Cure Childhood Cancer

CURE Blog


September 2nd, 2014

CURE Childhood Cancer Honors Joshua Mack

September is National Childhood Cancer Awareness Month. Join us today, September 2, 2014 as CURE Childhood Cancer honors Joshua Mack. Join our fight as CURE’s Kids Conquer Cancer One Day at a Time! Donate to Jushua’s fundraising page. 

Joshua Mack PhotoMove over Oprah… there’s a new kid in town! And when we say “kid,” we mean it – literally. Eleven year old Josh Mack wants to be a talk show host and take over where Oprah Winfrey left off, and he’s not about to let cancer stand in his way.

A little over two years ago, Josh, an outgoing, healthy and typical 7 year old boy growing up in Cincinnati, starting getting sick… a lot. He had very high fevers, and mouth sores so bad inside and out that he couldn’t eat. He started to lose a good deal of weight… troubling for a child who was already thin. His pediatrician figured it was some sort of virus, but Josh’s mom, Andrea, knew something else was wrong. She treated his fever so Josh could attend his second grade Valentine’s party, but he came home shivering with a temperature of 103.5. The next day, they were at a satellite hospital of Children’s Hospital of Cincinnati for a complete blood count. Then, they waited. “I was actually going to the beauty salon when I got the call that Joshua had little to no white blood cells in his body,” Andrea said. “I had to sit in front of the house to get myself together before I went in to tell Josh and my husband that we needed to go over to the hospital.”

The doctors started running tests, but at first it wasn’t clear what was wrong with Josh. He was screened for all types of viruses. His mom would cross them off a list as test after test came back negative. “One day, I realized I had crossed them all off in my notebook and my heart sank. What could it be? In my mind we were headed home with a whole lot of antibiotics. The big 8th birthday party was planned at the popular inflatable place! We had to go home.”

Doctors decided the next step was a bone marrow aspiration. The doctor who performed the procedure told the Mack’s it was very difficult to get into the bone. They later learned the cancer cells were the reason. The procedure made Josh achy all over.

On February 22nd, Josh’s doctor needed to talk with Andrea, but this time, instead of talking outside his hospital room like usual, he asked to talk with her down the hall, in a conference room. “It was the longest walk of my life,” said Andrea. “My husband was at home where I had sent him to install our new dishwasher. We hadn’t expected any word until the next day. It was surreal to hear the words Leukemia and my only child spoken in one sentence.”

Andrea recalls the next day was a blur as they were moved to the oncology unit. They had to tell Josh what was happening. Andrea and Richard brought Josh back to his room from the playroom to tell him the news. He looked at them and said, “Is that all? You could have told me that in the playroom. Can I go back?” Turns out, that was a good indication of how Josh was going to handle his diagnosis and treatment. During his five weeks in the hospital, he decorated his room and became the darling of the playroom. He made suggestions to the staff about fun things to do there. They set up a “play” restaurant, with other patients helping serve and making menus. ”It was his world away from cancer treatment,” according to Andrea. “They allowed him to put up a sign that said ‘Josh’s Place’. If Josh had a slow day or didn’t feel like going, the Child Life staff would come looking for him!”

While in the hospital, Josh had a wonderful and reassuring message for his mom and dad. ”He told us one day in the midst of his treatment that God had told him he was already healed. That blew us away! He was so assured and my husband and I were in so much angst. I suppose that is why it’s said, ‘…a child shall lead them.’”

Josh did have some bad days when the treatment zapped his energy and spirit. In an effort to cheer him up, a hospital social worker and doctor told Josh about the “Make a Wish” program. His wish was to meet the person that ran the hospital, and to become a famous talk show host and take over where Oprah Winfrey left off. Josh practiced and honed his skills by interviewing his parents, who played the part of celebrities and news makers. Mom and dad recorded all the interviews. A star was born!

In July of 2011, Josh’s health was improving and his wish came true. He met and interviewed the CEO of Cincinnati Children’s Hospital. During their chat, Josh “grilled” Michael Fisher on the hospital playroom, asking him to expand it. The interview netted big results. The playroom was expanded! Josh loved the entire experience and he and Mr. Fisher became fast friends. Josh returned the favor by speaking at events and fundraisers, at Mr. Fisher’s request. The two still talk and email today, long after Josh’s hospital stay.

