Cure Childhood Cancer

CURE Blog


April 4th, 2014

Pay Tribute to Someone Special During Lauren’s Run

The 2014 Lauren’s Run and CURE Annual Picnic is about three weeks away! Each year, we look forward to honoring the many children who are still fighting cancer strong, the families who have offered their own children and others endless support, and also those whose memories will still live on. To register for Lauren’s Run on Sunday, April 27th please click here.

Lauren’s Run tribute signs are a special way to honor and remember someone whose life has been affected by cancer. Whether an immediate family member or child of a co-worker or friend, these signs are the perfect reminder of why CURE and Lauren’s Run participants are so committed to finding a cure for childhood cancer. Tribute signs will serve as decorative inspiration along the 2K course and are yours to keep after the event.

The cost of each sign is $25 and measure 18” X 24”. To order, visit www.curechildhoodcancer.org and click the “DONATE” button. In the comment section, please include that the $25 payment is for a tribute sign honoring or in memory of your loved one during Lauren’s Run. Once you’ve paid for the sign, email Karen@curechildhoodcancer.org  with the person’s name, a 4×6 or 8×10 photo and the endearing message you would like printed on the sign. Messages must be kept to 10 words or less.

*Photo files must be .jpg or .tif. Scanned 4×6 pictures must be 300 dpi. Scanned 8×10 pictures must be 200 dpi. 

The deadline for ordering tribute signs has been extended to Monday April 14th!

Please contact Karen at Karen@curechildhoodcancer.org or 770-986-0035 ex. 26 with questions.

Register for Lauren’s Run here.

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April 1st, 2014

CURE Launches First “Believe Fund”: The Will Abernathy Memorial Fund

Screen Shot 2014-03-31 at 4.49.46 PMNamed funds aren’t new to CURE, but with the creation of the Will Abernathy Memorial Fund, CURE has made way for a new category of named funds called “Believe Funds.” With an annual total gift of $10,000, which can be comprised of multiple donations or proceeds from fundraising events, families can honor their children or someone touched by cancer by establishing a Believe Fund in their name. Believe Funds support CURE’s research initiatives or patient and family support programs.

Proceeds from the November 23, 2013 “Will to Win” 5K were used to establish the first Believe Fund in memory of little Will Abernathy, a precious five-year old who fought stage four neuroblastoma for three years. Will died in July 2013 after developing a secondary cancer as a result of his neuroblastoma treatments.

An adorable boy with blonde, curly locks and bright blue eyes, Will was diagnosed with neuroblastoma on Halloween 2010. While he became a very sick little boy, his family remembers him a different way. Gymnastics and Lil’ All Stars. Playing games on the iPad and dressing up as Buzz Lightyear and Darth Vader. Riding the John Deere tractor full-speed down the hill as his mom chased, trying to slow him down. His loyal companion, boxer Shelby, keeping a watchful eye on Will, somehow understanding his sickness and always tolerating his mischievous acts. “Will overcame every obstacle that stood in his way,” says Melody Abernathy, Will’s mom. “He faced every day with the hope and passion to live a happy life, just as we all should.”

The Will Abernathy Memorial Fund was established to support CURE’s critical research initiatives. For more information on the Will Abernathy Memorial Fund or CURE’s new Believe funds, visit www.curechildhoodcancer.org/named-funds or call Kristin Connor at 770-986-0035 ext. 24.

How to Donate to the Will Abernathy Memorial Fund

Click here to donate online and choose “Will Abernathy Memorial Fund” in the program section. Your gift will be directed accordingly.

