Cure Childhood Cancer

CURE Blog


September 20th, 2012

CURE Childhood Cancer Honors Eron Bing

September is National Childhood Cancer Awareness Month. Join us today, September 20, 2012 as CURE Childhood Cancer honors CURE Kid Eron Bing. Join our fight as CURE’s Kids Conquer Cancer One Day at a Time! Donate to Eron’s fund.

Eron Bing was born August 14, 1997, in Augusta, Georgia. He had always been a healthy child full of love and adventure. His favorite thing to do was go fishing every Sunday with his dad and siblings. After I brought my family to live in Atlanta for better opportunities that all seemed to change overnight.

On February 2, 2010, I received a phone call from Eron’s school (Bear Creek Middle School) saying he fell. His brother Eric called me after picking him up from school and said “I think Eron leg is broken.” After the ambulance came Eron was taken to Children Hospital. The doctors rushed to take x-rays of his leg and sure enough his left femur was broken. Eron went to surgery on February 3rd and a rod was placed in his femur from his hip down to his knee. April came and it was time for his first post up appointment and everything went well so he went back to school and finished off a great year.

Later, on in July Eron was complaining of severe pain in his hip and also we had noticed he had starting limping. I made an appointment to see his doctor and when Eron got there the doctor ordered a x-ray of Eron’s leg. When he looked at it there was an area on his hip that worried him. So the doctor called me in to his office and said we needed to do a biopsy of that area. He did not want to waste any time so the next day we went to the hospital and Eron had his biopsy. After the test was complete the doctor came in with the results and the look on his face was frightening. He told my son Eric and I that it was cancer known as Ewing’s Sarcoma. August fourth Eron received his first round of chemotherapy treatment. He went through fifteen rounds of chemo and thirty days of radiation treatment. Eron finished his last round of chemo on April sixteenth he went back to school in his wheelchair because he had lost about three inches in his leg. That did not stop my baby boy two weeks later he started walking with his crutches. When November came Eron had to go back to the hospital for surgery to have a partial hip replacement, because all of the chemo and radiation had weakened his hip bone.

Next, a few weeks after his surgery he was able to go back to school and he was excited because his doctor was able to get all three inches back in Eron’s leg. Now my son walks without any help no crutches or wheelchair needed. He will be starting high school this August a day before his birthday. Eron never did ask mommy why this had happen to him but, sometimes he would say “mommy I am so tired,” and as a mother and a parent I have never felt so helpless or angry at times. Only because I could not make my child feel better. Now Eron goes every four months for his checkup. The doctor told us one day “that if it was not for Eron’s injury we would not have ever known that he had cancer until it was too late.”

I hope I can one day find peace and not worry so much about will my son cancer will ever come back. I am so glad that Eron has no fear of anything. He is so outgoing and full of life. I pray for my family everyday and I am so proud and thankful for my baby boy Eron Bing the cancer survivor. Mommy loves you.


September 19th, 2012

CURE Childhood Cancer Honors Caleb Fornal

September is National Childhood Cancer Awareness Month. Join us today, September 19, 2012 as CURE Childhood Cancer honors CURE Kid Caleb Fornal. Join our fight as CURE’s Kids Conquer Cancer One Day at a Time! Donate to Caleb’s fund.

Caleb Fornal was an active four year old boy who loved playing soccer and golf. It wasn’t until a soccer injury had prompted his mother to question the orthopedic doctor that the unthinkable was a reality. After his fall, he spent the weekend going to an urgent care, children’s hospital, orthopedic doctor. Over the course of the weekend his arm injury quickly spread to his leg, where it left him unable to walk. Caleb’s mother questioned the doctor and refused to cast his leg knowing something else was wrong. After returning to the children’s hospital and a routine CBC was run she was told the most devastating news a mother could hear. ” We believe your child has leukemia.” On March 13, 2012, their lives came to a shattering halt, he was diagnosed with Acute Lymphoblastic Leukemia.