Through good times and tough times, Josh remained a great patient. Sometimes the anemia, fever, low blood counts and severe back pain kept him out of school for weeks at a time. He is experiencing some issues with his memory and is having some difficulties with math. But this trooper has still managed to make the honor roll at school! He still smiles and laughs and still plans on being famous, participating in every article, photo shoot or television interview that’s asked of him, and taking each very seriously, especially if it helps to spread the word about the need to find a cure for childhood cancer.

Screen-Shot-2012-09-07-at-1.56.52-PM27-150x1503The Mack family relocated to Marietta and say they’ve found a supportive and caring treatment team at Children’s Healthcare of Atlanta at Scottish Rite. The whole family is looking forward to August, which will mark his first year as a survivor! “We are thankful for every doctor, nurse, child life specialist, chaplain and anyone else who we have come in contact with, who have made it possible for us to continue to hug our Joshua,” said Andrea. And don’t be surprised if someday, when you’re looking for something to watch on TV, you see that sweet, healthy boy with the big smile hosting “The Josh Mack Show,” perhaps sharing the good news about a cure for childhood cancer, and bigger playrooms everywhere.


September 2nd, 2014

CURE Childhood Cancer Honors Silas Edenfield

September is National Childhood Cancer Awareness Month. Join us today, September 2, 2014 as CURE Childhood Cancer honors CURE Kid Silas Edenfield. Join our fight as CURE’s Kids Conquer Cancer One Day at a Time! Donate to Silas’ fundraising page. 

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Silas Nathanael Edenfield was born on June 4th, 2008. He was our fourth son. He was a little ham and always saying silly things and making people laugh. He had a contagious smile and big, beautiful eyes. He loved his brothers and his momma and daddy, but most of all he loved Jesus.

At just three-and-a-half years old, his diagnosis was Stage IV Hepatoblastoma – liver cancer. Over the next 15 months, he had half a dozen surgeries, two of them were major. He had: over 20 rounds of chemotherapy, blood tests too numerous to count, CT scans, x-rays, MRIs, hospital stays, natural treatments, and yet, there was no cure. The beast shrugged off everything we threw at it. We prayed so hard, we prayed that the Lord would heal Silas in His way and in His time.

Silas was a brave boy. He was smart, smarter than most little boys his age. He was silly, sweet, he made people laugh, and everyone loved him. One day as I lay next to him on the bed, he said to me, “Momma, tell everyone to paint their fingernails gold for all of the kids with childhood cancer.” I posted this on his Facebook page and within a day, hundreds of people were posting pictures of their gold fingernails. I showed some to him and said, “Look what all of these people are doing for you!” He got upset and said, “No! Not for me! For the other children that have childhood cancer! I won’t have cancer soon.” He knew that soon, he would be in Heaven and would no longer suffering from this terrible disease.

On May 25th, 2013, just 10 days before his 5th birthday, Silas went home to Heaven. He is no longer suffering, no longer in pain. Yet I keep saying to myself, “he should be here.” When we should have been planning a birthday party but we were planning a funeral. He should be learning to read and ride a bicycle. He should be playing with his brothers and making everyone laugh, but he is not here.

Screen-Shot-2012-09-07-at-1.56.52-PM27-150x1503There are answers out there. There is a reason kids get cancer, there are cures for all types of cancer. We need awareness, support, funding, and research to get to where we can find those answers and those cures, so that other children don’t have to leave us too soon.

We miss you Silas.


September 1st, 2014

CURE Childhood Cancer Honors Wil Senn

September is National Childhood Cancer Awareness Month. Join us today, September 1, 2014 as CURE Childhood Cancer honors Wil Senn. Join our fight as CURE’s Kids Conquer Cancer One Day at a Time! Donate to Wil’s fundraising page. 

Wil Senn PhotoOur second son, Wilson Patrick – “WIL” – was born on August 17, 2007. He weighed nine pounds and 13 ounces. He was the most perfect baby! We never imagined three months later our whole world would be turned upside down.

