continued to get stronger and thrive during this time.

On June 23rd, 2009, 51 weeks post relapse treatment, Abby had a routine follow-up MRI.  Her scan revealed a grape size tumor in her head and haziness in her spine.  Two inconclusive spinal taps raised further concern.  Again, Abby had exhibited no symptoms.  To battle this second relapse, Abby began a daily metronomic chemotherapy regimen administered at home on July 20th, 2009 which continues through today.  Her most recent MRI on July 2, 2010 shows that this treatment is working.  There is no white tumor visible in her brain and spine.  There is only slight shadowing in the area of her brain where there was definitive tumor a year ago.  The top of her spine was deemed to have “no evidence of disease” and the residual area in the bottom part of her spine is less definitive and seems to be dissipating.  As a  result of all of the above, Abby has speech and processing delays, has suffered permanent hearing loss and is physically impaired with her balance issues and inability to consistently walk unassisted. Yet, Abby’s determined and fighting spirit pushes her forward each day.  She is our miracle girl!!

Since Abby’s cancer diagnosis, she has lived out the meaning of her middle name.  Abby is one of God’s special children and has faced all of her hospitalizations, treatments and pricks and prods with such grace that can only come from above.  Her big blue green eyes and her beautiful heartwarming smile connect you to her immediately. She enjoys playing with her baby dolls, her kitchen, pop beads, sticker books, painting, arts and crafts, books, and board and card games.  She is a girly girl from head to toe, loving the color pink, hair accessories, jewelry and painted nails.  She loves her family with the most sincere affection and is happiest when we are all with her.  Abby’s proudest recent accomplishment was losing her first tooth!  This was her first age appropriate development since diagnosis!  Way to go, Abby!!  Our Christian faith has been our stronghold throughout our journey with Abby, and we thank God for His provision for Abby and our family these past four years.  We continue to pray for complete and total healing and recovery for our Abby.

Thank you for helping find a CURE for Abby and the countless other children affected by this terrible disease!

About September & CURE’S Kids Conquer Cancer One Day at a Time:

September is recognized as National Childhood Cancer Awareness Month. This September, CURE Childhood Cancer has committed to raising awareness and raising money to help find a cure for childhood cancer in our lifetime and put an end to this terrible disease through a special program CURE’s Kids Conquer Cancer One Day at a Time!

Please help us in our goal of raising $60,000 in the month of September while honoring special CURE kids each day of the month who have been affected by childhood cancer.

For more information, please click here.

About CURE Childhood Cancer:

Founded in 1975, CURE Childhood Cancer is dedicated to conquering childhood cancer through research, education and support of patients and their families. Since its establishment as a grass-roots organization, CURE has focused its efforts on improving the care, quality of life, and survival rate of children with cancer.

The founders, parents and a dedicated pediatric oncologist, joined forces to support laboratory research that would translate into immediate care for children with cancer.

Since that time, CURE has raised millions of dollars to fund cutting edge research at the Aflac Cancer Center Blood Disorders Service at Children’s Healthcare of Atlanta and Emory University School of Medicine.

Through innovative programming, CURE also provides support for stricken families, providing them comfort and support during their time of devastating need.

Donate to Abby’s Fund.

Visit us online at www.curechildhoodcancer.org for more information.


November 13th, 2009

Pace Academy Students Raise Money for CURE

DSC_0798Mary Hunter Cunningham and Kaitlyn Dinkins attend Pace Academy in Atlanta and both know girls battling cancer. Kaitlyn knows Amanda Riley through AAU basketball and Mary Hunter knows Abby Smith through Northside United Methodist Church. Amanda and Abby were both September CURE Kids and their friends wanted to raise money in their honor. Neither Amanda nor Abby attend Pace Academy, but the girls felt the Pace community, along with family and friends, would support their efforts to raise money for CURE Childhood Cancer.

After talking to the Pace Athletic Director and their class dean, the girls came up with a truly fun fundraiser that both parents and students could participate in. Parents were asked to make a pledge for each point Pace athletes scored during one specific week in September. Fall sporting events include football, volleyball, cross-country and softball.  Letters were sent to all Pace parents, family members as well as friends.  Pledges were mailed back to the girls; and Mary Hunter and Kaitlyn tracked the points scored.   Their efforts raised over $1700 for CURE!

CURE would like to thank Mary Hunter and Kaitlyn for being such great friends and wonderful ambassadors for CURE!


September 23rd, 2009

CURE Childhood Cancer Honors Abby Smith

September is National Childhood Cancer Awareness Month. Join us today, September 23, 2009 as CURE Childhood Cancer honors CURE Kid Abby Smith. Join our fight as CURE’s Kids Conquer Cancer One Day at a Time! Donate to Abby’s Fund.

