September is National Childhood Cancer Awareness Month. Join us today, September 17, 2013 as CURE Childhood Cancer honors CURE Kid Madison Reese Jones. Join our fight as CURE’s Kids Conquer Cancer One Day at a Time! Donate to Madison’s fund.
Madison Reese Jones is the 7 year old daughter of Chip and Michelle Jones of Douglas, GA. Madison has 3 sisters, Courtney Brooke Jones 24, Amanda Leigh Jones 23 and Jaci Abriana Jones (Madison’s older twin sister) 7.
Madison and her sisters have always been healthy, except for the occasional cold, ear ache or sinus infection… Until December 14, 2009 (the day before Madison and Jaci’s 4th birthday) when Madison was put in the hospital for abdominal/leg pain and elevated blood counts. Every time someone asked where she hurt, it was the same response: her belly button. Her doctor asked another doctor to do a consult and he suggested they do exploratory surgery to make sure her appendix had not ruptured. I was so scared for Madison, and our preacher had come by the hospital to check on our family. The OR nurses came in to take Madison into surgery and I asked that he pray for her. Once he was finished praying, the nurses were wheeling Madison and me on her hospital bed to the OR. The anesthesiologist was standing at the nurses station with the surgeon and I overheard him asking the surgeon if he had viewed all of Madison’s lab results. He said yes. Then he asked the surgeon again, to which he replied, “Yes, I have seen both sets of her labs!” The anesthesiologist replied, “There are THREE sets of labs on Madison, NOT two!!”
The surgeon viewed Madison’s last set of labs, looked at me and said, “I can’t do surgery on her, she is bleeding inside somewhere.” Then he walked away. Before the nurses could get us back to Madison’s room, her doctor was on the phone with my husband, telling him that they were going to do a STAT CAT Scan of Madison’s abdomen with and without contrast and he would come to see us ASAP with the results. The test showed that Madison had an ileus (fecal impaction), so her doctor ordered some enemas for her, once the enemas started to work, her pain went away. Madison was released on Dec 15, 2009, on her birthday, just in time to go home and eat some cake with Jaci.
Madison’s follow-up visit was Dec 22, 2009. Her doctor was so happy about how “soft” her abdomen was. Things seemed to be back to “normal.” We were having Christmas dinner at my mom’s the same night. Madison was fine until we got home and her pain started all over again, just like the week before. I talked with my sister-in-law, a RN at our local hospital ER, and she suggested we try an enema, just to see if Madison could get some relief. We tried it and the enema did NOT help. It was a very long night until Madison’s doctors office opened and we were waiting there when they opened. By this time Madison was in so much pain and her poor little tummy was like a washboard, so rigid. Her doctor said I had two choices: 1. Go across the street to our ER and be transported by ambulance to Memorial Hospital in Savannah, GA or 2. Go home, pack some bags and make arrangements for Jaci, then drive to Memorial Hospital in Savannah, GA. We decided to drive over to Savannah. Once we were there, we went in thru the ER and they did blood work. Of course Madison’s labs were “off the chart.” Madison was admitted to the hospital in Savannah on Dec 23, 2009. This is where our HELL began!
Madison would have all kinds of test run, MRI, CT scans, X-rays, ultra sounds… over and over. Then the doctors decided to do a bone marrow aspiration, to make sure they were not missing something. By now Madison is NOT walking and her pain is in her belly button and her thigh. Our Madi bug would cry when you tried to move her. Once the results started coming in, doctors found that Madison had Osteomyelitis in her right hip, NO cancer!! Madison had surgery for central line placement, and she was released on Dec 31, 2009. Madison had to have Rocephin and Vancomycin IV via her central line every 8 hours, then once a week the visiting nurses would come change her dressing and draw blood for labs. That was a JOB in itself; she hated having the dressing changed and labs drawn!
Madison, Jaci, Courtney, Amanda and our family had Christmas at our house on Jan 1, 2010. Madison was in and out of the hospital several times over the next three weeks, while still on her IV antibiotics. Her counts continued to be up and down, so the doctors finally decided to do a second bone marrow aspiration along with a bone marrow biopsy. She was put in the hospital on Jan 19, 2010 and she received one unit of packed red blood cells. Her bone marrow test were scheduled for the next day, Jan 20, 2010 at 11:00 am.