It happened the week of Thanksgiving 2007. The Tuesday before Thanksgiving Day was normal. Wil went to sleep that night and woke up at two in the morning screaming. Nothing would calm him down. By eight in the morning, I was waiting for his pediatrician in her office. She felt his abdomen and knew immediately something was wrong. She sent us across the street to have an x-ray and then to our local Children’s Hospital. Once they “cathed” Wil, he stopped crying and six ounces of urine came out. He fell asleep and was scanned again. After a few minutes, the doctor came in and delivered a devastating blow. She said we needed to get to Egleston in Atlanta. They were expecting us. We packed and left town within an hour. After fourteen long hours in the Emergency Room, we were sent to the third floor – The Aflac Cancer floor! The walk down that hallway was so scary and so long. The baldheads, the kids with IV poles and mask on – it was terrifying! I could never imagine that within a few weeks the cancer floor would feel like home. Within a few hours (Thanksgiving Day) we were introduced to the most amazing people.

Surgeons, an oncologist, nurses, and our friends from CURE all came to the rescue. They showered us with friendship, love and most importantly HOPE. We were told our son had cancer but never once did they make us feel that it was a death sentence. They gave us HOPE and made us Believe that we were going to survive this cancer.

Two days after being diagnosed with Stage III Neuroblastoma, our three month old son was carried off to surgery to have: a biopsy of the tumor, port implanted, bone marrow aspirations and a supapubic catheter implanted. After a three-hour surgery, he was brought back to us where we embraced him, and took a deep breath to prepare for the next step.

Back on the Aflac floor again, his port was accessed for the first time and the first round of chemo began. He had an EKG, bone scans, MIBG injection, and MIBG scan. The next months consisted of more chemo, scans, clamping his cath off to see if he could finally urinate on his own. I remember the first urine shower we got and we laughed, cheered and cried. He has advanced to Survivor Clinic and is no longer scanned yearly. He is six years off therapy!

Screen-Shot-2012-09-07-at-1.56.52-PM27-150x1503Now, our seven-year-old, Cancer Survivor is thriving! This year his All Star Baseball team traveled to Gulfport, MS to play in the USSSA Little League World Series where they placed 2nd! He has started 1st grade and is Living and Loving LIFE! We are so thankful for where he has been and what life has to hold for him. Because of CURE’s dedication to research for children’s cancer I am a mother of a childhood cancer survivor. With your help in sponsorship of CURE Childhood Cancer, we will continue on that path and so will so many other families.

Wilson’s Mom (Mary Senn)


September 1st, 2014

CURE Childhood Cancer Honors Team Thomasville

September is National Childhood Cancer Awareness Month. Join us today, September 1, 2014 as CURE Childhood Cancer honors CURE Kid Team Thomasville. Join our fight as CURE’s Kids Conquer Cancer One Day at a Time! Donate to Team Thomasville’s fundraising page. 

Team Thomasville Photo

Matthew West, a contemporary Christian singer, has a song called “Do Something,” which is a top hit on local Christian radio stations. In the song, the writer questions all the hardships going on in the world and shakes his fist at Heaven and says, “God, why don’t you do something?” The lyrics continue, “God said, ‘I did… I created you!’”

How many times have we all probably questioned God about cancer diagnoses, especially in our children? How many of us are guilty of choosing to look the other way and not involve ourselves in the painful journeys of children with cancer? How many of us are actually making an effort to “Do Something?”

In Thomasville, Georgia, there is a small group of families who have been affected by childhood cancer. Families who are trying to raise awareness and funding. This will be our fifth year washing cars, selling gold bows, lemonade, and bake sale goodies. For those of us who have children who have survived cancer, we have been blessed beyond measure, and we are choosing to “Do Something” to pay it forward so that future children diagnosed with cancer will have the promise of a cure.

Read the words below by 13 year old, Julia Johnson, a survivor of Acute Lymphoblastic Leukemia:

Childhood Cancer Funding

Childhood cancer is the least funded of all types of cancers. Did you know that 720 children are diagnosed with cancer each day? 250 children die each day all around the world from cancer. If you think about it, that means about 70 children will be killed from cancer alone while we are at school today. Even with this saddening statistic, only 3.8% of federal funding goes to childhood cancer research. I believe that more funding should be provided for childhood cancer and that the child’s family should be helped emotionally, spiritually, and even financially if needed. No child should have to be put on harsh treatments that many adults do not survive.

I believe these things because I am a survivor of acute lymphoblastic leukemia. I was diagnosed with cancer on Friday the 13th in March of 2009. I was eight years old. I went through two and a half years of chemotherapy, which included taking pills at home, shots given by my Dad, and weekly trips to Atlanta for rounds of chemo given through my port.