That day Caleb began his fight. The fight of his life.  He began induction therapy and encountered a big bump in the road. Just two weeks into treatment Caleb got a critical case of pancreatitis from one of the chemos. He battled through that and just proving how strong he is. By the end of the month Caleb reached the goal of remission, but was told more heart shattering news. His genetic testing showed he is hypodiploid and will require more intense treatment for the next three years.

Caleb is doing very well with treatment now. He has so many supporters, family and friends worldwide. He continues to share his contagious smile to all those around them and Fight Strong!

You can follow Caleb’s journey at
www.facebook.com/kickinitwithcaleb or www.helpcurecaleb.blogspot.com


September 19th, 2012

CURE Childhood Cancer Honors Maddie Briscoe

September is National Childhood Cancer Awareness Month. Join us today, September 19, 2012 as CURE Childhood Cancer honors CURE Kid Maddie Briscoe. Join our fight as CURE’s Kids Conquer Cancer One Day at a Time! Donate to Maddie’s fund.

Maddie was diagnosed with Stage 4 Neuoroblastoma the week of Labor day 2010 after complaining of back pain. After a couple of visits to Children’s Healthcare of Atlanta at Egleston, the doctors found 3 tumors in her.

One large tumor in her abdomen, and two smaller tumors. One in the chest and one on the spine. She went through 6 rounds of induction chemo, two surgeries, 2 stem cell transplants, 12 rounds of radiation and 6 rounds of antibody treatment with Accutane. The first six rounds of chemo alone shrunk the largest tumor alone from 13cm in diameter to 3cm in diameter and the other two tumors disappeared completely.

She was declared to have No Evidence of Disease (NED) just before the first of her stem cell transplants and has been in remission since. Maddie’s story touched many because of her endless enthusiasm and constant smiles.

She loves karate, arts and crafts and has been involved in softball both before and after her treatment. She is 9 years old and is going into the 4th grade. She has one older brother who she loves to play (and fight) with. They don’t act like it, but they are best friends. This fall, for the first time, she will be able to play in the Team Maddie benefit softball tournament, a local tournament that benefits children with cancer.


September 19th, 2012

CURE Childhood Cancer Honors Brenton Beshers

September is National Childhood Cancer Awareness Month. Join us today, September 19, 2012 as CURE Childhood Cancer honors CURE Kid Brenton Beshers. Join our fight as CURE’s Kids Conquer Cancer One Day at a Time! Donate to Brenton’s fund.

On 8/12/11 our family was devastated to learn our otherwise healthy 14 yr old son had ALL Leukemia. We learned after 3 months of chemo he would need a bone marrow transplant in order to try to save his life. On 12/20/11, with the help of his 7 yr old sister’s cells, who was a perfect match, he had the transplant.

After a long recovery which he still is going through, he is now 100% donor and 0% Leukemia! This is his story from his point of view:

“My name is Brenton Scott Beshers and every since I got Leukemia my life has changed quite a bit. I’m 15 years old, and I loved to play sports, which I know I can’t now until I get my strength up. Once I got this disease I couldn’t go to school and didn’t get to see my friends except for weekends. I had my family there for me and once I saw how they really cared, I knew for sure I was going to win my battle, especially with all the prayers I had. When they told me I would have to have a bone marrow transplant, I cried for the first time in the 3 months that I had been told I had cancer. Not because of sadness, because of the joy due to I knew I got an easier way out of all the treatments that other kids have to go through. It was still a great battle, and I now know I am on the home stretch to victory. When 12/20/12 gets here I will have won the one year mark. It is still a 24/7 battle just knowing it could come back at anytime. I will never forget 8/12/11, the date that changed my life forever, the day I was told ‘You have Leukemia.’”


September 18th, 2012

CURE Childhood Cancer Honors Colin Lochamy

September is National Childhood Cancer Awareness Month. Join us today, September 18, 2012 as CURE Childhood Cancer honors CURE Kid Colin Lochamy. Join our fight as CURE’s Kids Conquer Cancer One Day at a Time! Donate to Colin’s fund.

