Cure Childhood Cancer

CURE Blog


May 9th, 2013

CURE Honors Nurse Meg from Children’s Healthcare of Atlanta

For many CURE Childhood Cancer families, nurses become family. While they care for sick children, they also seem to find a way to care for their entire families. Nurses know the power of a kind word, a caring touch, a sympathetic ear. They probe the depth of the human condition – the strength and suffering of the body, mind, heart, and spirit.

During this Nurses’ Week, CURE celebrates our nurses, each of whom truly embodies the spirit of giving and caring at its finest, and is highlighting some of those who are helping our families each and every day.

Meet, Meg Bendik, a nurse who treats our families at Scottish Rite.

“I became a nurse because I wanted to be able to spend quality time helping people, and I loved the holistic philosophy of nursing. I think there is something really special and inspiring about taking care of someone when they are at their worst.

Meg Benedict Photo I rowed in high school and college with Sam Robb‘s sister Liz; her and her family’s commitment to a cure was so inspiring, and I wanted to be a part of curing other kid’s disease. From a nursing perspective, I liked the complexity and acuity of the patient’s problems and how the oncology knowledge base is always changing; it lets my nerdy side shine. I love how forgiving kids are, and I love being able to act like a goofball at work!

The number one struggle I face is how much is out of our control. As hard as we may try, there are some times where it seems like a never-ending uphill battle to make patients comfortable. I wish I had an everlasting bag of medication and tricks in my pocket. Watching kids endure all the nasty side effects of toxic chemo and radiation wears on the soul. I have to constantly remember all the patients that are able to conquer cancer with our help and not focus on all of the discomforts of treatment and the sadness of relapses and death. A day at work sometimes feels like a war zone; being a soldier against cancer is emotionally, mentally, and physically draining, but the cute kid in the bed, blowing kisses at you despite spending the majority of her night puking is worth every second.

Seeing kids finish treatment and getting to do normal kid stuff brings me so much joy. I love watching the transition from “sick, skinny, bald, and pale” to healthy and plump with a full head of hair. Getting to know the families and getting to play pranks and act like a kid myself makes my job fun. The little thank you’s, doodles, and notes from families may seem small, but they are my motivation to keep coming back.

It is my goal every day to make my patients and their parents smile at least once, no matter how bad the shift. I try to make the kids as comfortable as possible during their illness and to help give their families a little peace of mind as best I can.”


May 6th, 2013

CURE Honors Nurse Karen in South Georgia

For many CURE Childhood Cancer families, nurses become family. While they care for sick children, they also seem to find a way to care for their entire families. Nurses know the power of a kind word, a caring touch, a sympathetic ear. They probe the depth of the human condition – the strength and suffering of the body, mind, heart, and spirit.

During this Nurses’ Week, CURE celebrates our nurses, each of whom truly embodies the spirit of giving and caring at its finest, and is highlighting some of those who are helping our families each and every day.

Meet, Karen, a nurse who treats our families in South Georgia.

“I feel so honored to be spotlighted by CURE. Thank you for the opportunity to share my wonderful experiences with such special patients and families.

Nurse Appreciation WeekThe majority of my nursing career has been spent on the Hematology/Oncology/BMT unit at Nationwide Children’s Hospital in Columbus, Ohio. I worked there for 13 years as a senior staff/charge nurse. This is where I fell in love with such a very special patient population – children with cancer.

Children diagnosed with cancer and their families hold a special place in my heart. The long journey they go through with the fear and reality of diagnosis, the months or years of treatment, and the physical and emotional recovery is so inspiring. As a pediatric oncology nurse, I am so honored to be a part of that journey by helping educate and comfort the kids and their families in any way I can.

Over the years, I have had the privilege to witness how much strength and courage a child with cancer has. A great example of that strength is about a little 8 year old girl diagnosed with ALL who would occupy her time during her long hospital stays by making beautiful bracelets to raise money for other kids with cancer. Such an inspiration!” 

Thank you, Karen, for all that you do for our children and families!