A port is a round, metal and silicone device that is placed under the skin of the chest wall. It is then connected to a vein, usually the jugular, and provides an entryway for chemo and other drugs. This is one fairly modern invention that allows much easier access to the blood stream.

Childhood cancer is different, because unlike adulthood cancer, it rarely has a known cause. Also, children’s bodies react differently to the harsh drugs that were intended for adults. This is because a child’s fragile body is still developing and an adult’s is finished growing. This is the reason that about 66% of pediatric cancer patients have chronic conditions after treatment. If there was more funding for pediatric cancer, children might survive and survive without chronic diseases. Cancer in children also occurs in different places than adults. A tumor that normally occurs in one place in an adult often will be in a totally different place in a child.

I believe that families with pediatric cancer patients should get support financially because the cost of chemotherapy is very steep, which can leave families with a huge burden if they do not have suitable insurance. There are some nonprofit foundations that help with these issues, but they are not as mainstream as most cancer foundations. One of these organizations is CURE Childhood Cancer. This foundation provides emotional support by visiting children while they’re in the hospital. It also provides families with supplies they may need while they are residing in the hospital, and funds studies that are researching childhood cancer.

Though there are many foundations for childhood cancer research and support for families, they receive much less than a lot of charities. I believe that pediatric cancer is one of the most underfunded cancers. However, all types of cancer research agree on one statement: that no one should ever have to suffer through cancer.

And as the words to Matthew West’s song go,
“If not us, then who?
If not me and you,
Right now, it’s time for us to do something.
Screen-Shot-2012-09-07-at-1.56.52-PM27-150x1503If not now, then when
Will we see an end
To all this pain?
It’s not enough to do nothing,
It’s time for us to do something.”

Please consider what you can do to help support CURE Childhood Cancer.


September 1st, 2014

CURE Childhood Cancer Honors Bailey Moody

September is National Childhood Cancer Awareness Month. Join us today, September 1, 2014 as CURE Childhood Cancer honors Bailey Moody. Join our fight as CURE’s Kids Conquer Cancer One Day at a Time! Donate to Bailey’s fundraising page. 

Beiley Moody Photo Her Page

Our daughter, Bailey, was a healthy and active ten year old. As Spring of 2012 approached, she had been complaining of knee pain for about two months. She was very athletic and participated in many sports, so we attributed it to an overuse injury. But the pain did not improve and after a terrifying week that included an x-ray, MRI and a biopsy, we were given the shocking news that she had a malignant bone tumor in her lower femur that had also invaded her knee.

In the span of five days, we went from a normal, happy family, to a family of a child with osteosarcoma. Osteosarcoma is a very aggressive bone cancer, and thus, the treatment is vigorous as well. It consists of ten weeks of chemotherapy, then surgery to resect the tumor, followed by another twenty weeks of chemotherapy.

Learning that your child has cancer is earth-shattering; however, just a few short weeks after her diagnosis, we also discovered that the options for tumor removal were equally as life-altering. They were not choices any parent ever imagines making. After cancer, Bailey’s hope was to be able to return to her active, athletic lifestyle, so she decided on a form of amputation known as rotationplasty because it would offer her the best opportunity of doing so.

On June 5, 2012, the tumor-infected area of her leg was removed and the bottom portion of her leg was rotated 180 degrees and reattached, thus allowing her ankle to become her new knee. While it looks unusual, it was, for numerous reasons, the most functional and least risky of any of the options. She now wears a prosthetic on the bottom portion of her leg and after a significant amount of hard work, has returned to almost all of the activities she was doing prior to cancer.

Bailey finished treatment in October of 2012 and has shown no evidence of disease (NED) for 18-months. Due to both the possibility of recurrence as well as the toxicity of the chemotherapy drugs she endured, Bailey will continue to be monitored frequently. Our prayer is that she will remain cancer free for the next seventy or eighty years.

While this has been an unbelievably difficult and unexpected journey, we know that God has carried us both miraculously and in the tangible hands of our community. We are trusting Him to give us the grace and stamina we need to travel this unexpected path. We also feel that our eyes were opened to this horrific world of childhood cancer so that we can passionately fight for the kids who cannot fight for themselves.