On Thursday, September 9, 2010, Colin was admitted to Scottish Rite for testing for possible Leukemia. We had a long week of waiting, but on Saturday, September 18th, we got confirmation that he has Acute Lymphoblastic Leukemia (ALL). He has been in remission since day 28 (which was the goal) and has done very well with treatment.

Today, Colin is 3 years old and just started preschool. He loves being outside – walking, riding his bike, sliding, swinging…anything as long as it is outside!

We want to join our journey with CURE to help with funding for research but also to help spread the word about childhood cancer. One of the things Colin had going for him from the beginning was how early his leukemia was caught. Even though the news was hard to hear, we are grateful that treatment was started quickly and things have gone well.

We thank you for your support.

Love and blessings,

The Lochamys
Allen, Michelle, Colin and Ethan


September 18th, 2012

CURE Childhood Cancer Honors Kayla Rodriguez

September is National Childhood Cancer Awareness Month. Join us today, September 18, 2012 as CURE Childhood Cancer honors CURE Kid Kayla Rodriguez. Join our fight as CURE’s Kids Conquer Cancer One Day at a Time! Donate to Kayla’s fund.

In May 2010, we were faced with the dreaded “C” word when we found out that our daughter, Kayla, had cancer.  It all started out with her 3 year wellness exam, which led to the discovery of a large mass in her abdomen, estimated at the time to be around 10cm.  She was immediately scheduled for a CT-scan where it was confirmed that she did have a mass in her abdomen stemming from her left ovary.  In meeting with her oncologist, we were told it was most likely either a germ cell tumor or a stromal tumor, both considered to be rare tumors for children. If it was a germ cell tumor, she would have to start chemo after surgery.  If it was the stromal tumor, treatment would be unknown until after the surgery.

We met with the surgeon and after examining her he told us his goal would be to remove the tumor in one piece with a vertical incision down the center of her stomach.  He would also being removing her ovary since the tumor was stemming from there.  He explained that until the tumor was sent to pathology, we wouldn’t know what kind of cells were in the tumor and what her treatment would be after.  Her surgery was on May 28, 2010.  They successfully removed her tumor in one piece and her left ovary and they didn’t see any cancer in the surrounding area.  The tumor weighed 2 lbs and measured 15 cm x 13 cm x 9 cm.  Kayla spent three days in the hospital and we anxiously waited to hear the pathology results.

Kayla’s tumor turned out to be a stromal tumor and the flush they did during surgery to determine if there were any cancer cells left in the area came back negative.  Since this is the rarest type of ovarian cancer in children, there weren’t enough studies to prove that chemo was needed or beneficial for a stromal tumor, so the surgery itself was considered her “cure”.  As her oncologist said, “this was the best possible outcome for this situation”, which was exactly what we had prayed for.  Today, Kayla is doing wonderful!  She continues to get checked to make sure she remains cancer free and thankfully, all her tests have come back perfect thus far!  We are so thankful that she is healthy and cancer free!

It’s hard to believe it’s been two years since we were faced with this.  Although Kayla was lucky enough to not have to endure a long battle, we don’t take that for granted.  Our short journey opened our eyes to the world of childhood cancer, which has inspired us to do what we can to give back and help make a difference in the lives of those who are still fighting.  It’s our hope and prayer that one day a cure is found that will free kids of this horrible disease so that they can live long, healthy lives free of extensive treatments and free of short and long term side effects.  Every $5, $10, $20 makes a difference!


September 17th, 2012

CURE Childhood Cancer Honors William Hackney

September is National Childhood Cancer Awareness Month. Join us today, September 17, 2012 as CURE Childhood Cancer honors CURE Kid William Hackney. Join our fight as CURE’s Kids Conquer Cancer One Day at a Time! Donate to William’s fund.

On September 17, 2010, a then three year old William was at the park with his grandmother and dropped his pants to pee on a tree. When he bet over to pick up his pants she noticed a large “lump” on his right buttock. William’s mom took him to the pediatrician and was sent immediately to the Emergency Room, where it was confirmed that the “lump” was a tumor.