Abby Smith’s Story:

Abby Smith PhotoAbigail Grace Smith (aka Abby) has been battling cancer for more than half her life. In mid February 2006, Abby developed balance issues which were not allowing her to walk without falling. On March 3, 2006, Abby was diagnosed with a golf ball size medulloblastoma brain tumor at the age of 23 months old. She had a 100% tumor resection on March 6, 2006. Unfortunately, Abby developed posterior fossa syndrome within days after surgery which caused her to lose most of her gross and fine motor skill capability for a period of time. Abby initially underwent 4 cycles of chemotherapy, 30 days of radiation and then 8 maintenance cycles of chemotherapy (21 days on, 7 days off).

She completed her treatment in late May, 2007. Abby began thriving and improving and was a picture of health. After a routine follow-up head and spine MRI on September 28, 2007, Abby was diagnosed with drop metastases in her spine in multiple places. She exhibited no symptoms. All of Abby’s MRI’s and spinal taps had been clear to date with no evidence of cancer since March 6, 2006. From October 2007-March 2008, Abby endured three cycles of high dose ICE chemotherapy and a cord blood and bone marrow stem cell transplant. Abby spent 50% of this time in the hospital. Abby went on to receive 25 cranial/spinal proton beam radiation treatments during late May/June 2008. She completed her relapse treatment on June 30, 2008. Only two small places remained on Abby’s spine which continued to improve or stay stable.

For eleven months, Abby was on a 14 day cycle of Accutane as a drug/maintenance therapy. She continued to get stronger and thrive during this time. Fifty one weeks post relapse treatment, Abby had a routine follow-up MRI. Unfortunately, her scan revealed a grape size tumor in her head and haziness in her spine. Two inconclusive spinal taps raised further concern. Again, Abby showed no symptoms. Abby has started a metronome chemotherapy regimen with four drugs that are currently being administered at home on July 20, 2009 as we battle this second relapse. Abby has mostly recovered from her posterior fossa syndrome. She still has gag reflex issues, speech and processing delays and is still physically impaired with her balance issues and inability to consistently walk unassisted. She has suffered hearing loss from all of her treatments. We are continuing to pray for a complete and total healing and recovery.

Since Abby’s cancer diagnosis, she has lived out the meaning of her middle name. Abby is one of God’s special children and has faced all of her hospitalizations, treatments and pricks and prods with such grace that can only come from above. She is a very determined little girl and a true fighter. Her big blue green eyes and her beautiful heartwarming smile connect you to her immediately. She enjoys playing with her baby dolls, her kitchen, sticker books, painting, arts and crafts, books, and board and card games. She is girly girl from head to toe, loving the color pink, bows, jewelry and painted nails. She loves her family with the most sincere affection and is happiest when we are all with her. Our Christian faith has been our stronghold throughout our journey with Abby.

About September & CURE’S Kids Conquer Cancer One Day at a Time:

September is recognized as National Childhood Cancer Awareness Month. This September, CURE Childhood Cancer has committed to raising awareness and raising money to help find a cure for childhood cancer in our lifetime and put an end to this terrible disease through a special program CURE’s Kids Conquer Cancer One Day at a Time!

Please help us in our goal of raising $30,000 in the month of September while honoring special CURE kids each day of the month who have been affected by childhood cancer.

For more information, please click here.

About CURE Childhood Cancer:

Founded in 1975, CURE Childhood Cancer is dedicated to conquering childhood cancer through research, education and support of patients and their families. Since its establishment as a grass-roots organization, CURE has focused its efforts on improving the care, quality of life, and survival rate of children with cancer.

The founders, parents and a dedicated pediatric oncologist, joined forces to support laboratory research that would translate into immediate care for children with cancer.

Since that time, CURE has raised millions of dollars to fund cutting edge research at the Aflac Cancer Center Blood Disorders Service at Children’s Healthcare of Atlanta and Emory University School of Medicine.

Through innovative programming, CURE also provides support for stricken families, providing them comfort and support during their time of devastating need.

Donate to Abby’s Fund 

Visit us online at www.curechildhoodcancer.org for more information.


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    Nacho Average Taco

    For May and June, order the CURE taco at Red Pepper Taqueria and $1 will be donated to CURE. The taco features chargrilled calamari, crispy eggplant, tomato, onion, sorrel, and ginger pico.


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    Home by Dark - Singer/Songwriter Show

    Saturday June 1st at 8PM at Chukkar Farm in Alpharetta, GA. A portion of the proceeds will benefit CURE. Bring your own chairs and picnic for this beautiful outdoor music event. Click here to learn more.