Screen-Shot-2012-09-07-at-1.56.52-PM27-150x1503It is imperative that we raise awareness and funding for more effective and less toxic treatments. It is crucial to find a cure, but it is also critical to develop medicines that do not destroy hearing, cardiac function, cause infertility, impair cognitive ability, cause secondary cancers or do any of the other damage on the list of possible late-effects. The horror that cancer families are forced to walk through is tragic and no child should have to deal with this level of fear and pain. These kids need us to care, but more importantly, they need us to act. We must find better treatments. Children deserve a chance at a normal, happy, healthy life and families must have hope. Please join us in this fight!


August 19th, 2014

Spend your September Afternoons at Teddy Bear Tea at the St. Regis

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In honor of Childhood Cancer Awareness month, St. Regis Atlanta will host a Teddy Bear Tea from 2:30-4 pm every day during the month of September. Guests can enjoy a delicious, classic menu of savory and sweet selections and beverages, and 5% of all sales will go to CURE Childhood Cancer.

$48 per guest includes the featured Afternoon Tea menu, a glass of sparkling wine and complimentary valet parking. A $40 option without the glass of sparkling wine is also available. Children under 12 are welcome at $22 a ticket.

Afternoon Tea will include a few savory selections such as smoked salmon crepe with fried caper, as well as a cucumber and tomato sandwich with lemon aioli on white bread. There will also be a few sweet selections such as strawberries and cream and gingerbread tennis racket. We hope you will devote some of your afternoons in September to support childhood cancer research.

 Click HERE to learn more about the St. Regis Afternoon Tea Experience. Call Astor Court at (404) 563-7997 to make your reservation today!


July 25th, 2014

The 25th Annual 2014 Golf Classic

315The 25th Annual Golf Classic benefiting CURE Childhood Cancer will be held the last Friday in September – September 26th – at the beautiful Oaks Golf Course in Covington, GA. This event has raised $1.2 million in 24 years thanks to your generous support! To help up celebrate the 25th anniversary, let’s make it the biggest year yet. Help us reach our tournament goal of $50,000 which will be put towards CURE’s $2.5 million commitment to fund pediatric cancer research.

25th Annual Golf Classic
Friday, September 26, 2014
8:30 AM & 1:30 PM Shotgun Starts
Oaks Course in Covington, GA
Individual registration fee: $125
Foursome registration fee: $500
Register Now

Golfer registration fee includes golf, cart, breakfast, awards, snacks and beverages. There will be two shot-gun starts, 8:30 A.M. and 1:30 P.M. on a “first-to-register” basis. Each shotgun start is limited to 100 players, so register early! In addition, all golfers will be served lunch from 12:00-2:00 P.M.

404667_10151140939909504_1276105794_nSteps to Register Online:
1: Click this link
2: Enter your registration dollar amount under “donation”
3: Enter “Golf Classic” as your Program Area
4. Enter the names of your foursome players (if applicable) in the comments section
5: Enter your Payment Information

Steps to Register via Mail:
1. Click here to download the form
2. Fill out all information and mail to:
CURE Golf Classic
1117 Perimeter Center West, Suite N402
Atlanta, GA 30338

Become a Corporate Sponsor:

Sponsorship is critical to helping make this event a success. We are grateful to all of our sponsors and are still seeking partners for our 2014 Golf Classic. To download a sponsorship form, please click here.

Sponsor a  Hole $125 Hole sign
Sponsor a Hole & a Foursome $600 Foursome, hole sign
Sponsor a Beverage Cart $1,000 Cart banner (2 available)
Gold Corporate Sponsor I $500 Banner, award (no foursome)
Gold Corporate Sponsor II $1,000 Foursome, banner, award
Diamond Corporate Sponsor $2,500 Foursome large banner, award
Platinum Corporate Sponsor $5,000 Two foursomes, large banner, award
Presenting Corporate Sponsor $10,000 Four foursomes, large banner, recognition as presenting sponsor, logo on player’s favors, promotional items in goodies bags, acknowledgement in CURE newsletter

 

Become a Contest Sponsor:

Longest Drive Contest (4 available) $500 + contest prizes
Pitching Contest on Driving Range (4 available) $500 + contest prizes
Closest to the Pin Contest (4 available) $1,000 + contest prizes
Putting Contest (1 available) $1,500 + contest prizes

 

Click here to download the paper sponsorship form or click here to register for sponsorships online.