May 1st, 2013

Dinner for Silas Raises Over $5,000

Last December, the Eta Rho Chapter of Sigma Sigma Sigma volunteered at CURE’s Holiday Celebration Party in Savannah and left the event with a new-found awareness of the work that CURE Childhood Cancer does with our families every day.

It was there that the Tri Sigmas first met Silas and began to follow his Facebook Page.

Silas In love with his encouraging spirit and wonderful family, the Tri Sigmas were devastated to learn that Silas was out of treatment options and would soon be under the care of hospice.  As a result, they reached out to the family with the offer of a fundraiser and, upon the family’s request, turned Dinner for Silas into a way to raise money for CURE.

Catie Sykes, the Tri Sigma who coordinated the dinner in April, worked very hard to pull off an event, for the entire community, that would raise awareness and funding for CURE.  Generously, Matt Starling, the owner of Smoke Station BBQ in Savannah, offered to host the event and help defray costs so that every penny could go to CURE.

According to Sykes, the Eta Rho Chapter of Tri Sigma has now made it their mission to raise money to fund childhood cancer research in honor of Silas. “Honestly, he is the wisest 4 year old I have ever seen. Especially with the types of things he’s been dealing with, you would never be able to tell because, honestly, he just radiates light,” says Sykes.

Silas People were lining the sidewalk outside the restaurant before the doors even opened, including those who were caregivers to Silas from The Children’s Hospital at Memorial University Medical Center, students who know the Tri Sigmas, families that CURE supports through our patient and family services programming, and locals who heard about the dinner through social media outlets and the local news stations.  While Silas is under the care of hospice and could not come, his family was represented by his aunt Amber and older brother, Gideon.

We would like to personally thank everyone who helped spread awareness of Silas and this fundraising dinner. As a result of your support, Tri Sigma was able to raise $5,100 for childhood cancer research!


April 18th, 2013

Dinner for Silas, A Boy Battling Liver Cancer

Come help the ladies of Sigma Sigma Sigma raise money in honor of Silas Edenfield, a 4 year old boy who has been battling liver cancer. Recently, his cancer has spread to his lungs and there is “no curative treatment”.

Silas In order to raise money for childhood cancer research, Sigma Sigma Sigma is holding a dinner at Smoke Station BBQ in Savannah, GA. The restaurant is usually closed on this day but will be open just for this dinner. Tickets are $6 each for a BBQ sandwich, chips, and a drink. $5.11 of each ticket will be donated to CURE Childhood Cancer. Also, an inflatable will be at the dinner for children to enjoy.

Dinner for Silas
April 22, 2013
6:00 P.M.Smoke Station BBQ
6724 Waters Avenue Savannah, GA 31406

Donations will also be accepted during the event or at http://www.razoo.com/story/Benefit-For-Silas-Edenfield

We hope to see everyone in South Georgia at the dinner!


April 17th, 2013

Family Support Team Makes All The Difference

When a child is diagnosed with cancer, a family’s world is turned upside down. The diagnosis comes with so many unknowns. A parent’s questions change from, “What are we having for dinner tonight?” and “What did you do at school today?” to “Can my child attend school, and if not what then?” and “Who will explain cancer to my child in terms they will understand?”

8029-023Parents wonder, “Who will help my child manage uncomfortable procedures,” “Is there someone who can support our family spiritually or hold my hand while waiting on test results that might confirm my fears?”  “Can someone help our family deal with the anger, sadness or stress my child is feeling?” “Who will celebrate with us when my child has a good day while inpatient because they understand what our family is faced with each day?”

When a family receives a diagnosis of pediatric cancer, the answers to these questions and many others are most often answered by a member of the child’s Family Support Team. This team of professionals assigned to a patient upon diagnosis might include a childlife specialist, chaplain, teacher, psychologist and social worker. These everyday heroes walk with the family through each step of a child’s diagnosis and treatment. Family Support Teams are made up of special individuals who dedicate themselves to making a difference for the children and entire families they support. They recognize each patient is unique and treat the “whole” child while addressing the emotional, social, physical and spiritual needs of each patient.

Please join CURE Childhood Cancer as we recognize and thank Family Support Team members everywhere who not only support the patients and their families, but also work diligently with the patient’s medical care team to provide the highest level of care for each patient.