Or checks can be made out to CURE Childhood Cancer, with “Will Abernathy Memorial Fund” written on the notes line. Mail checks to:  CURE Childhood Cancer, 1117 Perimeter Center West, Suite N-402, Atlanta, GA 30338

 


March 26th, 2014

Chick-fil-A Spirit Night Honors Two Crews Middle School Students Affected by Cancer

On Tuesday, January 14, 2014 the Chick-fil-A at Scenic Highway in Snellville, GA teamed up with Alton C. Crews Middle School of Lawrenceville, GA to host a special percentage night during which friends, families and local church members could enjoy a delicious Chick-fil-A dinner to donate to an even better cause. While most schools and organizations use the Chick-fil-A Spirit Night to raise money for their own endeavors, Crews Middle School divided 20% of all Chick-fil-A purchases between themselves and CURE Childhood Cancer!

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Supporting pediatric cancer awareness and research holds a distinct place in the hearts of Crews Middle School students and faculty; one Crews Middle student is currently diagnosed with cancer and another has lost the battle. This joint opportunity has allowed CURE and Crews Middle School to honor those students and to make more community members aware of this important cause!

Chick-fil-A proceeds alone brought in $290, but parents and attendees gave $120.90 in jar collections, bringing the total to $418.90! This was one of the best Chick-fil-A Spirit Nights at the Scenic Highway location, and that number is sure to rise as more and more people continue to spread the word!

The owners of the Chick-fil-A at Scenic Highway, Tom and Mary Balsamides, have been long supporters of CURE Childhood Cancer. In addition to this percentage night, Tom has also provided chicken biscuits for the CURE Golf Classic for the past 20 years!

Worth more than any dollar amount raised, there was surely an increase in pediatric cancer awareness throughout the Snellville and Lawrenceville community following the event! All it really takes is one dollar, one event or one conversation to make the world of a difference.

CURE would like to say thank you Tom and Mary Balsamides, Chick-fil-A Marketing Director Robin Mauck, Crews Middle School teacher Rod Hames, CURE volunteer Norma Nyoff and all other teacher, parents and students for making this event possible!

 


March 17th, 2014

Get Ready for Gladiators for CURE

Join CURE for a night of Gwinnett Gladiators hockey on Saturday March 29 starting at 7:05 pm. You’ll get to watch the Gladiators take on the Greenville Road Warriors and fight to beat childhood cancer! This special game night will also feature an autograph session by Hall of Fame pitcher and longtime CURE supporter Tom Glavine. To kick off the game, Tom will drop the puck with one lucky CURE kid! A host of other star players will also be giving out autographs, including NBA All-Star Bernard King and former NHL player and cancer survivor John Cullen.

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Purchase a discounted $15 game ticket from this link and a portion of the proceeds will benefit CURE. For just $5 after entry, you can get a custom-made autograph card and signatures of one or all of the star athletes during the second intermission! Don’t miss this chance to enjoy non-stop action and fast-paced fun with friends and family all for a great cause.


September 18th, 2013

CURE Childhood Cancer Honors Christian Angel Ramos

September is National Childhood Cancer Awareness Month. Join us today, September 18, 2013 as CURE Childhood Cancer honors CURE Kid Christian Angel Ramos. Join our fight as CURE’s Kids Conquer Cancer One Day at a Time! Donate to Christian’s fund.

Christian Angel Ramos born on January 15, 2010 had it rough since he came into this world. He is a twin to his brother Adrian Alejandro; both preemie babies born at 27 1/2 weeks. Unfortunately, Christian was born with complications. He was diagnosed with chylothorax, which is water in his lungs and was on a breathing ventilator for the first 7 months of his life.

Christian Angel Ramos PhotoOnce he was out of the hospital we went on to trying to get back to normal and adjusting with Christian being back home! Everything seemed to be going great! Christian was growing and receiving therapy since he was delayed in all areas due to his complications and hospitalizations since birth. He was even attending a special school from 9 months until he was 2 years old. That’s when our lives once again completely changed.

It was March of 2012. I was carrying Christian Angel and noticed a lump in his abdomen. I rushed him to the ER where they said to go see his pediatrician. But I needed a second opinion! I couldn’t wait so I rushed him to another local ER from which he was transferred to MD Anderson Cancer Center in Houston, TX. Once again was in the battle for his life. At first I couldn’t comprehend what my son was doing at a cancer hospital when he didn’t have cancer. This was all so surreal. I was in complete shock and denial!