Steps to Register for Sponsorships Online:
1: Click this link
2: Enter your sponsorship dollar amount under “donation”
3: Enter “Golf Classic” as your Program Area
4. Specify your sponsorship level in the comments section
5: Enter your Payment Information

Steps to Register for Sponsorships via Mail:
1. Click here to download the form
2. Fill out all information and mail to:
CURE Golf Classic
1117 Perimeter Center West, Suite N402
Atlanta, GA 30338You may fax, mail or e-mail your completed form.

For your convenience we accept checks, Visa, MasterCard and American Express. For more information, you may contact CURE Childhood Cancer at 770.986.0035 or online at www.curechildhoodcancer.org.

For more information or questions, contact Joe Coleman at 770.484.1448 x103 or email joe.c@csrepair.com.


July 18th, 2014

CURE Partners with Kroger Community Rewards: Shop and Swipe for a Cure

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CURE Childhood Cancer is honored to be part of a charitable partnership with Kroger Community Rewards this year! When you shop at Kroger, your purchase will help CURE raise much-need funds for childhood cancer research. Kroger is donating over $750,000 to participating non-profits this year, which will be divided amongst all participants. The more times a CURE-registered Kroger Plus card is swiped, the higher the percentage CURE will receive!

Here are the instructions to participate: 

  1. Register your card online at Kroger Community Rewards (be sure to have your Kroger Plus card handy)
  2. Click on “Sign In / Register” (if you are a new online customer, you must click on “Sign Up Today” in the ‘New Customer?’ box)
  3. Sign up for a Kroger Rewards Account by entering your zip code, clicking on your favorite store and entering your email address. You will also need to create a password and agree to the terms and conditions
  4. You will then get a message to check your email inbox, using the email address you registered with. Click on the link within the body of the email
  5. After seeing a new window, click on “My Account” and use your email address and password to proceed to the next step
  6. Click on “Edit Kroger Community Rewards Information” and input your Kroger Plus card number
  7. Update or confirm your information
  8. Enter “CURE Childhood Cancer”, select organization from list and click on confirm
  9. To verify you are enrolled correctly, you will see CURE’s name on the right side of your information page

Remember: Purchases will not count until after the card is registered. Members must swipe their registered Kroger Plus card or use the phone number that is related to their registered Kroger Plus card when shopping for each purchase to count. 

Now, you can give back to CURE almost everyday as you run your grocery errands. Kroger Community Rewards makes fundraising easy-all you have to do is shop at Kroger and swipe your Plus Card! Make sure to tell your friends, co-workers and family members about this simple way to give back to children battling childhood cancer!


June 27th, 2014

David’s Story

CURE Childhood Cancer supports all of our children and their families throughout their journey with pediatric cancer. It is the stories of these brave children that motivate us each day. We share with you the story of one of our inspirational children – David.

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December 18, 2012 will forever be etched in our family’s minds for the rest of our lives. We look forward to a new date that will join it: the day we are told we are cancer free and done with our chemo and visits!

It all started on Halloween when David was too sick to go out trick or treating with his friends. David was sick off and on from then through December. At one time he got a fever of 104 and it took us a while to bring it down. He would have soccer practices and come home achy and have a fever. But a few hours later the fever would be gone. We thought it was a sport-induced fever but no one had heard of that. Then, David got the flu. Would it ever end? He was feeling better during Christmas but I thought I would take him to the pediatrician just to make sure he didn’t have mono or something because we had just been going to urgent cares. The pediatrician said she would put him on a Z-Tab and see if that would knock it out. If it came back, she said they would do blood work and see if it was maybe mono. I told her that’s what I thought it was. Since we both shared the same opinion, the pediatrician said she would test David for mono and was back in two minutes. David’s blood counts were off! She wanted to send David for labs. She started talking about what others might say. It could be Leukemia and other stuff but I think she was preparing me because she knew. She’s married to an oncologist. No biggy, I wasn’t worried. We went about our day but the doctor kept calling saying she hadn’t gotten the labs. I wasn’t calling her saying, “What have you heard?” She was calling me! By the end of the day she and her husband were mad. I kept telling them, “It’s ok and we’ll wait for tomorrow.”