March 28th, 2013

Girls Night Out at Turner Field to Benefit CURE

Are you a Braves fan? Are you looking to plan a night out with some of your best gal pals?

Women of all ages are invited to join CURE Childhood Cancer for Girls Night Out at Turner Field Friday May 17, 2013. Enjoy a pregame party in Right Field Patio from 5:30-7:30 pm before watching the Braves take on the L.A. Dodgers!

Girls Night Out at Turner Field

Your ticket purchase ($38) includes:

- Outfield seat
-A Girls’s Night Out Atlanta Braves Tervis Tumbler
-A feather boa
-A $5 donation to CURE
-Firework show after the game

For groups of 20 or more, please contact Stacey Nicely at 404.614.1325.

To purchase tickets, click here.


March 12th, 2013

CURE Annual Picnic: A Day of Food and Fun

The CURE Childhood Cancer Annual Picnic is a wonderful day of fun for children fighting cancer and their families. It is a great way connect with others and become part of a great support network.

8035-1294Childhood cancer patients, survivors, and their families and also families who have lost children to cancer are invited to the CURE Childhood Cancer Annual Picnic on Sunday, May 5, 2013 beginning at 10:30 am at Concourse Office Park (I-285 and Peachtree Dunwoody Road). In addition, Folks Southern Kitchen will provide lunch.

The picnic provides a positive, uplifting environment allowing people affected by childhood cancer to share compassion and provide support.

In addition to great food, this year’s picnic will feature inflatables, carnival games, special arts and crafts, relay races, obstacle courses, and many other fun activities. The picnic is free of charge for families affected by childhood cancer as well as Lauren’s Run participants.

No registration is necessary. We hope to see everyone there!

Click here to see photos from past events.


February 28th, 2013

CURE’s Youth Council Organizes Fundraiser for Childhood Cancer Patients

CURE Childhood Cancer‘s Youth Council has organized a fundraiser dedicated to purchasing iPads for hospitalized patients. The iPads will allow for patients at Children’s Healthcare of Atlanta to have entertainment, as well as utilize Skype to stay connected with their friends and family.

California Pizza KitchenJoin us, Dine-in or Carry-Out, at California Pizza Kitchen on Thursday, March 7th, 2013 and 20% of your purchase will be donated to CURE! This offer is valid at the Atlantic Station, Lenox, Perimeter, Forum, North Point and Pine Straw locations.

You MUST print this flyer and give it to your server in order for CURE to receive a donation.

Mark your calendars now and remember to eat lunch or dinner at CPK on March 7th! Your contributions will allow our Youth Council to provide childhood cancer patients with an important form of technology that enables them to stay connected to the world outside of the hospital.


February 14th, 2013

CURE Provides Comfort Kits

comfort kitA few months ago, Lisa Branch, CURE Childhood Cancer’s Director of Patient & Family Services, received a call from a hospital social worker asking if CURE would consider taking on a new project.  She explained that when a child has transitioned to hospice care while in the hospital, families tend to sit vigil at the child’s bedside, unwilling or unable to leave the room. She asked if we could consider putting together baskets with “comfort items” that could be delivered to each family in this circumstance.

“Of course we wanted to help fulfill this need,” says Lisa. ”My heart broke listening to the social worker explain the situation. Providing ‘Comfort Kits’ is really the least we can do for these families.”

CURE Comfort Kits are baskets filled with items such as snacks, gum, peppermints, coffee, tea, hot chocolate, a coffee mug, chapstick, lotions, soft Kleenex, and other items we hope will offer a small amount of comfort to the families. When the Comfort Kits are delivered to the room, the social workers also place a small cd player and instant hot water dispenser in the room for families to use, both donated by CURE.

If you would like to help with Comfort Kits by donating large baskets or items to fill the baskets, please contact Lisa Branch at lisa@curechildhoodcancer.org or 770-986-0035 ext. 22.