A week later my worst fear was confirmed my miracle baby was diagnosed with High Risk Neuroblastoma Stage 3. This news broke my heart into a million peices. I once again found myself in a dark place. This was a complete shock to all of our family. There I was thinking life was back to normal – especially since he was living his best days. He was getting better with his goal of starting to walk! No. I was wrong. The worst was yet to come.

Christian had to overcome 9 cycles of highly toxic and deadly chemotherapy. Each round consisted of 5 days hospitalization; each day receiving chemo. He also received 19 rounds of radiation and 3 surgeries (2 port placements and 1 tumor resection) not to mention the countless times I had to rush him to the ER at 5 or 6 am once the chemo started kicking in with high fevers and nausea/diarrhea. It was like literally going through hell watching him suffer. I had no words to know exactly what he was feeling or going through since he was just 2 years old and not able to communicate his pains and feelings to me.

I call him my Angel on earth ever since he overcame his premature complications but now I have all the more reason to declare him My Angel From God with an unforgettable nightmare he went through. It was right about after his 2nd dose of aggressive chemo he suffered a brain seizure that caused him to stop breathing. I saw this right before my eyes. I thought his battle was over as well as my life. By the Grace of God he came back to life and started breathing on his own. He was on a ventilator for about 1 week before he was breathing well on his own. We never knew the reason for this seizure but we know God was there with him that night. Today Christian’s worst days are history and the best days of his life are ahead of him!

Today Christian is doing great adjusting to being back to home. He also started school this August. Things couldn’t get any better! He started walking 3 months after his third birthday and now he is unstoppable. He enjoys playing in the pool, running, making new friends, and most of all playing with his older brother Hugo, his twin brother Adrian, and his cousins and family. We are beyond blessed with our miracle child. He is now in remission and is on his last month of maintenance therapy of Accutane. He will be having his end of treatment scans the first week of September and I am trusting in the Lord Almighty that my Miracle will continue to be CANCER FREE!! We declare that in the name of  Jesus!!! And this is the special verse that kept me strong throughout this horrific battle!Donate Now


October 5th, 2012

Inspired by Children, CURE Vice President Raises Over $12,000

At the end of September Leslie Zacks, CURE Childhood Cancer‘s Vice President of the Board of Directors, participated in the Augusta Half-Ironman Triathlon. Inspired by Patrick, a young boy who lost his five and a half year battle with Neurobslatoma, Leslie participated in order raise money for the families affected by childhood cancer.

He was able to raise over $12,000 for CURE and has shared with us about the experience. Trust me, you will want to read what Leslie had to say.

Three years.  Apparently that’s how long it takes to forget excruciating pain.  At least for me.  Three years ago to the date, I competed in the Augusta Half-Ironman Triathlon.  That’s a 1.2-mile swim, a 56-mile bike ride followed by a 13.1-mile “run.”  In 2009, I tried my best but suffered mightily and looked like a sleepwalking zombie as I crossed the finish line in 5 hours 44 minutes.
 
This past weekend, I touched the hot stove again and competed in the same triathlon.  The race is chock full of elite triathletes from far flung places trying to qualify for “Worlds,” which I presume is a race at Epcot because I will never see a World Championship without a remote control in my hand.  I did my best to fit in with these elites and that was not an easy act for a balding, 44-year old father of 3 who eats dessert, doesn’t shave his legs, and doesn’t ride a bike that costs more than his car. Thanks to my selfless wife and family, however, I did train hard.  In fact, in 80 days of rigorous training:

  • I rode my bike 1,003 miles
  • I ran 197 miles
  • I swam 46 miles
  • I burned over 75,000 calories during training and 3,627 during the race
  • And after all that, I lost a whopping 2 lbs! (Thanks mom and dad for the genes of a three-toed sloth.)