Several days later William was diagnosed with Stage 3 embryonal rhabdomyosarcoma, an aggressive soft tissue cancer. It was nearly the size of a racquet ball. Of all the baths, trips to the potty, clothes changes, and doctor visits we never noticed it.

William endured 42 weeks of chemotherapy, surgery, four weeks of radiation therapy, and many, many trips to the clinic and hospital. He took it all like a champ. William has now been in remission for one year. He will have periodic scans for the rest of his life and has an increased risk of future cancers and “late effects” from some of his treatments.

We have grown tremendously as a family during this ordeal and feel blessed to have received such overwhelming support from family, friends, neighbors, co-workers, church members, doctors, nurses, and complete strangers. One of the organizations that has supported us during this experience is CURE, an Atlanta-based organization that funds childhood cancer research and helps families cope with the difficulties of raising a child with cancer. Our family would encourage anyone that wants to join the fight against childhood cancer to support CURE.


September 17th, 2012

CURE Childhood Cancer Honors Cordell McLendon

September is National Childhood Cancer Awareness Month. Join us today, September 17, 2012 as CURE Childhood Cancer honors CURE Kid Cordell McLendon. Join our fight as CURE’s Kids Conquer Cancer One Day at a Time! Donate to Cordell’s fund.

Five year old Cordell Travis McLendon was a happy, healthy five year old – or so it seemed. November 17, 2011 started as a normal day, with everyone getting ready for school and work. That afternoon, while sitting in the family room watching the kids play, Cordell’s father noticed his stomach was getting bigger. Concerned, he took Cordell to Hugh Spalding Children’s Hospital where they ran tests and immediately sent them to the Aflac Center of Children’s Healthcare of Atlanta for further tests. Something was terribly wrong.

I received a call from his father while at work, the doctor was asking to speak to me. I was terrified as I drove to the hospital, and once I arrived, the doctors explained that Cordell had something called Wilms Tumor, a cancerous tumor originating in the cells of the kidney. The tumor was covering his entire right kidney.

I was in total shock, feeling like someone had ripped my heart from my chest. Both his father and I broke down as our world turned upside down. The doctors assured us Cordell would be fine but all I could think of was his siblings and how they would react.

The doctors explained that since the tumor was covering Cordell’s entire right kidney, the kidney had to be removed in addition to the tumor. I felt breathless and kept asking myself “Why C.J.? Why my family?” Deep in my heart I knew I couldn’t question God, but I blamed myself and sometimes still do. I noticed earlier in the year his stomach didn’t look normal. It had grown just a little more than normal. I was just thinking it was from him eating so late in the day. But now I wonder how can a mother miss something like that? I ask myself that all the time, blaming myself for not knowing.

Surgery took place on November 23, 2011, the day before Thanksgiving. It was a success. Cordell was in pain for a couple of days but the pain subsided. He went through 18 weeks of chemotherapy after surgery and did very well through it all.

Now cordell is doing well. He loves to ride his bike and play football with his dad. He still has to go to the clinic every other month to get checked and make sure the cancer hasn’t returned.

Without the help from CURE I don’t know how my family and I would have made it. We are so grateful to CURE for always being there. Throughout this ordeal I have learned not to take life for granted. I have stop complaining about the small things because life is so precious and you only live once. We met different families who were experiencing the same things as my family, but more life threatening. So giving God the almighty praise is number 1 in my life because he brought us through it all.


September 17th, 2012

CURE Childhood Cancer Honors Addison Barber

September is National Childhood Cancer Awareness Month. Join us today, September 17, 2012 as CURE Childhood Cancer honors CURE Kid Addison Barber. Join our fight as CURE’s Kids Conquer Cancer One Day at a Time! Donate to Addison’s fund.