The next day she put us at the top of her list. On December 18, she called with the worst words you will ever hear, “David has Leukemia!” We packed a bag for at least ten days to stay at Scottish Rite. Our journey began. The first day was the worst with telling everyone, all the tears and not knowing what to expect.

But by the next day, David was calm and laughed if I cried! He has never asked “why me?” He has so much faith in our God and that he has God’s peace and strength. Even in losing his hair, it’s his “new” life and he goes right along like it’s nothing! And now the kid that used to hate finger pricks just throws his arms out there to let the nurses do their thing. The thing that he misses most is being able to play soccer in High School and possibly in college. It’s something he’s wanted his whole life.

Speaking from a cancer point of view, David has really had it easy. We feel bad for all the meals, gifts and functions that are given to us. There are so many so worse-off. We are so used to being at the helping end that it had humbled us all. We can never say thank you enough! Now don’t get me wrong, David has two and a half more years to go through spinal taps, chemo, office visits and I’m sure along the way, hospital stays. But we will continue his fight. You never know what’s in store. We were in the Mountains when David had a mini stroke caused by a chemo that he was on. You do what you have to do and move to the next phase and pray that it doesn’t get worse. The staff at Aflac Cancer and Blood Disorders Center at Children’s Healthcare of Atlanta has been amazing. It’s like going to visit friends when we do go. It’s horrible when the hospital staff have become part of your list of friends and you know what’s going on in their lives!

BUT, the worst part of this whole journey is watching the other kids’ lives being taken away from their family and friends who love them so dearly. It is heart breaking and something that no family should have to go through. In the short nine months, we have lost five children that have touched our lives. As the months go on, that is what is draining. You want to do all you can do to help! These kids were so strong, brave and lit up your life! They weren’t wallowing in pity, but living their lives the best they could. One child had to endure nine years of all of this only to have his life taken at the age of 11. We can’t let this happen! We have to find a cure. This is not a “it’ll never happen to us!” It did happen to us! 400 kids in Georgia are diagnosed with cancer every year! So please give to CURE and let’s give these kids back their lives of dancing, cheering, playing sports and having fun which all kids should be able to do! Please give in honor of David and all of our friends that we have lost.


June 3rd, 2014

Make Father’s Day Special With Custom Cards From CURE

8029-044Every day, 720 children are diagnosed with cancer.  However, that number doesn’t even amount to the many families affected by childhood cancer on a daily basis. Whether your own child has suffered from cancer or you know of another family that has had to deal with this harsh reality, pediatric cancer affects all of us. As the lives of these children change, their parents are also thrown into this frightening world and faced to make difficult discussions and adjustments to their normal lives. We know how challenging, yet heroic it is to set aside your own needs to put the desires of a sick child first, so we never hesitate to let these parents know that their sacrifices are much appreciated.

In honor of Father’s Day, CURE Childhood Cancer has made special cards revealing the strength and guidance of our fathers. When a mother hears the words “your child has cancer,” it is hard to imagine enduring that pain alone without a husband or family there to provide extra care and support. A mother and father duo is an even stronger force against childhood cancer, and we want our dads to know how important they really are in this fight!

Screen-Shot-2014-05-13-at-4.59.21-PMFor just $20, you can purchase a pack of 5 folded Father’s Day cards, with envelopes and a touching quote from the CURE store. The quote written on the cards says, “A father is neither an anchor to hold us back, nor a sail to take us there, but a guiding light whose love shows us the way.” These words are perfect for any brother, husband, uncle, grandpa, son, cousin or dad. Please consider purchasing a pack of Father’s Day cards, which will benefit CURE while honoring the many fathers who are our backbones and the true bond that keeps our families together.

 


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    JOIN US! CURE'S KIDS CONQUER CANCER

    Would you like to share your child's story as part of our fundraising event, CURE's Kids Conquer Cancer One Day at a Time? Click here to learn more or email Lisa Branch at lisa@curechildhoodcancer.org.

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    10th ANNUAL "A TRIBUTE TO OUR QUIET HEROES"

    Tickets are on sale now for the 10th Annual luncheon celebrating the mothers of children diagnosed with cancer. Join us Saturday, September 27th at the InterContinental Buckhead. Click here to purchase tickets or learn more.