I entered the race with 2 goals: (i) to raise as much money as possible for CURE Childhood Cancer; and (ii) to beat my time from 2009.  I am happy to report that I painfully accomplished both goals.
 
First and foremost, I cannot thank you enough.  If you are receiving this e-mail, then you donated to my cause, inspired me, coached me, trained with me and generally kept me moving forward over the past few months.  Thank you, thank you, thank you!
 
Swim.  The day before the race I played in a golf tournament.  There, I met a woman who looked at me like I had 5 heads when she heard I was racing. “You’re gonna swim in the Savannah River?  Do you know what they found in there?” I interrupt and respectfully asked her to hold her thought until I was in the next county. Her comment seemed to inspire me because I swam like a scorched salmon.
 
Bike.  Despite a few ambulance sightings and near misses, I rode swiftly and comfortably… until the first cramp. I stretched my calves at mile 50 and my right quad seized up as if it had been electrocuted. It would never recover. I would consume electrolyte tablets as if they were crack. Unfortunately it was too late. My fate had been sealed because I had not taken in enough fluids during the early miles of the bike. I had followed my training plan but it was quite humid on race day and I clearly needed more liquids.
   
Run.  For the next hour and 58 minutes, I would resemble Frankenstein trying to take his first steps, with a piano on his back.  I limped, hopped and shuffled.  Thankfully Augusta is a very genteel Southern city.  Instead of telling me to “hustle” or “finish strong,” spectators would say “Bless his heart” or “What’s wrong with him Mommy”?
 
I was in pain.  I questioned whether I could do this.  I questioned whether I could finish.  The next few hours of my meaningless race were in doubt and there was nothing I could do but quit or choose a painful course.  At that very moment, my mind drifted to Patrick, Brennan, Flynn, Jordan, Julia, Trenton, Hayley and so many other beautiful children who have endured so much worse.  I thought about their loving families and the difficult and painful decisions they had to make.  My pain subsided a bit and is replaced with a profound sense of determination to continue doing everything in my power to PressOn. 

I gut out a 9-minute mile pace over the half-marathon and finish.  When I arrived at the finish line, let’s just say that the elite triathletes had already finished, talked about Worlds or whatever they talk about after a race and then vanished.  
 
In the end, I wasn’t the best but I wasn’t the worst either. I had accomplished my goals. I raised over $12,000 for CURE and I beat my 2009 time by over 17 minutes, finishing with a time of 5:27 which put me in the top 30% of the 3,400 racers. Sure, I’m walking like the Tin-Man right now, but it’s worth it.
 
Again, I cannot thank you enough for all you do and don’t be surprised if you get another request to donate to my triathlon efforts.  It’ll likely be in about 3 years.
 
Leslie
 


October 5th, 2011

Kickin’ Kids Cancer

CURE Childhood Cancer is pleased to announce Kickin’ Kids Cancer 5K Fun Run/Walk, a race dedicated to seven children whose lives have been touched by cancer.

Saturday, November 5, 2011
Registration – 7:15 am
Race – 8:00 am
Brookstone Country Club
Acworth, Georgia

Click here to register!

Prior to October 22, registration costs $20 for adults and $10 for children. From October 22 to Raceday, registration costs $25 for adults and $15 for children. All proceeds will benefit CURE Childhood Cancer and Camp Sunshine.

Registration comes with a free Kickin’ Kids Cancer t-shirt! Make sure you register prior to October 22 to be guarenteed to receive your requested t-shirt size. Additionally, parking is limited, so please carpool!

Please download this form for more information and to register for the race. For any additional questions, please contact Kathleen Stoler at info@kickinkidscancer.org or visit the Kickin’ Kids Cancer website.

We hope to see you all at the race!


August 31st, 2011

Meet our CURE Community of Bloggers!

We are so appreciative for our friends in the blogging community, our “CURE Community,” that support CURE Childhood Cancer.  Because of their dedication and support, they are able to spread awareness for childhood cancer to so many of their readers that we could not otherwise reach.