February 11th, 2013

Curing Childhood Cancer and Other Diseases – Starting with a Single Molecule

Known as a master of medical discoveries, Kevin Bunting, M.D., currently is studying a single molecule that may help him achieve his goal of curing several childhood cancers and other diseases. Dr. Bunting is a CURE funded researcher at the Aflac Cancer Center and Blood Disorders Service of Children’s Healthcare of Atlanta.

Dr. BuntingThe focus of Dr. Bunting’s research is to understand how healthy and abnormal blood stem cells develop at the molecular level. He is working toward finding less toxic, more therapeutic treatment options for childhood cancers and other diseases which affect much of the population.

For example, in children from birth to age 14, leukemia accounts for about 31 percent of all cancers. Meanwhile, 400 infants are born with hemophilia each year, and sickle cell disease affects between 70,000 and 100,000 Americans annually.

Today, the most common form of treatment for these diseases is radiation, which often destroys both the abnormal cells and surrounding healthy cells. Patients are left with dangerously low levels of immunity and extremely toxic side effects.

Dr. Bunting specializes in studying a molecule called STAT5, which shows great promise as a treatment which would greatly reduce unwanted side effects. In fact, STAT5 could lead to a revolutionary treatment of the previously mentioned childhood diseases, among many others.

Known as a transcription factor, the STAT5 molecule regulates the functions of many other important molecules. These other molecules determine how well stem cells reside in bone marrow and how quickly they duplicate.

By removing or changing STAT5 in some way, Dr. Bunting has discovered the remaining STAT5-deficient cells can survive and continue to reproduce healthy cells—while losing the ability to reproduce abnormal cells. Dr. Bunting quickly realized the potential magnitude of this discovery—to develop an actual cure for blood disorders, pediatric cancers and other illnesses in children.

By eliminating STAT5, it even may be possible to graft healthy stem cells where cancerous tissues were previously located. Dr. Bunting said of this technique, “I study how you get existing stem cells to leave and die and allow the new ones to take their place—basically it’s musical chairs.”

If STAT5 molecules can be reduced or eliminated in bone marrow, it would allow a physician to prune out only the bad stem cells (like a gardener) instead of bulldozing through both the bad and surrounding healthy stem cells (like a landscaper).

“Right now,” said Dr. Bunting, “radiation wipes out everything.” But this potential new treatment would reverse this unwanted effect, producing a much less toxic treatment that does not damage the DNA. In the future, it could also have many more medical uses. For example, it could be adapted to reduce the risk of rejection in solid organ transplants.

As part of his ongoing research, Dr. Bunting regularly shares information with the several other labs also studying STAT5 across the country. By doing this, researchers can share information, avoid duplicating their efforts and shorten the amount of time it will take to find a viable, STAT5-based treatment option.  CURE is highly supportive of these collaborative efforts.

Since his discovery of the role of STAT5, Dr. Bunting has been studying readily available drugs to find candidates that can recreate the STAT5-deficient effect in cells, and has recently received a grant from CURE to explore targeted therapies using FDA-approved drugs. Dr. Bunting hopes to identify new therapeutic drug combinations that can mimic a STAT5 deficiency in the blood stem cells, thereby curing these diseases in live test subjects.

Other doctors are now basing their research efforts on Dr. Bunting’s initial findings regarding STAT5. For example, Zhengqi Wang, Ph.D., is also studying the STAT5 molecule and its regulation of healthy versus abnormal stem cells. Like Dr. Bunting, Dr. Wang is a researcher at the Aflac Cancer Center of Children’s.

Dr. Wang’s research builds on Dr. Bunting’s work by focusing specifically on STAT5-driven leukemias. Dr. Wang hopes to identify new therapeutic drug combinations which can mimic a STAT5 deficiency in blood stem cells that cures leukemia.


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    Nacho Average Taco

    For May and June, order the CURE taco at Red Pepper Taqueria and $1 will be donated to CURE. The taco features chargrilled calamari, crispy eggplant, tomato, onion, sorrel, and ginger pico.


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    Home by Dark - Singer/Songwriter Show

    Saturday June 1st at 8PM at Chukkar Farm in Alpharetta, GA. A portion of the proceeds will benefit CURE. Bring your own chairs and picnic for this beautiful outdoor music event. Click here to learn more.