Madison was sedated for her bone marrow aspiration and biopsy. After the bone marrow test, we went back to her room to wait for the results. Her oncologist came back and gave us the news: her bone marrow results were positive for leukemia. We would know if she had ALL or AML the next day, Jan 21, 2010. Madison started her first phase of chemo on Jan 22, 2010. When Madison’s doctors told me that part of her treatment would be taking oral steroids, I was scared to death, because every time Madison and Jaci had to take oral steroids in the past it was a FIGHT!! So I looked at her doctor and asked if there was ANYTHING different that I could give her and he suggested pills, so by the Grace of GOD, our lil’ Madison could swallow pills. All I could say was Praise GOD!! Madison has been taking pills ever since. She is such a trooper and she is my Hero♥
Madison had her hair cut for the first time on Feb 11, 2010. Her daddy and I talked to her about her hair falling out because of her chemo and she asked if she could get her hair cut short before it fell out and of course we said Yes.
Madison had her central line removed and a port a cath placed on Feb 19, 2010. She was such a big girl, but as she was waking up in the recovery room, we noticed ALOT of hair on her pillow, on the way home she asked if we could stop by her favorite salon to get her head shaved and of course daddy and mommy did just that.
Madison has had several blood transfusions and many platelet transfusions also. Madison has been transported to Memorial Hospital in Savannah, GA by ambulance 6 times. One time was in Oct 2010 and at that time her temperature was 103.8 and her platelet count was 4. Normal range is 150 – 450 thousand/ul. Madison had petechiae bruising all over her body and blood blisters all in her mouth. She stayed in the hospital for 6 days this time; her doctors stopped all chemo until her counts came back up.
Madison started her maintenance phase of chemo in late Sept 2010. She continues to be in remission, Praise the LORD! She takes oral chemo daily and goes to clinic at Backus Children’s Hospital on the campus of Memorial Health Hospital in Savannah, GA every 4 weeks for IV chemo and labs.
In Jan 2011, Madison was able to go back to school at Coffee Pre-K Academy. She came home with an assignment to write down her New Year’s Resolutions for 2011. 1. Clean my room 2. Eat healthy 3. Listen to mommy and daddy 4. Tell people about childhood cancer 5. Take care of Charli
The reason I decide to talk to Lisa Aldridge about doing something in September 2011 to raise Awareness for CHILDHOOD CANCER was because of Madison’s New Year’s Resolution! I never dreamed that it would explode like it did, but wow that is AWESOME!
On Friday, April 1, 2011, at our local Relay for Life in Douglas, GA, Madison and Jaci found out that Madison’s Make-A-Wish trip was granted and that our family would be leaving on Saturday, April 9, 2011 for Disney World. I have never seen two little girls so happy. We had a great time at Give Kids the World, Disney, Universal Studios and Seaworld.
Madison has continued to have some ups and downs with her treatment, but she continues to be a strong little girl, much stronger than her mom! Madison’s LAST CHEMO was on April 20, 2012. She is currently Chemo and CANCER FREE! Her next check up with her oncologist is Sept 11, 2013. Please Pray for another great check up.
I never thought in a million years that one of my girls would be fighting this beast called CANCER, especially at 4 years old. I pray that CURE Childhood Cancer starts getting the funding that it needs to find a cure for this horrible disease. Every day 46 families hear these words in reference to their child: “It’s cancer.” And every day 7 families hold and kiss their child for the last time. In the next 24 hours those numbers will be repeated. And the 24 hours following that… they’ll be repeated again. And again… and again. Get the picture? We have got to Raise AWARENESS for CHILDHOOD CANCER. My goal for our hometown of Douglas, GA in September 2011 (and every September after) is to “Turn” our town GOLD in an effort to RAISE AWARENESS for CHILDHOOD CANCER and to help fund a CURE for our Kiddos!