Below please find our blogroll of CURE Community bloggers. Be sure to click thru to visit their site and show some love for the support they provide us too.

Interested in joining our CURE Community too? It’s easy. Simply write a post about CURE Childhood Cancer on your blog, grab one of the blog badges below and link it to our website www.curechildhoodcancer.org, and then be sure to leave us a comment with a link to your blog on this post, letting us know you’ve posted. You will then be added to our CURE Community website page!

CURE Community:

 

Grab a Blog Badge:

 

 

 

 

 

 

 

 


April 13th, 2011

Kingpins for Keith Raises $2,000 for CURE Childhood Cancer!

Kingpins for Keith, a bowl-a-thon in memory of Keith Towels and benefiting CURE Childhood Cancer was held on March 24 at US Play of Kennesaw. Over 35 people came together to bowl and honor the memory of Keith Towels, who died of AML in 2005 at the age of 2. The event raised over $2,000 for CURE!  We would like to thank all who organized, participated and sponsored this wonderful event.


April 11th, 2011

Volunteer Opportunities with CURE Childhood Cancer

We are currently seeking volunteers for CURE Childhood Cancer for the following programs. We greatly appreciate your support and time in volunteering!

CURE Brown Bag Lunch Program
As an extension of our Open Arms Meal Program, CURE delivered the first Brown Bag Lunches to the parents of children with cancer who are inpatient at Scottish Rite and Egleston Children’s Hospital on February 22, 2011.  This program is a means to help defray the overwhelming costs of caring for a child with cancer and the lengthy hospital stays required for treatment.  Because of CURE’s amazing support from our volunteers and others who want to make a difference for these special families, beginning in April 2011 we will introduce a 2nd Brown Bag Lunch each month.  We will deliver 60 CURE Brown Bag Lunches twice a month to the hospitals. We are looking for groups, companies and/or organizations to sponsor a lunch, either by donating the cost of the food ($300 for one month) or, preferably, by collecting the food, assembling the bags and delivering them to the CURE office for delivery to the hospital by CURE Volunteers.

CURE is looking for 3 volunteers who can commit to one Tuesday a month between the hours of 11:00 and 1:30 to deliver the Brown Bag lunches to the hospitals. Please note that because you will be visiting the hospital once a month, you will be required to complete the Children’s Healthcare of Atlanta Volunteer Application Process as well.  If you are interested in more information about this special long term volunteer opportunity or donating to our Brown Bag Lunch Program, please email lisa@curechildhoodcancer.org or call Lisa at 770-986-0035 ext. 22.

In Office Volunteers Needed
CURE needs two office volunteers on Wednesday, April 27th at 9:30am.  We will work on preparing t-shirts to present to the dedicated nurses at Scottish Rite and Egleston Hospitals in honor of Nurse’s Week in May.  If you are available to volunteer, please email Leigh at leigh@curechildhoodcancer.org.

Silent Art Auction
We are in need of 2 volunteers for a Silent Art Auction sponsored by PRESS ON, a CURE Childhood Cancer named fund.  Volunteers are needed at the Druid Hills Golf Club on Saturday, May 21, 2011 from 8:00pm -11:00pm. CURE volunteers will assist with the check-out process for winning bidders.  If you are interested in volunteering for this event, please email Lisa at lisa@curechildhoodcancer.org.


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    JOIN US! CURE'S KIDS CONQUER CANCER

    Would you like to share your child's story as part of our fundraising event, CURE's Kids Conquer Cancer One Day at a Time? Click here to learn more or email Lisa Branch at lisa@curechildhoodcancer.org.

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    10th ANNUAL "A TRIBUTE TO OUR QUIET HEROES"

    Tickets are on sale now for the 10th Annual luncheon celebrating the mothers of children diagnosed with cancer. Join us Saturday, September 27th at the InterContinental Buckhead. Click here to purchase tickets or learn more.