Addison’s Journey to fight Cancer

Addison was diagnosed with Bilateral Wilms tumor on April 17, 2012. Just a few days prior she was seen by her pediatrician for her 18 month well visit. We had noted her belly was always firm and distended so when we asked her Dr., he was concerned as there were no other symptoms. Addison was seen on Monday the 16th for an ultrasound and blood work. No less than 1 hr after the ultrasound was done we received news that they had found a “significant” tumor in her abdomen.

We were sent to All Children’s Hospital in St. Petersburg, FL that day and Addison was admitted and endured numerous scans, tests and procedures. She had a tumor encompassing almost all of her right kidney, two smaller tumors on her left kidney, and a few small nodules that had spread to her lungs. Her tumor was Stage V at diagnosis. She has completed 13 rounds of chemotherapy, she has begun daily radiation therapy which will be 11 days total. Addison had her right kidney removed along with the large tumor in July 2012.

Post surgery her cancer is now Stage II and she has recovered well so far. She will continue chemotherapy until October 2012 and have ongoing CT scans to evaluate her progress. She has been very strong, kept her energy up and continues to be active as a toddler. We look forward to hearing the words “cancer free” and “remission” and hope that no other child has to fight a battle against cancer!


September 16th, 2012

CURE Childhood Cancer Honors Pierce McCarthy

September is National Childhood Cancer Awareness Month. Join us today, September 16, 2012 as CURE Childhood Cancer honors CURE Kid Pierce McCarthy. Join our fight as CURE’s Kids Conquer Cancer One Day at a Time! Donate to Pierce’s fund.

One Monday morning in November 2011, our 7 year-old son Pierce woke up with a puffy right eye.  It looked like he had either slept on it wrong or he had been crying.  The next day it as worse and the doctor said he thought it was allergies.  After a week of progressive swelling in only his right eye, and listening acutely to Mommy’s gut instinct, every parent’s worst fear became a reality—Pierce was diagnosed with Embryonal Rhabdomyosarcoma, a rare and aggressive form of cancer of the smooth muscle.  Pierce’s tumor was about the size of walnut and was on the muscle on top of his eye that moves the eyeball up and down.

Pierce is our Superhero.  When I explained to him that there were some bad cells in his body and we need to get some medicine and help to the good cells fight the bad cells, Pierce simply asked, “Has the war started yet, Daddy?”  Since that moment, Pierce has done nothing but fight and we have done nothing but love and support him.  All we do is love support Pierce in any way we can and follow his lead.

Children with cancer are the most amazing people that I have ever met—and I am not just talking about Pierce.  The courage and strength exhibited by these little Superheroes every time they enter the clinic for their fight just leaves us in awe.  They are examples for us all as they exhibit courage and strength that we can all only hope that we have somewhere inside us.

Our lives were changed forever on that November morning.  From that lowest of lows moment and then moving forward through this fight, Pierce and our family has been lifted up and supported by organizations such as CURE.  Stated simply, CURE picked us up and allowed us to support Pierce in his fight.  We have found and been exposed to organizations that will forever have our support and CURE is just one example.  A Superheroes fight in this battle is life long and hard and we cherish organizations like CURE that help families love and support the Superhero in their life.

No child should have to endure chemotherapy, radiation, hospital stays, constant needle sticks, hair loss, mouth sores, nausea, and everything else that goes along with the fight these kids wake up with every day.  Please consider donating to CURE so that maybe, just maybe, someday in the future kids will no longer have to endure this fight and the Superheroes of the world can just be normal kids again.

 


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    JOIN US! CURE'S KIDS CONQUER CANCER

    Would you like to share your child's story as part of our fundraising event, CURE's Kids Conquer Cancer One Day at a Time? Click here to learn more or email Lisa Branch at lisa@curechildhoodcancer.org.

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    10th ANNUAL "A TRIBUTE TO OUR QUIET HEROES"

    Tickets are on sale now for the 10th Annual luncheon celebrating the mothers of children diagnosed with cancer. Join us Saturday, September 27th at the InterContinental Buckhead. Click here to purchase tickets or learn more.